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Kappa self withdrawal

Fri, 09/06/2019 - 05:41
I've been taking 1000 mg 2x daily for 10 years maybe? I had surgery 3 years ago and haven't had a seizure since. I was supposed to see my neurologist back in May but I have to wait another year to see him. I hate taking my tablets as I think they aren’t doing anything as I have forgot to take them on 3 occasions and was wondering has anyone weaned there self of kappa without their doctors approval. I was on lamictal a year ago and the doctor reduced it over a year.

Comments

Hi Blaze,  Thanks so much for

Submitted by Anonymous on Fri, 2019-09-06 - 13:28

Hi Blaze,  Thanks so much for posting and congratulations on being seizure free for three years, that’s wonderful news! We understand your frustrations, but It’s important that you continue to follow-up with your healthcare team prior to make any changes in medication, as well as any changes in seizure frequency, side effects, seizure types, changes in behaviors and symptoms. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf For information regarding second opinions, or assistance finding a specialist near you, please visit : https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist  For more information regarding Keppra & tapering off medication, please visit: https://www.epilepsy.com/tools-resources/seizure-medication-list/levetiracetam and https://www.epilepsy.com/treatment/medicines/stopping-medication For additional questions, please contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org , where a trained information specialist can connect you to resources,  provide referrals and additional support. epilepsy.com/helpline Additionally, your local Epilepsy Foundation:https://www.epilepsy.com/affiliates can help you find resources, support groups, events, and programs in your community. 

Hi Blaze,  Thanks so much for posting and congratulations on being seizure free for three years, that’s wonderful news! We understand your frustrations, but It’s important that you continue to follow-up with your healthcare team prior to make any changes in medication, as well as any changes in seizure frequency, side effects, seizure types, changes in behaviors and symptoms. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf For information regarding second opinions, or assistance finding a specialist near you, please visit : https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist  For more information regarding Keppra & tapering off medication, please visit: https://www.epilepsy.com/tools-resources/seizure-medication-list/levetiracetam and https://www.epilepsy.com/treatment/medicines/stopping-medication For additional questions, please contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org , where a trained information specialist can connect you to resources,  provide referrals and additional support. epilepsy.com/helpline Additionally, your local Epilepsy Foundation:https://www.epilepsy.com/affiliates can help you find resources, support groups, events, and programs in your community. 

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