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Keppra, Topamax, and Voice Loss
Fri, 05/10/2019 - 19:35Topic: Medication Issues
Hello, everyone. About 9 months ago I began to loss my voice. I've been taking the generic of Keppra for years (about 5 or 6) and generic of Topamax just recently (about a week ago). I've had a sore throat, difficulties talking and inability to speak loudly at all, along with hoarseness.
Now I was in the hospital last week and when my doctor took me off both medications, my voice began to return. It was not perfect but the best if had been in 9 months. And he had discontinued my Keppra now but left me on the Topamax and wanted me to start it again once I was released from the hospital.
So I started it this morning and noticed my voice began to disappear again. I'm starting to think I'm having issues with the medications.
Any ideas as to what can be done since my doctor insists on leaving me on a medicine that is ruining my voice?
Hi heather_anima, Thank you
Submitted by Anonymous on Mon, 2019-05-13 - 09:40
Hi heather_anima, Thank you for sharing your experience.We understand this can feel frustrating, especially if you’re feeling like your doctor is not listening to your concerns. It is important to keep trying to communicate with your doctor. You may want to consider with your health care provider having a device that can help track your seizures, by visiting https://www.dannydid.org/ , and by keeping a seizure diary, https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary as another self-management tool. These tools may be helpful when trying to communicate your concerns with your doctor, as well as identifying & tracking seizures, other symptoms, managing medication& other therapies, recognizing triggers and health events that may affect seizures and wellness.For additional information regarding seizure medication and side effects Please visit www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines& https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effects and by visiting, www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/how-medicines-work & https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/finding-best-dosageSometimes it's helpful to connect with other people who live with epilepsy to ask questions, share experiences, and find and give support to each other. Find your local Epilepsy Foundation at epilepsy.com/localsupport, then contact them to find support groups, events, and programs in your community. If you have additional questions, please contact our 24/7 Helpline by emailing contactus@efa.org , or at 800-332-1000, where a trained information specialists can connect you to resources, provide referrals and additional support.