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Community Forum

Topic: Living With Epilepsy - Youth

Created By: Lexi_5a5670494475d | 06/2020 | 0 Comments

I am a 17-year-old female living with epilepsy. Like any normal day, I was feeling good. Little did I know my life was about to change... I spent January 1st at my boyfriend's house and my...

Created By: baby.eggie | 05/2020 | 4 Comments

I was diagnosed with epilepsy when I was 12 , after I had a grand mal seizure in the middle of the street after school. [October 17, 2019] Now it is quarantine, and three days ago , I had another...

Created By: Parishma Jangam | 05/2020 | 1 Comment

Seuizer Triggered Age: 2 years 4 months started with finger flicking and eye ball focused on one side.
After a month 1 grand mal onset happened brought the baby to conscious after...

Created By: AynaRang | 04/2020 | 1 Comment

My daughter is 3 years old and had her first seizure when she was 9 months old which was diagnosed as a febrile convulsion. After that her seizures continued as febrile and afebrile seizures in...

Created By: Bree0214 | 04/2020 | 3 Comments

Hi everyone. My 9 year old was diagnosed with epilepsy last summer and it has been a horrible roller coaster ride. Everytime the meds stabilize my child the dr ups the dosage then it starts all...

Created By: Cara_Pressman | 04/2020 | 3 Comments

At a young age, so young I remember the experiences in daycares, I would have these so-called "headaches" at random times every few weeks. They continued this way for a while and I told...

Created By: Dave101 | 02/2020 | 2 Comments

Hello, This is my first time on the forums and looking for some advice. My son is 8 years old and has had mild seizures in the early morning while sleeping. They are not so often, maybe every 2...

Created By: Knoxdavidson | 02/2020 | 1 Comment

My son was just diagnosed with Generalized Tonic Clonic Seizures after having 3 a few weeks ago. He is now on Keppra and adding in Lamictal slowly in hopes to move to that drug. He has been doing...

Created By: ttwagneriii | 01/2020 | 1 Comment

Our 12 year old son had an atonic seizure about 6 weeks ago. This was his first and only (so far). It occurred while he was listening to Holosync meditation, which uses binaural beats. At the...

Created By: Luke Robel | 01/2020 | 3 Comments

Hi I’m new so I was sitting at my kitchen table eating lunch and I started to feel funny so I laid on the ground but the feeling never went away the feeling was that I felt like I was going to...

Created By: Vetdad | 01/2020 | 2 Comments

Hello everyone. Im hoping that this community can give me some hope as right now I am terrified. My 15 year old daughter started having seizures 1 month ago. She had 2 generalized tonic clonic...

Created By: Big Jim_5e20a41d1df20 | 01/2020 | 2 Comments

Dear All,

I hope you can help with some advice. My daughter who is 19 has had arm jolts for many years which are clearly triggered by tiredness. These were checked by 3 day hospital...

Created By: robertreny | 01/2020 | 0 Comments

(FDA) has announced the approval of Valtoco (diazepam nasal spray) for the treatment of seizure clusters in patients with a history of epilepsy aged 6 years and above.
Source- https://www....

Created By: Annabel_5e0f435753a7f | 01/2020 | 3 Comments

I'm a 15 year old girl that has epilepsy... obviously. Right now it feels like my world is crashing down around me. Advice to get myself out of this dark hole?

Created By: HollyEmma | 12/2019 | 1 Comment

My baby was born having seizures, she was put on many different drugs at the beginning to get them under control, she had been taken off of all of them now apart from keprra, she is having a 0....

Created By: MateoAnthony | 12/2019 | 5 Comments

Are there anything that you can’t do that normal people can (watch certain tv shows, play video games)?

Have you ever had a seizure because of a TV show/video game?

What are you...

Created By: Tomuchdom | 12/2019 | 2 Comments

To so many out there hiding in the dark because you are to scared to be known as different, to those struggling in it finding a job because they see us liabilities but they won't say it but...

Created By: katie.elson | 09/2019 | 2 Comments

I was diagnosed with epilepsy on the1st September 2009, and I have been on many drugs, including epilim, Keppra, zonisamide, perampanel and many more. I was wondering what tablets work best for...

Created By: Natelee_c | 08/2019 | 2 Comments

My name is Nate and I'm a 19 year old male. Since about the age of 18 months old I have been having episode like instances where my adopted parents had thought were grand mal seizures. I...

new
Created By: mattyboy2909 | 08/2019 | 1 Comment

hey how are you im matthew i suffer from absences jerks and tonic clonics im from the uk is anyone around or online i can talk too im 20

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