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Any advice is seriously appreciated. Thanks
Wed, 05/08/2019 - 15:36Topic: Medication Issues
Hello, I've been taking Zonisamide 100mg (once a day), for the last few months and it has been preventing all grand mal seizures. However, I'm still getting Auras and recently id lose awareness again and have to remind myself of what I was doing prior. I also noticed that I feel more vulnerable/susceptible to a partial seizure when I wake up.
Getting to the point, one of my biggest triggers for the partial seizure is my own reflection, as well as human faces in general, and even some cartoon pictures. Each morning when I'm trying to get ready for work I can sense myself almost having a seizure and having to look away. Also, my ears have been ringing 24/7 and I'm finding myself extremely anxious and feeling generally ill. Side effects???
Could this be a tolerance issue? Should I add or change meds?
Thanks.
Hi evoiaho, Thank you for
Submitted by Anonymous on Thu, 2019-05-09 - 09:57
Hi evoiaho, Thank you for posting and sharing your experience. We encourage you to reach out to your neurologist or health care provider to discuss what you’re feeling and any potential triggers, side effects and seizure control and to discuss your increase in anxiety, https://www.epilepsy.com/learn/challenges-epilepsy/moods-and-behavior/mood-and-behavior-101/anxietyYou may want to consider with your health care provider having a device that can help track your seizures, by visiting https://www.dannydid.org/ , & by keeping a seizure diary https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary as another self-management tool. These tools may be helpful in identifying & tracking seizures, other symptoms, managing medications & other therapies, recognizing triggers and health events that may affect seizures and wellness, which you can share with your doctor, https://www.epilepsy.com/learn/managing-your-epilepsy, For more information regarding seizure medication and side effects, these recourses https://www.epilepsy.com/learn/treating-seizures-and-epilepsy , https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines may be helpful. It is common for those living with epilepsy to experiences feelings of anxiety and your overall well-being and emotional health is just as important, https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health , https://www.epilepsy.com/learn/managing-your-epilepsy. For additional services, support, and referrals contact our 24/7 national helpline by emailing us at contactus@efa.org and by calling,1-800-332-1000, https://www.epilepsy.com/living-epilepsy/247-helpline