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Triggers

Mon, 06/04/2018 - 14:45
Hey I'm Kat I've had epilepsy since I was 20, I am now 26. I went 4 years with no episodes and was able to work full time. Last Nov 2017 I started having seizures again more then before. I've been trying to track and figure out my triggers...I've only came up with a few but it's so frustrating cause once I think I know and avoid them something new comes along and triggers me. Some of my triggers are the heat, stress, and too many people. But how do you avoid those when you still gotta live a "normal" working full time lifestyle just to support your family. What's some triggers that you have and how do you avoid them?

Comments

Not sure if it's a trigger

Submitted by Drinkie on Sun, 2018-06-10 - 13:22
Not sure if it's a trigger but I've found a pattern of manic behavior (I was fertilizing the lawn at 9:00pm). Then the next day I had extrem anger. Then I had the seizure. I guess it's more of a warning to slow down. "Stuff" will get done. I'm questioning how slow to go

Hey Kat, I'm christina! My

Submitted by christinaeum on Tue, 2018-06-12 - 00:37
Hey Kat, I'm christina! My triggers are also stress, heat, claustrophobia/crowds, etc - sounds very similar to yours! I'm 26 as well, started having seizures when I was 19. I am grateful that I found a workplace that is understanding of my specific struggles and I communicate with them what I need in those moments. It helps me a lot to get up and take a really quick walk down the hall, focusing on my breath to cool down and to get my anxiety down from that moment. I feel a sudden spike in my temperature when I am getting closer to a seizure, but they say slow controlled breathing can bring your whole body temp down, so I concentrate on that and that I am not clenching my muscles too much. Another thing that might be just something that helps me specifically - but i'll squeeze something between my hands or squeeze my hands together so that my brain and focus my attention/nerves on those stimuli as opposed to the aura or tingling on my face. Hope any of this helps! 

(Just replying so it'll have

Submitted by christinaeum on Tue, 2018-06-12 - 00:45
(Just replying so it'll have my name and not just 'anonymous') ahaha

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