2018 Epilepsy Pipeline Conference

Watch Community Day of the 2018 Edition of the Epilepsy Foundation Conference, Live from San Francisco on Saturday, February 24

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Community Forum

Topic: Medication Issues

Created By: samyg15 | 02/2018 | 10 Comments

I recently came across a blog online that spoke about this natural cure to epilepsy. They mention a 7 month treatment with a money back guarantee if not cured. it had me thinking, for the price of...

Created By: erin_gray1 | 02/2018 | 2 Comments

My daughter has absence seizures as well as grand mal (TC) seizures. She is on max doses of Zorontin, Keppra and Lamictal. We still can’t go more than about 2 months without a seizure. I’m so...

Created By: oahl | 02/2018 | 0 Comments

Hello all :) I'm 18 years old and I was diagnosed with epilepsy about a year and a half ago and have had seven tonic-clonic seizures since then. My neurologist first started me on Keppra, but...

Created By: bka1212 | 02/2018 | 1 Comment

I have been on Onfi/Clobazam for nearly 10 years and its one of my 3 medications that does the trick in keeping me nearly sizure free. They just cut the assistance program for 2018. Medicare will...

Created By: Anthgreene | 02/2018 | 1 Comment

I have never been on Keppra before and my doctor prescribed me:

Week 1: 500 mg twice a day (total 1000 mg a day)
Week 2: 1000 mg twice a day (total 2000 mg a day).

All the...

Created By: Erinking1129 | 02/2018 | 1 Comment

Is anyone else breastfeeding while on seizure meds? I’m on lamotrigine 50mg which is a low dose, but it’s been controlling my seizures. The issue is I’m also having to be on a medication for the...

Created By: Horseygirl | 02/2018 | 1 Comment

I had brain surgery to clip a giant MCA aneurysm in june2015, during which I had more than one ischemic event. I went to intensive rehab to help my left side that was affects by the stroke. The...

Created By: Horseygirl | 02/2018 | 0 Comments

I had brain surgery to clip a giant MCA aneurysm in june2015, during which I had more than one ischemic event. I went to intensive rehab to help my left side that was affects by the stroke. The...

Created By: Tamila | 02/2018 | 1 Comment

Hello all. I recently went to get my medicine I am on topamax and Lamictal both brand name. They said the topamax is on back order they had to give me generic. I have been taking it for a week and...

Created By: KarynR | 02/2018 | 5 Comments

Hi, my 20 year old daughter has been on 3,000 mg of levetiracetam for the past 3 months (up'd from 2,500 due to breakthrough seizures). Our doctor recommended Lamotrigine, although I've...

Created By: Anthgreene | 02/2018 | 10 Comments

I have been on Lamictal for 3 weeks and my doctor just added Keppra.
I have heard that Keppra has mood swing and aggressive behavior as side effects.
Does someone know if the...

Created By: Nirrtix | 02/2018 | 27 Comments

Seriously though... This is killing me. I FINALLY got the federal government to help me pay for my medication... it is a whopping 25% on $3700! I am saving slightly more than the amount of hours I...

Created By: Mm2one | 02/2018 | 2 Comments

Hello, I am on here asking to hear from other people who are on keppra. I have been on keppra for about 8 or 9 years. I am on 750ml x 2 per day.

When I first went on keppra I think I did...

Created By: dots_5a739d35a68dd | 02/2018 | 1 Comment

I recently had a seizure after September of 2015. Unfortunately, that came to an end as of last night when I was sleeping around 4-6pm my father heard the seizure.

I blanked out, and...

Created By: vidyasagar | 02/2018 | 0 Comments

My daughter in law is suffering from severe anemia due to RBC Production Stop
She is suffering from seizures from 3 years old. Now she is 10 years old. she is consuming tablets such as...

Created By: Bubbles7795 | 01/2018 | 1 Comment

Hi, I’ve had epilepsy since I was 9 years old, I’m now 22, I’ve been on topiramate for most of this time and it is really good at controlling tonic clonic seizures. The past few years i have had...

Created By: Petemcn78 | 01/2018 | 1 Comment

My name is Peter McNeil and my story is a long one. The basics are as follows: Diagnosis via CT scan w/o contrast: Right Frontal Focal Hemorrrage measuring 7x5mm, suspect hemorrhagic contusion....

Created By: Anthgreene | 01/2018 | 3 Comments

Hi everyone,

Can someone please recommend a good adult neurologist in Orange County/Los Angeles/Inland Empire (Southern California)? Preferebly if he/she is familiar with autism. Thank you...

Created By: Anthgreene | 01/2018 | 4 Comments

I have never been on any medications and my doctor prescribed for the first time 25 mg Lamictal (generic) to be taken twice a day for 2 weeks (so total 50 mg a day) than it will be increased by 50...

Created By: Anthgreene | 01/2018 | 1 Comment

I have never been on any seizure medications before. My doctor prescribed Lamictal (generic) 25 mg that I need to take as follow:
Week 1: Lamictal 25 mg twice a day (total 50 mg a day)...

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