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Vitamins, Supplements that help control seizures. 5 HTP and vitamin E

Just looking for people that may have tried 5 HTP and vitamin E in help controlling there seizures. My 10 year old son is taking coromega fish oil, vitamin b complex, magnesium / zink along with his keppra. Just wondering if you had success with anything. My son just had two break through seizures after being seizure free for nine months. I have read a lot about the vitamin E and 5 HTP doing a good job in helping control or completely controlling seizures.

curtis.wybourn@qbeamericas.com

 

Comments

Re: Vitamins, Supplements that help control seizures. 5 HTP and

Glad to hear that your son is doing better. There is limited research on how helpful vitamins are, especially if a person is not low in certain vitamins. Also, since many vitamins are given together, it's hard to tease out if there's a special effect from one or more vitamins. There is some interesting information on the role of vitamins however.  Here is a link to nutritional information that may give some interesting tidbits, but this field is constantly changing.

 http://www.epilepsy.com/epilepsy/provoke_nutrition

People who are interested in trying vitamins should consult their doctor treating the epilepsy as well as the primary care doctor to see if the person has any conditions making them prone to low levels, and then if giving more will help. Taking extra of some vitamins, if the body isn't low in them is no good as the body just gets rid of extra amounts it doesn't need.  

Have a good day and thanks for sharing your experience 

Epi_help,
Resource Specialist

Re: Vitamins, Supplements that help control seizures. 5 HTP and

Here is my story with some interesting links:

http://brain.hastypastry.net/forums/showthread.php?t=36549

In over 38 years of having epilepsy I have never used any Antiepileptic Drugs or special diets to control my seizures, only B vitamins (mainly B6).  Please see URL above.

 **DO NOT ALTER ANY MEDICATION WITHOUT YOUR DOCTOR'S CONSENT**

Vitamins can interfere with other medication(s):

A high dose of vitamin B6 may cause Peripheral Neuropathy.

Regards

andrew

Re: Vitamins, Supplements that help control seizures. 5 HTP and

Phylis Feiner Johnson

Vitamins The reasearch I did reported that: although vitamins are necessary for good health, large doses of vitamins do not improve the symptoms of epilepsy and may even be harmful. You should get most of your vitamins from food by eating a balanced diet. If necessary, vitamin supplements such as folic acid can help deal with vitamin loss caused by medication. People with epilepsy taking seizure medications do appear to have an increased need for calcium and vitamin D to help keep their bones healthy.  

Vitamin B6 - Vitamin B6 is a valuable treatment for curing epilepsy fast and effectively. This vitamin is involved in critical functions of the nervous system. Some of the food sources rich in vitamin B6 are - rice, milk, brewer's yeast, cereals, legumes, green leafy vegetables, carrots, and peanuts. Fruits like apples, figs and grapes (especially grape juice) are also beneficial. If taken in supplement form, vitamin B6 should be taken in therapeutic dose of 100-150 mg daily, along with other B complex vitamins.

Melatonin - Studies are basically inconclusive: one study of epileptic patients showed that melatonin may reduce the incidence of seizures in children, while another study found that melatonin increased the risk of seizures. At this time, it is believed that melatonin does not significantly help prevent seizures.

Vitamin E – When Vitamin E was added to standard drug therapy in patients with intractable epilepsy, the frequency of seizures was reduced and EEG readings improved significantly. Even in children with complex partial epilepsy, there was a marked improvement.  The reason was attributed to reduced Vitamin E levels caused by anticonvulsant drugs.  It has been said  that Vitamin E deficiency can worsen seizure activity. And so the reason Vitamin E may be effective in reducing seizure frequency is because it helps to compensate for a drug-induced vitamin deficiency.

