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Keppra XR starting side effects after 4 years

Mon, 05/21/2018 - 10:27
Hi all, This is my first time here. I have been diagnosed with MJE when 14 years old, when living in Brazil. Was medicated with Klonopin 2mg daily. Was seizure free for 20 years. I had only 4 grand tonic clonic seizures during my life. When I got pregnant, they took me off of Klonopin. I was put on Keppra XR 1000mg in 2013 and did very well in the beginning, with no side effects and great seizure control. During my second pregnancy, they doubled the Keppra dosage and had me come back to the regular dosage after delivery ( tapering down). This happened in 2016 and I have been feeling miserable since then. I felt depressed, irritable, emotional, extremely tired, constant sore throats. Doctors thought I had postpartum depression. I did all sorts of blood work and they came back normal. At this time, I am getting cold shivers, exhaustion, muscle weakness, poor concentration. I am wondering if any of you guys experienced side effects coming later and getting progressively worse. Any help appreciated. I will see my neurologist on May 29th.

Comments

I've been on Keppra XR 750mg

Submitted by mirnie on Thu, 2018-05-24 - 19:43
I've been on Keppra XR 750mg for like 4 years, and never experienced any side effects that I am aware of. However, I am on a lower dosage. Also, I am a woman, but I have never been pregnant so I don't know. 

Also I do not know if it is

Submitted by mirnie on Thu, 2018-05-24 - 19:53
Also I do not know if it is worth mentioning, but I am on the generic form of KeppraXR.

Hi. I was on the same dose as

Submitted by Memento on Tue, 2018-05-29 - 21:32
Hi. I was on the same dose as you. Keppra and Lamotrigine stole 16 years of my life. I came off them a year ago and I am recovering. I am getting better, but I’m a long way from being back to normal. I had the same problems as you and I was unable to have a conversation. Your sick feelings could be caused by Keppra. It can cause pharyngitis. Keppra can cause neutropenia, which is a depletion of white blood cells. That’s a simplistic definition, but you end up with an immune system which does not work correctly. It is depleted. I’m a researcher, I am not a medical practitioner, but I’ve studied these drugs for years. For an overview, have a look at RXList.com and drugs.com. If you’re up for it, check out Medline and John’s Hopkins, and the Mayo Clinic for info. Good luck.

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