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What does your aura feel like
Sun, 01/19/2020 - 16:01Just curious what everyone else feels. I've had Petit mal since I was 5, I'm 35 now, had surgery 11 years ago but auras returned. For me its a sensation of electricity running from the fingertips to the brain. Picture touching a block of ice with your finger and the frozen sensation travels through the body till it hits the brain, in this time you're preoccupied with trying to out-think it so nothing happens while also ensuring no one around realises whats happening. Then on completion something you thought was a good idea before hand no longer seems so and you dont do it i.e. i had one yesterday, beforehand I was going to get a coffee, then the aura happens then it seems like the worst idea i ever had to have a coffee. Sounds strange, but thats what happens
Comments
I've been trying to hide the
Submitted by birdman on Sun, 2020-01-19 - 20:49
I've been trying to hide the auras all my life as well. Sounds like yours would be much more difficult to conceal. I have the sour taste and smell with my aura. If it continues for longer than five seconds I also notice some fear creep in. I've done pretty good at hiding my auras until I got the RNS implant. Now my doctor knows even the most subtle ones. I used to have the deja vu as a child.
My newest epilepsy specialist
Submitted by Patriotrehab on Wed, 2020-01-22 - 18:21
My newest epilepsy specialist has recently reviewed all of my medical records and EEGs that I’ve had over nearly 20 years and I finally have an understanding of my epilepsy that was caused by an acquired brain injury following medical negligence...most of my seizures many people would call “auras”. Most of my auras are probably called that, but they never precipitate loss of awareness or tonic clonic seizures even though I’ve had those too. My official diagnosis is multi focal epilepsy because apparently I have seizures coming independently from both temporal and parietal lobes. So, when I have what you call auras a.k.a. Focal onset seizures...they range from auditory sounds that either sound like the hustle and bustle of a city or in the alternative it sounds like a car radio that is trying to change stations, but gets stuck and simultaneously syncs two familiar songs at the same time (I hear the vocals of one song and the tune of another). I’ve also have dejavu, odd smells, and my right arm feeling numb and getting increasingly more painful (trying to shake it to ‘wake it up’ doesn’t help). A few times I even had a sensation of falling combined with a side to side earthquake like movement and a several other times I even thought the same facial feature of a person was growing before my eyes.
I think mine feel quite
Submitted by Meggo on Sun, 2020-01-19 - 16:37
I think mine feel quite different to yours. Mine are dominated by an intense feeling of dejavu, and the feeling that I am not really here, or like I am in a dream, or like I am a character in a book/film. I also often feel an unprovoked sense of danger or fright, or sometimes feel a sense that someone is watching me (even when I am completely alone). Weird... but im so used to getting them they kinda just feel normal now