Fycompa?

Hi dawall039,  Thanks so much for posting. It’s  important that you follow up with your healthcare team to discuss any changes in side effects, seizure types, frequency, behaviors, and symptoms to help determine what individual treatment is best for you. To help prepare for your visit with your doctor visit:  https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf https://www.epilepsy.com/sites/core/files/atoms/files/717QHT_QuestionsHealthcareTeam_05-2019.pdf                   For more information regarding Fycompa & side effects visit: https://www.epilepsy.com/medications/perampanelhttps://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effects https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/drug-interactions It may be helpful having a device: https://www.dannydid.org/ ,  that can help track seizures:  https://www.epilepsy.com/learn/managing-your-epilepsy/tracking-my-seizures/importance-tracking-seizures And by keeping a seizure diary:  https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary These tools may help in identifying & tracking seizures, other symptoms, managing medications, & other therapies, recognizing triggers and health events that may affect seizures and wellness, which you can share with your healthcare team. https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf     Sometimes it's helpful to connect with other people who live with epilepsy,  to ask questions, share experiences, find & give support to each other, by contacting your local Epilepsy Foundation at:  epilepsy.com/localsupport   to find support groups,events, and programs in your community. Additionally our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org can assist in connecting you to resources, provide referrals and additional support. epilepsy.com/helpline   

I'm very new to all of this but my 8 year old daughter has been on Fycompa for almost 3 weeks now and it has been very bad for us.  Please read the side effects to Fycompa.  I helped reduce some of her seizures but not a lot.  She is sleeping more than usual and is very agressive, emotional and paranoid, none of which she has ever been before.

Hi there,Gonna start with the usual reminder that every person's experience with a medication is really unique, and what worked or didn't work for one person doesn't predict what will work for you. My neurologist had suggested fycompa as an option for me. I turned it down because I was worried about the fact that it has a black box warning about the possibility of a side effect that can--in VERY rare situations--cause extreme side effects related to mood or even psychosis. At the time I was looking to stop the med I was taking because of the emotional side effects, so I decided to stay away from fycompa for now. But my doctor had reassured me that if I did want to try it, he currently has multiple patients who are doing well on it with few side effects. So while I don't have personal experience to share with you, I can tell you that there's a potential for a serious negative reaction, but there are also many people with good experiences with the medication, much like any other seizure medication I've heard of. I hope this was helpful.Best of luck,B