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Lamotrigine and kepra

Sun, 01/19/2020 - 11:34
I am 22 and I take 150mg of lamotrigine and 1000mg kepra day and night and I have recently been put up to 175mg lamotrigine day and night as well as the kepra. A day or two before I have started to feel down but now it seems every day i either feel down or I end up crying my eyes out for no reason or sometimes both. I also feel a lack of energy some days as well. I did feel a bit depressed for only a little while when I was first given lamotrigine when I was diagnosed with epilepsy but then it went away but I dont recall ever feeling this down. I have kept this to myself for now but I want to know if anyone else has felt like this? On lamotrigine or kepra, so maybe it could just be the medication or it could be nothing and will go?

Comments

Hi,Thank you for posting, it

Submitted by Anonymous on Tue, 2020-01-21 - 06:11
Hi,Thank you for posting, it sounds like you’ve been through a lot.  Being diagnosed with epilepsy can be upsetting and make you feel isolated and alone. However, it’s important to remember that you are not alone, and we are here to help support you. One of the most important things to help you live with epilepsy is to find a support network. Learn more about your community support options here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns Or contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline   Treatment and how your body may react to certain medications varies for each individual.  The goal of treatment with medicines should be –No Seizures and No Side Effects.However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. To learn more about the medications you’re taking and about seizure medication side effects, please visit: : https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effectsYou may want to consider keeping a journal or diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for identifying & tracking seizures and triggers, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, and other personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team.  It is common for those living with epilepsy to experience feelings of depression. We cannot determine if these feelings of depression you describe experiencing is related to your change in medication dosage or not.  It’s important that you’re addressing this challenge with your healthcare team, as well as any changes in changes in seizure types, frequency, behaviors, moods,  sides effects & symptoms, to determine what individual treatment plan is best for you: https://www.epilepsy.com/learn/challenges-epilepsy  It is also important to recognize that epilepsy is more than just seizures, your overall well-being and emotional health is just as important:  https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health  

Hello @Gemma169I am 20 and

Submitted by Ellabella_5c8142315329e on Fri, 2020-01-24 - 15:32
Hello @Gemma169I am 20 and take 1000mg of Keppra as well. Although I am not on Lamotrigine, I can really relate to what you are going through. Every day feels like a struggle. I often miss my old self who was happy and positive all the time. It feels like Keppra is the pill form of depression. I find myself sad, upset, and frustrated nearly every day and often need to sneak away from class just to let the tears out. I want you to know that you are absolutely not alone, and these sad feelings are not you. It is so extremely hard to convince yourself that "it's the medication" when you're in the bathroom crying telling yourself that everything sucks. It's not fair. I hope sometime in the near future- the side effects of your medications will lessen, and you will start feeling like yourself again. I try to remind myself as often as I possibly can "it's just the medication... it's just the medication..." but the feelings are so real in the moment.I'm not sure how long you've been on Keppra, but my doctor told me every time you start Keppra or up the dose, people will experience bad side effects for a month or two. I know this can feel like forever, but I too am hoping there's a light at the end of the tunnel. Until then, I thought I'd offer a few coping mechanisms that usually make me feel better:1.) Ask yourself how bad your symptoms are on a scale of 1-10. If they are 5 or below I usually focus on the generic coping mechanisms such as: watching a funny show, looking at funny memes, calling up a family member, trying the whole "fake it till you make it" attitude, go for a quick walk, accomplish a small and easy task, etc... Symptoms that are 1-5, my main goal is to lift my spirits again and try to distract myself until the feeling passes.2. If your symptoms are 6 or higher (or the feeling doesn't pass) I stop with the strategies listed above. Sometimes you really need to let out how you feel. It's okay to grieve your illness and all the horrible effects it causes you. I'll say it again because someone might miss it:IT'S OKAY TO GRIEVE YOUR ILLNESS! Living with epilepsy is so incredibly unfair. You did not deserve this. You are so incredibly strong for keeping it together when you need to but it is really, really hard. It's okay to let your feelings out. I will usually find somewhere I can be alone for a little when it gets to this point. I may write down everything I'm feeling but I normally find myself on some kind of forum for people who are struggling with a chronic disease. It makes me feel better knowing so many people with my disease are going through what I'm going through. I like reading poetry about living with a chronic illness. Sometimes you just need to let it out and cry. Many of my friends and family try to sympathize, but no one really, truly understands what this is like- except for you guys on here. You are allowed to stop your tasks (school, work, responsibilities) for a minute and not feel guilty for giving yourself time. This time you spent crying or sleeping or watching T.V was not wasted (although it may feel this way). You are coping the best you know how. You have been through so much with this disease. We are all still learning how to cope. Lastly, please take care of yourself the best you can. Some days you may need to cancel all your plans and responsibilities and that is okay. Just try to remember, it's the medication- not me. However, if you stay in a really bad place (for what feels like too long- could be a day, could be a week- this is different for everyone) please seek out additional help. This could include a therapist, your doctor, this website, etc... but don't wait until you start questioning your life. Remember, this world would not be the same without you. You are loved and appreciated. You are capable and extremely strong. I have no doubt in my mind that anyone battling this horrible disease has the capacity to overcome these depressive states. You can do this. Even if you don't believe in yourself, just know there are so many people on here that know exactly what you're going through and believe in you! You absolutley got this! Take care,-Ella

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