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Long use of tegretol and menopause risk factors

Thu, 12/12/2019 - 12:50
Since during menopause especially in premature menopause, there is a risk for cardicaskular problems on the other side tegretol can also be risky for cardiovaskular problems so can cause them! I am on it since 20 years and previosly i was on other drugs now i am on perimenopause inheritet from mother - premature perimenopause ...i would like to adk other woman did you use tegretol during your menopause and did that affect your heart or ?! Thank you

Comments

Hi, Thank you for posting.

Submitted by Anonymous on Fri, 2019-12-13 - 09:09

Hi, Thank you for posting. Treatment and how the body may react to certain medications varies for each individual. The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. To learn more about Tegretol and potential side effects, visit: https://www.epilepsy.com/medications/carbamazepineIt’s important that you're continuing to follow-up with your healthcare team to review you concerns you have about your medication if you experience changes in symptoms, behaviors, moods, sides effects and seizure frequency/types, to determine what individual treatment plan is best for you.  Whether you’re new to epilepsy or not, the more information you have the stronger you will be. As a woman living with epilepsy, there is even more to consider, ranging from the impact of hormones on seizures, seizure medications, and more. Browse our section on women and epilepsy to learn more about hormones, menopause and questions to review with your doctor’s, here:https://www.epilepsy.com/living-epilepsy/women/menopause-and-epilepsy     https://www.epilepsy.com/specific-populations/women, you may want to consider keeping a journal or diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for identifying & tracking seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, triggers,and other personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline

Hi, Thank you for posting. Treatment and how the body may react to certain medications varies for each individual. The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. To learn more about Tegretol and potential side effects, visit: https://www.epilepsy.com/medications/carbamazepineIt’s important that you're continuing to follow-up with your healthcare team to review you concerns you have about your medication if you experience changes in symptoms, behaviors, moods, sides effects and seizure frequency/types, to determine what individual treatment plan is best for you.  Whether you’re new to epilepsy or not, the more information you have the stronger you will be. As a woman living with epilepsy, there is even more to consider, ranging from the impact of hormones on seizures, seizure medications, and more. Browse our section on women and epilepsy to learn more about hormones, menopause and questions to review with your doctor’s, here:https://www.epilepsy.com/living-epilepsy/women/menopause-and-epilepsy     https://www.epilepsy.com/specific-populations/women, you may want to consider keeping a journal or diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for identifying & tracking seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, triggers,and other personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline

WOW!!!!!!! I have been on

Submitted by My1Family on Sun, 2020-01-05 - 13:05
WOW!!!!!!! I have been on Dilantin and tegretol for 41 years as well. Recently my neurologist tried to switch me to toperimate. As I have also not had my menstrual cycle since October 2018. Nor have I had any grandmal seizures (that are normal to me). However my neurologist tried me on toperimate and I never made it past 2 days of 25mgs each day. However he also said i was having focal seizure because of numbness and tingling in my left leg and arm. I’ve been looking into which medication and everything safest and best to try so I can wean myself off of the Dilantin and tegretol and Clobazam which are causing me to become toxic now. I would never in my life wish for anyone to ever be on toperimate!! But oddly that was the first time I ever had an neurologist ask me what I think I should be on or that may work? I have no clue except it will absolutely not be keppra or toperimate. Can anyone please give me some ideas as to which medication maybe best to consider that doesn’t hurt the head or neck and memory SO BAD?! Thank you and please be well and take care of yourselves. 

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