Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Help finding good Doctor

Tue, 01/30/2018 - 11:49
My name is Peter McNeil and my story is a long one. The basics are as follows: Diagnosis via CT scan w/o contrast: Right Frontal Focal Hemorrrage measuring 7x5mm, suspect hemorrhagic contusion. This injury was the result of a single-car accident, which occurred on May 18th, 2015. At the time I did not have insurance, so did not do appropriate follow-up. At the time I don't remember the hospital telling me I needed any follow-up, as my memory is blank for about 2 days prior to the accident and a week afterwards. But after the accident I did not experience any adverse effects, besides the temporary memory loss. Within approximately two months, very severe symptoms began to manifest. Severe to the point where I would ask God to take me home if I could not get better. At the time I did not connect my symptoms to the accident, so I thought I had PTSD. My family physician prescribed me 1 mg of clonazepam daily. This medicine immediately took away all of my negative symptoms, and made me feel completely normal. My basic issue is this: I am currently being treated by Samaritan Health Services, and thus far have been treated as a drug addict liar and have been refused help to find the appropriate dose of clonazepam. They have not ran any tests in order to validate what I am saying. They classify my use of clonazepam as a problem. I am very scared, because I never want to feel the way I felt before; I simply cannot endure it. And because I am undermedicated now, my symptoms have partially returned. So I must endure this, on top of being attacked for taking a legally prescribed medicine that alleviates all of my negative symptoms. I don't know where to turn for help, but I definitely need it! Thank you very much for taking the time to read through this. Peter McNeil Corvallis Oregon

Comments

call the 24/7 help line and

Submitted by just_joe on Wed, 2018-01-31 - 11:47
call the 24/7 help line and ask them about this issue...That number is 1-80-332-1000Also PTSD can also can also be a cause for epilepsy. Your hemorrhagic contusion can cause bleeding and that can cause damage to the brain.  A concussion can cause scar tissue which is the cause of my epilepsy. The concussion cause bleeding which caused the scar.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.