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Are Seizures meds making me feel psycho?please tell me I’m not alone

I’m new, 32 year old single mom with two kids. Librarian/farmer/ photographer. Since I started having seizures I lost my job due to not being able to drive. I was just diagnosed with simple/complex partial seizures. I was very resistant to try the meds but after a lot of pressure from doctors and family and the fact that I need to work I started Zonisamide Monday night, smallest dose 100mg. It didn’t seem so bad. Tuesday I started feeling really dizzy, I felt like Alice in Wonderland. I felt big and small and everything around me was moving and vibrant and it made me nauseated. Tuesday and Wednesday felt the beginnings of seizures but it’s like they got stuck and my left side of my body ( that usually convulses) hurt, Today, Thursday, I’m insanely irritated and aggravated, can’t concentrate not feeling like myself at all. I can’t eat, I feel like a tweaker ready to chew off my own tongue or anyone who comes near me. I feel like I’m losing my mind. Is this normal?

Comments

Hiya. Sounds awful, you're

Hiya. Sounds awful, you're not alone, looks like loads of us suffer with feeling crazy on epilepsy meds. Might be worth asking to increase your dose more slowly than they recommend as you're obviously someone who is more sensitive to the medication than others. I think I made the mistake of increasing lamictil too quickly and had to reduce it due to feeling exhausted, losing my memory and being very anxious. I'm still only on 75mg and hear you about being desperate not to take it. Although I hate lamictil I'm told it's one of the best ones for reducing side effects so you could ask them about that. Good luck to you 

La Gallina, please give this

La Gallina, please give this a read...       If your having continued issues with seizures or medication thats either not effective or has bad side effects, CBD might help you out allot. It’s been shown to heavily reduce seizures for most people. Its a derivative from the hemp plant (but has no psychoactive components and no t.h.c). People are using it with much success for epilepsy, Parkinson’s, ALS, Alzheimers, chronic pain, stress, and the list goes on and on.      You can find all sorts of information on a shadow site of google called “google scholar” if you type in ‘CBD and Epilepsy’ showing its efficacy for epilepsy and other neuropsychiatric disorders. It’s effective for animals, young children and adults and has no negative side effects unlike prescription meds.        I work with a company called Arenalife based out of Denver, CO that makes CBD based products and we’re trying to get it to people who need it and hopefully change some lives in the process.        The CBD we work with is 99.4-99.8% pure and has been helping people with a variety of issues, most notably epilepsy. I’m posting because I know how big of a difference it can make for people struggling with these disorders and through the work I’m doing I hope to provide some relief for those in need from what must be a constant and painful battle.       I recommend to do some research on a shadow site of google called google scholar so you can see for yourself the potential benefits it can provide. Simply type into the google scholar search bar ‘CBD and epilepsy’ to find some good research on the topic.       I hope this information finds the right people and provides alternative option to prescription pills for those struggling. This medicine can change lives. If you have any questions please email me at Kshroads@aol.com.  I can send you a link via email so you can see the different products we have and we can asses which one might be best for you or someone you know. I wish you the best, 

  • Kevin Shroads 

Thank you for the insight, I

Thank you for the insight, I didn’t know you could start with a smaller dose than 100mg. I’m hoping to follow up with the neurologist soon, but honestly feeling sad and disappointed in the medications and wondering if I could tolerate anything. It’s like trading one bad thing for another. 

Hang in there! It takes a

Hang in there! It takes a while to build up the medicine in a person's system then find the right dose. Sometimes the strange feelings could be related to seizure activity and/or to medicines. Talk to your doctor/nurse about how much to take and when to make changes. Let them know how things go. Do you keep a diary?  Keep track of how you feel in an online diary, such as diary.epilepsy.com or with paper/pen or just in your cellphone.. Whatever works best. 

Relax and stay with it.

Relax and stay with it. seizure meds are nothing like aspirin where once taken it goes away after a few hours. Side effects happen while your body is getting used to the medication. The dosage is set by the neurologist because he wants the therapeutic levels to be at a certain level in your body. That time period is generally 3-4 weeks. During that time period the side effects generally go away. The therapeutic levels are there as protection in case you in case you took your meds late of even forgot  a dose. What I did when we changed meds and that was happening to me I would find something to do. I would go find something that needed fixing. S I tore it apart and put it back together. It relived the tension and tarring thing apart got rid of the irritated feeling

I’m afraid it wasn’t

I’m afraid it wasn’t something I could redirect. I consider myself a mind over matter person, I meditated through my two home births and I sat through 12 hours of a huge tattoo back piece feeling great.But this felt like it wasn’t me in my mind and to get through the thoughts of wanting to die, I told myself I just had to get through today. I couldn’t image going through another day like that without killing my self. I’d rather live every day of my life with a seizure than feeling like that. At least I know what to expect and I have techniques that make it go as smoothly as possible. Of course the desire of having my life and independence back is so strong. At what cost? I’m wondering how many trails and errors? What if it was worse and I killed my self? I’m a naturally happy person, I was born smiling, but Mentally I’m still raw from the experience and I’m not sure when and if I will feel like I can try again. I’m thinking Diet, exercise, CBD, acupuncture, and even smoking pot sounds more appealing at this point.

