Community Forum

Topic: Medication Issues

Created By: Nrwilson | 09/2019 | 1 Comment

So, yeah. I've never really talked to anyone who really knew anything about epilepsy besides my neurologist. I recently was referred to a specialist and he wants to take me off all my...

Created By: Billc | 09/2019 | 2 Comments

I remember "coming to" in the ambulance. This happened in May and the 31st of last month. The Dr. put me on Vimpat as the neurologist I am going to see has suggested. Mainly because of...

Created By: karenkendall | 09/2019 | 3 Comments

I’m a 23 year old female who has began to have repetitive temporal lobe partial seizures 3 days ago. I was seizure free for 5 1/2 years. I had Petitmal childhood epilepsy. Last night I was given a...

Created By: Wayneor92 | 09/2019 | 0 Comments

Hi all,
Im a 26 year old male that has had Epilepsy since February 2016. I had my first seizure in work while a manager of burger king so as you can imagine this was in a kitchen with...

Created By: Pizzahead | 09/2019 | 1 Comment

I’ve been on Depakote for over 8 years and I missed taking my dosage for about 5 days due to my prescription running out. It’s been extremely hard to sleep during the nights and my mood has been...

Created By: Sdredden1 | 09/2019 | 4 Comments

Good morning, hope everyone is doing good this morning. So I have temporal lobe epilepsy with complex partial seizures and have had it for 6 years but was only recently diagnosed and only recently...

Created By: dashgreg | 09/2019 | 5 Comments

Newbie and recently diagnosed. Trying Vimpat and so far so good. Hoping others haven't experienced too harsh side effects. Thoughts?I am very averse to taking any medications, but I trust my...

Created By: Dancing Queen_5d2f880fa733e | 09/2019 | 4 Comments

Hello everyone I was wondering if anyone has experienced this before. I recently gained seizure control with lamotrigine (lamictal), but I still feel horrible. It's almost as bad as having...

Created By: Blaze | 09/2019 | 1 Comment

I've been taking 1000 mg 2x daily for 10 years maybe? I had surgery 3 years ago and haven't had a seizure since. I was supposed to see my neurologist back in May but I have to wait...

Created By: Dm94 | 09/2019 | 2 Comments

Does anyone here take aptiom for seizures? I have a family member that has been on it for about 6 or so months now and have been told he was being sexually in appropriate. Has anyone dealt with...

Created By: Eryn_25 | 09/2019 | 1 Comment

I’m honestly extremely frustrated with how I as well as many friends with unexplained seizures have been treated by doctors. I know there are good doctors out there but what happened to the...

Created By: RKFaith7 | 08/2019 | 0 Comments

Recently after 1yr and 3 months of being seizure free my husabnd had a grandmal seizure while in the car. About two days after the seizure we came to the conclusion that it was due to him...

Created By: IrisB | 08/2019 | 1 Comment

Hello to all!
I'm having some questions and I think it would be really helpful if you could share your experiences.
Approximately 3 yrs ago (when I was 30 yrs old) after having...

Created By: xemms04x | 08/2019 | 2 Comments

Hi,
Looking for advice.
In may 2018, I took an estrogen based contraceptive pill and had multiple seizures for the first time ever. Every menstrual cycle after that I had at least one...

Created By: epilepsymomky | 08/2019 | 2 Comments

My daughter's (age 15) neurologist wants to start her on Fycompa, in addition to her current epilepsy meds. I'm wondering if anyone has any experience with Fycompa? Specifically, the...

Created By: HIGHLANDDRAGON | 08/2019 | 3 Comments

I take 200 mg of Topamax 3 times a day some days it's hard to function because after I take my Topamax I get the feeling of something crawling around under my skin and my heart rate jumps. Am...

Created By: ephyk | 08/2019 | 1 Comment

I've been taking 150 mg 2x daily for ... 7 years, maybe 8? I had surgery over 3 years ago, and haven't had a seizure since :D

So I'm hoping I can wean off the lamictal and...

Created By: abbygee | 07/2019 | 1 Comment

I have JME and started getting amenorrhea when I dropped my birth control pill shortly after I started my Valproic acid. I went back on, but was diagnosed with polycystic ovaries, cystic acne, etc...

Created By: kvicic | 07/2019 | 1 Comment

Hello,

I have problems with Epistatus pf Medazolan which I take at epilepsy seazure.
I have seazures at night after stresfull days. As my wife said Epistatus helps and stop seazure (...

Created By: egallus83 | 07/2019 | 2 Comments

Had epilepsy since I was 10, and switched med from Depakote to Lamictal after my 2nd pregnancy, my daughter is now 15 months. Well over the time I’ve had quite a few seizures. I work full time and...

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