Am I The Only One Who Gets The Creepy Crawlies

Hi HIGHLANDDRAGON,  Thanks so  much for posting. It’s important that you continue follow-up with your healthcare team to express your concerns and discuss any potential changes in side effects, seizure types, frequency, behaviors and symptoms, to determine what individual treatment is best for you.https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf  For more information regarding Topamax & side effects visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effects https://www.epilepsy.com/medications/topiramate You may want to consider with your doctor having a device, that can help track seizures, by visiting:  https://www.dannydid.org/https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf and by keeping a seizure diary:  https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary These tools may be helpful in identifying & tracking seizures, other symptoms, managing medication & other therapies, recognizing triggers and health events that may affect seizures and wellness, which you can share with your healthcare team. https://www.epilepsy.com/learn/managing-your-epilepsy  For additional questions, please contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org , where a trained information specialist can connect you to resources,  provide referrals and additional support. epilepsy.com/helpline Additionally, your local Epilepsy Foundation:https://www.epilepsy.com/affiliates can help you find resources, support groups, events, and programs in your community. 

I've tried 17 different medications for seizures but have not tried Topamax.  I also have never experienced the tingling under my skin like you describe.  But the name for the side effect you are probably experiencing is paresthesia.  And one site says, "Paresthesias may occur in as many as 12-14% of patients taking topiramate."  I'm sure you are not alone and you do not need to feel crazy as this is not a psychological problem.  Definitely tell your doctor about what you are experiencing.I hope things get better for you,Mike 

A common side effect of topamax is tingling in the body, most often the face. Normally if one ups their intake of potassium it will subside, after a while of taking the medication your body *should* become accustomed to the change. I had a big tingling sensation when o first started topamax, it did go away after a month. The heart rate may definitely be worth mentioning to you neurologist in case you are not getting along with the medication.