Community Forum

Safety during sleep for a child?

My 6yo daughter was recently diagnosed with Benign Rolandic Epilepsy (BRE). She has had two generalized tonic-clonic seizures, both right after she fell asleep at night. The doctor also told us that seizures for BRE most likely occur at night. We have been letting her sleep in our bed since the onset, which is not sustainable longer term, and it will interfere with her normal development, particularly on independence. Putting her back to her own room, however, doesn't feel safe to me.

Just wondering how everyone is coping with nocturnal seizures? What are the best practices? What are the specific risks of a seizure and how to prevent/manage them?

From what I observed the last couple times, the tonic-clonic part, although frightening, seems manageable. I could make sure to clear sharp and hard objects around her bed, and install a motion sensor under the mattress to alert me. What's more concerning is her drooling part - large amount of saliva came out of her mouth, which I'm afraid could drown her without me by her side. However, such facial distortion would likely not trigger an alarm, so I would not be able to help in time... Anything I can do to mitigate this?

New to epilepsy and still learning to cope with this new situation... Any advice would be greatly appreciated!

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