NEVER DISCONTINUE YOUR MEDS AND ALWAYS SEEK YOUR DOCTOR’S ADVICE BEFORE STARTING ON ANY VITAMIN REGIMEN.

http://findarticles.com/p/articles/mi_m0887/is_n1_v12/ai_13448532/

http://www.online-health-care.com/home-remedies/epilepsy.htm

http://www.easyhomeremedy.com/home_remedy_for_Epilepsy.html  

http://www.webmd.com/epilepsy/guide/are-there-alternative-treatments

Re: Vitamins, Supplements that help control seizures.

My son's neurologist has also recommended my son take b6 with his Keppra and also Vitamin D.  Does anyone have any particular brands of b6 (100 mg) that they prefer?

Re: Vitamins, Supplements that help control seizures.

We get one from the herb store that is called Floradix. It has iron and four B vitamins, 1,2,6,and12. It seems to help with some of the side effects of meds.

Re: Vitamins, Supplements that help control seizures.

I am sorry to hear your son had two break through seizures.  Were there any triggers that you could pinpoint, like lack of sleep, stress from school, not eating right, being dehydrated?  I know even if I am doing all the right things, like taking my meds, vitamins, if I get stressed, do not get sleep, and do not eat,  I can have a seizure.  I seem to have all my seizure triggers figured out so far, and I have been seizure free for over two years.

However, I am currently on Topamax transitioning to Keppra, due to Topamax's yucky side effects (its just not working while I'm in nursing school).  And to compensate, I currently take a mega B-complex with added vit. C, extra biotin, and Omega's 3,6, & 9 that I get from flax seed oil and fish oil supplements, and I make sure I eat a lot of food that has tons and tons of calcium in it, this seems to up my energy levels a little.   I have noticed no mood side effects from the keppra. However, sometimes I do get extremely tired and want to sleep all the time, I am hoping that wears off once the transition is complete, which I am half way there and no break through seizures yet, knock on wood...

Anyways, sorry for the life story, before I did my med switch and was just taking only Topamax, I had asked my neuro about taking 5-HTP because I was having problems with insomnia and anxiety and he advised against it because there can be reactions with 5-HTP and certain meds.  There is a reaction called seritonin sensitivity that can be fatal (your brain just overloads on seritonin and cannot process it all), its mainly with SSRI's that this occurs, but it can occur with AED's that are also used to treat bi-polar and migraines as well (which I think topamax does).  As far as 5-HTP having a reaction with Keppra, check with your doc if you are planning on taking them together, better to be safe... Unfortunately I can't give you any info on the vit. E, not really sure about that one, sorry!

you can read about 5-HTP on wikipedia, there's a lot of info...http://en.wikipedia.org/wiki/5-Hydroxytryptophan

I hope this helps and I hope your son starts feeling better.  

Take Care!

 

Does anyone can give me an

Does anyone can give me an idea how much vitamin E,D,and B is good to take with Keppra. 

Hi there I'm a 31 yr old with

Hi there I'm a 31 yr old with what used to be nocturnal only full convulsions but lately I've been experiencing a lot of seizure activity it's could ingredients my thoughts and making it hard to do anything focus stay awake I think they're complex partials? Is it worth trying the omega 3? Is there a specific dose? I bought the nutrasea brand it also has vitamin D. Epa +dha 750mg , 500mg if not omega 3 is there something  else I can try meds don't work for me and I'm about to go back to school. I should mention I don't don't eat healthy and am probably lacking in a lot of vitamins. Please if anyone has any advice I'm desperate. My names Katie.  

Hi there I'm a 31 yr old with

Hi there I'm a 31 yr old with what used to be nocturnal only full convulsions but lately I've been experiencing a lot of seizure activity it's could ingredients my thoughts and making it hard to do anything focus stay awake I think they're complex partials? Is it worth trying the omega 3? Is there a specific dose? I bought the nutrasea brand it also has vitamin D. Epa +dha 750mg , 500mg if not omega 3 is there something  else I can try meds don't work for me and I'm about to go back to school. I should mention I don't don't eat healthy and am probably lacking in a lot of vitamins. Please if anyone has any advice I'm desperate. My names Katie.  

