Dizzy spells and double vision

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Hello there I am 32 years old and was diagnosed with temporal left lobe epilepsy 4.5 years ago, although I have just found out there is also electrical activity in the right hand side. I found this out after an EEG this previous July. The reason I am messaging is because I suffer with very strong double vision and headaches that just spring out of the blue! Does anyone else suffer with this? I am off work again today, I only work part time but was absent last week as well as today and yesterday. I am so worried that when my contract ends in March I may lose my job due to all my absences. I had three seizures while standing at the bus stop last Monday and it took me an entire week to feel “normal”. I was just so drained and constantly looked white as a sheet. Muscles ache in places you never knew you had! Epilepsy is just awful and no one knows what it’s like unless you go through it yourself. Any advice would be greatly appreciated. I am due to have an internal EEG soon and am so scared. I have just had a PET CT Scan and have no idea what they might find as I still have seizures even though I take my medication!

Comments

Hi Nic-87, Thanks so much

Submitted by Anonymous on Tue, 2019-10-15 - 09:41

Hi Nic-87, Thanks so much for posting. It’s important that you’re continuing to follow-up with your healthcare team to express your concerns and if you experience any changes in seizure types, frequency, behaviors, side effects and symptoms. Explore the employment section of our website, to help manage the impact of epilepsy on your work, learn more about your legal rights, reasonable accommodations and resources that are available to help: https://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-knowA key part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living to learn more about resources that are available & when help is needed. You may want to consider creating a seizure response or action plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those around you to understand what to do if you have a seizure. Use a journal or diary, to track your seizures, record your medical history, medications, side effects, moods, triggers, or other personal experiences. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Learn how to live with seizures, potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe Reviewour seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfOne of the most important things to help you live with epilepsy is to find a support network. Sometimes it's helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Learn more about your community support resources, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concernsAdditionally you may contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline

Hi Nic-87,  Thanks so much for posting. It’s important that you’re continuing to follow-up with your healthcare team to express your concerns and if you experience any changes in seizure types, frequency, behaviors, side effects and symptoms. Explore the employment section of our website, to help manage the impact of epilepsy on your work, learn more about your legal rights, reasonable accommodations and resources that are available to help:  https://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-knowA key part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living  to learn more about resources that are available & when help is needed. You may want to consider creating a seizure response or action plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those around you to understand what to do if you have a seizure.  Use a journal or diary, to track your seizures, record your medical history, medications, side effects, moods, triggers, or other personal experiences. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Learn how to live with seizures, potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe Reviewour seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you:  https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfOne of the most important things to help you live with epilepsy is to find a support network. Sometimes it's helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Learn more about your community support resources, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concernsAdditionally you may contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline   

Hi Nic-87, Thanks so much for posting. It’s important that you’re continuing to follow-up with your healthcare team to express your concerns and if you experience any changes in seizure types, frequency, behaviors, side effects and symptoms. Explore the employment section of our website, to help manage the impact of epilepsy on your work, learn more about your legal rights, reasonable accommodations and resources that are available to help: https://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-knowA key part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living to learn more about resources that are available & when help is needed. You may want to consider creating a seizure response or action plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those around you to understand what to do if you have a seizure. Use a journal or diary, to track your seizures, record your medical history, medications, side effects, moods, triggers, or other personal experiences. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Learn how to live with seizures, potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe Reviewour seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfOne of the most important things to help you live with epilepsy is to find a support network. Sometimes it's helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Learn more about your community support resources, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concernsAdditionally you may contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline

I noticed that you posted

Submitted by Patriotrehab on Tue, 2019-10-15 - 12:47

I noticed that you posted this in the medication issues. The only time that I’ve had problems with my vision has been an adverse reaction to medication, which was a medication that I could tolerate on a lower dose but once it got higher - it became toxic to my body. As soon as I stopped that medication the vision changes went away. I suggest talking to your doctor about the medications that you are on and the the symptoms that you are experiencing to see if there is any connection. Some of us with epilepsy also experience migraines. I hope like ConnectHelp suggests that you are keeping a journal of some sort so that the doctors can see if there is any connection to your seizures and your other symptoms. I certainly hope that your doctors can figure out the right treatment for you!

I had visual problem for

Submitted by Sweetkamie20 on Fri, 2019-11-22 - 20:56

I had visual problem for months. They did subside.