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Actually good assistance to help pay for medication?
Tue, 01/28/2020 - 13:28Topic: Medication Issues
To start I was diagnosed with medial temporal lobe epilepsy (complex partial seizures) at age 20 in 2015. At that point I was granted Medicare/Medicaid and had prescription coverage. Eventually it was determined my case was medication resistant and we had to start looking into surgery options. However, fast forward to 3 weeks ago I had a right hippocampal laser ablation and haven't a seizure since. It's been years since I've gone that long without one, so that is GREAT. However, I am required to stay on my same medication for 6 months to a year. On top of the facts that I am getting married, moving, and will probably be able to start working again, and if I stay seizure free they may determine I am no longer "disabled" and I will lose ALL my benefits. My medication (Fycompa/Perampanel 12mg) without coverage is $1132 for ONE months worth (partially because there is currently no legit generic version). Looking at discount sites the cheapest I can find it is $968. My fiancé is in college doing a work study job and is making like $300 a month. Any kind of job I'll be able to get is not guaranteed to be highly lucrative. Does anyone know of any good assistance programs/discount cards/etc. that can help make it so I don't end up reaching a horrible scenario of not being able to afford my seizure medication? I've searched all over but have only made myself more stressed. Thanks for any help
Hi, Thank you for posting, it
Submitted by Anonymous on Wed, 2020-01-29 - 09:18
Hi, Thank you for posting, it sounds like you’re dealing with a lot right now. We are happy to hear that you haven’t had a seizure since your surgery, that’s fantastic news! We understand your concerns about losing your benefits and cost of medications. This can be a very frustrating and expensive process, but we do have resources available that can help. For more information regarding our patient assistance programs (to help with medication costs), please visit, https://www.epilepsy.com/living-epilepsy/247-helpline/patient-assistance Additionally, you may always contact our Epilepsy and Seizures 24/7 Helpline: epilepsy.com/helplinewhere trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org.Or contact local Epilepsy Foundation, here: https://www.epilepsy.com/affiliates who can provide you with additional assistance as well.