YOU ARE NOT ALONE!.  I'm

YOU ARE NOT ALONE!.  I'm writing this from a hotel about 2 miles from my home because even while transitioning from Keppra to Tegretol, I am a miserable, heartless son of a bitch and I can't keep inflicting my constant state of anger and periodic rage on my family. I'm a 5.0. yo male with initial onset and diagnosis similar to yours less than a year ago. Alwaays been somewhat argumentative and short tempered but this is ridiculous. Have slowly severed ties or lost nearly all my friends. My mood has been getting progressively worse. After a particularly evil spell lasting several days or weeks and driving my wife to tears and hysterics, I finally woke up and realized that I need to separate myself from the people I love to stop emotionally abusing them while I ween Keppra and get it out of my system. Hopefully they'll forgive me by then.  Don't let it get this far. Speak to your Dr. about referral to a therapist. Knowing the reason/cause behind why you're acting this way isn't enough.  Intellect will not overcome emotion in the heat of the moment.

I've tried a total of fifteen

I've tried a total of fifteen different medications in my 51 years.  Many of these have left me more irritable.  The worst was Neurontin.  On it I had to isolate myself in my room since I often was so angry and aggressive I could kill my parents.  My doctor told me this was odd since Neurontin often leaves patients tired and relaxed.  I got off of it and was much more relaxed.The point to remember is that everybody reacts differently to medications.  Keep a written track of every medication you try as well as the effects they have on seizures.  I use a spreadsheet on my computer for this.  Ask your doctor about other medications.  And if your like me it seems any drug that brings control increases my anger/ aggression.  By keeping a good record of seizures and medications you are preparing yourself to be a candidate for alternative treatments.  

Thank you for sharing Michael

Thank you for sharing Michael, it can feel embarrassing to talk about how I was behaving. I was grateful that during the worst of it my kids were in school because I felt so aggravated and aggressive. I can’t have them exposed to that. So are you saying you now have found relief after 15 trials? 

Thank you for sharing Michael

Thank you for sharing Michael, it can feel embarrassing to talk about how I was behaving. I was grateful that during the worst of it my kids were in school because I felt so aggravated and aggressive. I can’t have them exposed to that. So are you saying you now have found relief after 15 trials? 

I appreciate you sharing your

I appreciate you sharing your story, that day I was feeling the worst of it ( I immediately stopped the pills) I was so angry I was cussing out my partner which is completely out of character for me. Luckily he knew this and understood it was the meds. But I honestly felt like I hated everyone. I wish you luck with getting off your meds and I truly hope you find something that works for you and that your family and friends can have understanding so you can mend your bonds.

No, I have not found relief

No, I have not found relief after fifteen medications.   I've had brain surgery to remove tissue from the right temporal lobe and I had VNS therapy for five years but nothing has comfortably brought seizures under control.  My seizures are usually just simple partials.  I have a complex partial once every three months or so and I do not have the generalized (Grand Mal) seizures like I did as a teen.  My frequency isn't too high so I accept the seizures.  Thirty-five years ago I tried new medications (which were very few back then) with the hope of greater control.  Today when my doctor offers to prescribe something new I am very slow to try it.  As you know the discomfort and embarrassment the pills can cause isn't worth the increased control.  Today there are statistics that back up my experience. It is not worth it for me to try to gain complete control with medications.  I have "refractory epilepsy".  The next treatment I will try is RNS. 

Jessica:Zonisamide is a

Jessica:Zonisamide is a terrible epilepsy medication, take it from somebody who was on it.  Read about all of the side effects, which includes bleeding intestines.  I went through that and only learned by researching online that it was the Zonisamide causing it.  There are many epilepsy medications with far fewer such effects, such as Trileptal.  Keppra is also commonly prescribed, and I am on it with no issues, although some people that take it suffer some emotional issues.  Topamax is also commonly prescribed, but it will seriously space you out in larger doses. I would talk to your doctor right away about the issues that you are having and switch to a different med.  And by the way, you have to go off of Zonisamide gradually.  Good luck!        

I went thru a rough patch

I went thru a rough patch while coming off of lamictal. My partner lived with me for 2 years and I discovered that he had a gf at work.... while I was in the hospital trying to get off the medicine! Talk about a nightmare!!!!  I got off it in February and kicked him out in March. I’ve had 4 sz off lamictal so now I just started this new med called aptiom 2 days ago. I hope it works!!!!

I went thru a rough patch

I went thru a rough patch while coming off of lamictal. My partner lived with me for 2 years and I discovered that he had a gf at work.... while I was in the hospital trying to get off the medicine! Talk about a nightmare!!!!  I got off it in February and kicked him out in March. I’ve had 4 sz off lamictal so now I just started this new med called aptiom 2 days ago. I hope it works!!!!

I could only tolerate 50 mg

I could only tolerate 50 mg of lamictal! That med is rough! 

I went thru a rough patch

I went thru a rough patch while coming off of lamictal. My partner lived with me for 2 years and I discovered that he had a gf at work.... while I was in the hospital trying to get off the medicine! Talk about a nightmare!!!!  I got off it in February and kicked him out in March. I’ve had 4 sz off lamictal so now I just started this new med called aptiom 2 days ago. I hope it works!!!!

I could only tolerate 50 mg

I could only tolerate 50 mg of lamictal! That med is rough! 

I started on 50 mg of

I started on 50 mg of lamictal! Ask your dr! 

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