Hi there I'm a 31 yr old with

Hi there I'm a 31 yr old with what used to be nocturnal only full convulsions but lately I've been experiencing a lot of seizure activity it's could ingredients my thoughts and making it hard to do anything focus stay awake I think they're complex partials? Is it worth trying the omega 3? Is there a specific dose? I bought the nutrasea brand it also has vitamin D. Epa +dha 750mg , 500mg if not omega 3 is there something  else I can try meds don't work for me and I'm about to go back to school. I should mention I don't don't eat healthy and am probably lacking in a lot of vitamins. Please if anyone has any advice I'm desperate, thank you I'm Katie ☺

Having entered the hospital

Having entered the hospital at age 3 with pneumonia, I ended up in the hospital for 9 months, only to find out many years later why? I was FORCED to be self taught as a teenager about RIGHTS VS PRIVILEGES! Forcing me to have to file a Pro Se lawsuit on my 18th birthday, against the hospital, for their refusal to supply me with my ORIGINAL MEDICAL RECORDS FROM AGE 3 TO MY 18TH BIRTHDAY??? Resulting with the lead attorney calling me 48 hours after filing the lawsuit, and informing me all my medical records will be ready to pick up within the following 24 hours if I was willing to drop the lawsuit??? Since receiving the records, I pursued my own private medical research for two years, to properly find the mal-practice that took place against me at age 3, never disclosed, and the ORGANIC PRODUCT used to REVERSE the medical mal-practice damage done to my body, resulting in epilepsy. I spent YEARS seeking a SPECIALIST who would be willing to CHALLENGE me to my medical findings through research, which no AMERICAN BORN AND EDUCATED PHYSICIAN would ever agree too. At age 31, I located a GERMAN born and educated specialist, who challenged me to a years worth of research, which I agreed too. 6 months into the research, when two mri's of 3 year old's brains where hanging in the room, the physician and I were in and was about to speak about my mri, and pointed to the right temporal region, when finishing the first child's undamaged brain, in which was started to be spoke of in the left rear of the brain, I stopped the physician from speaking, asked him to go to the safe, where I had requested my SEALED FINDINGS TO BE LOCKED, THE FIRST DAY I MET THE PHYSICIAN, UNTIL THE DAY I THOUGHT I WOULD BE TOLD, WHAT I HAD FOUND YEARS BEFORE, THAT NO OTHER PHYSICIAN WAS EVER WILLING TO VALIDATE.Upon completing reading my typed findings, the physician looked up at me and said, " WHY DID I NOT BECOME A PHYSICIAN?" My response: " If I could not have done my own brain surgery years ago, I would have, but I have yet to figure out how to do that!" He laughed asked me to come back in two weeks, which I agreed. Two weeks later at the appointment, I was quite surprised! The Physician asked if I would allow the documentation of my medical findings for any and all to see, anywhere in the world, which I agreed too, as long as my complete name was not published, which he agreed too. He then asked, "How would I like to have "FREE BRAIN SURGERY!"" I agreex, as long as I was able to schedule it in advance and I would have to get back to him on the date within a months time, which he agreed too. I had a legal document drafted releasing the hospital and staff, of any and all liability 24 hours after the completed surgery, and that I would release myself from the hospital 24 hours after brain surgery and complete my own mental and physical rehabilitation. The Physician was COMPLETELY SHOCKED and asked why? My response was, " if I stayed in the hospital after surgery, how many hours per day would I receive pertaining to the needed MENTAL and PHYSICAL REHABILITATION PER DAY? THE RESPONSE, 2 TO 3 HOURS PER DAY? My response was, "HOW MANY HOURS ARE THERE IN A DAY? He then asked what my plans for rehabilitation was going to be. I informed him I scheduled to attend 3 college classes two weeks after brain surgery, and during the two weeks before college classes, would prepare for classes through studying daily, and go to a health club to start physical rehabilitation so that I would be able to follow through with attending my college classes, which I did.So, the moral of the story, " BE YOUR OWN BEST DOCTOR!!!Ron

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