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Keppra Issue

Thu, 09/06/2018 - 21:33
Just looking for some insight... I have read so many forums on here about the issues people have with keppRAGE and I have been experiencing it to the fullest. I have had a few TC seizures and after my last hospital visit I was put on Keppra 750 mg two times a day which works for the seizures but the side effects are horrible. I am basically intolerable to be around. My Dr. told me that the issues I was having should subside in about a month and to take some B6 which should help. I am now about to go back for my six week follow up and still feel the same as I did when I first started getting side effects. I try my best to ignore the rage I feel but it’s extremely difficult. I feel as if I am a completely normal person one minute and the next I get so furious at the littlest things. My question in all of this... has anyone had these same issues and switched to something else successfully? I just don’t want to bother if they are all going to have the same issues. It does seems that there is a lot more issues with Keppra than there are success stories so I’m thinking I’m just on the wrong medication. Any help will be greatly appreciated.

Comments

Each person is different.

Submitted by just_joe on Fri, 2018-09-07 - 16:56
Each person is different. Their medications and doses are different. Yes some people gt side effects. But with most people those side effects generally go away after your body gets used to them. Been there done that with several medications. You read about kepprage and few posts rom people that have not had issues. Well if your medication was working would you come into a forum and make a post about it working fin and it controlling your seizures?

Been there! My son is 17 and

Submitted by klutzy17 on Sat, 2018-09-08 - 08:58
Been there! My son is 17 and has autism and limited speech. He was on Keppra for almost a year before we saw the rage and it was bad and sudden. Took us a while to get him off and on Lamictal.  Not much change and he picked up compulsions. Then tried Trileptal and Dilantin and Vimpat. Currently on Vimpat and Briviact and with a new doctor. Also added Buspar for the new anxiety. Not seeing tonic/clonic but now seeing foacal or partials about 2 a month. In fact, he had one last week coming down the stairs and rolled over the banister to the foyer below. Scariest moment of my life. Somehow, he's ok! Too many options for you to stay on something that makes you feel this. I'm, not sure we're going to stay on this combo since we still see moderate aggression and compulsions.   He just took a swing at me this morning! Good luck!

I switched from Depakote to

Submitted by EPinDC on Sun, 2018-09-30 - 09:44
I switched from Depakote to Keppra about 1.5 years ago and am now taking 1000 mg/day. Keppra has been ok for me but has definitely effected my mood and sleep...and possibly caused some other problems...so I completely sympathize with what you're going through. I would recommend that, unless Keppra is causing you huge issues that you stay on it for a few more months. The truth of the matter is that all AED's have some negative side effects so if you switch right away it's likely that you'll experience another set of difficulties/challenges; additionally, switching meds, at least in my experience, can be tough/tricky. So, as I said, I'd try it for a few more months, see how it goes, see if your doctor has any more suggestions on how to mitigate the negative effects, and go from there. If nothing is improving after you feel like you've given it a fair shake, then maybe think about switching and discuss with your doctor. 

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