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Stay at home mom and having seizures

Thu, 04/11/2019 - 09:27
Hello I was just curious how the stay at home moms deal with Epilepsy. I've had seizures since I was 5 months old. Before I had kids I had them multiple times a day etc. When I started having kids (we have 4 and 1 on the way) I hadn't had day seizures for a long time. So recently I was awoken to the FEELING I was was going to have a seizure (Sunday morning) I had the seizure but what scared me was I remembered it. Yesterday morning I felt it coming on and had another (while my husband was home) now I'm concerned how you women or men handle seizures when your home alone (maybe with children) my older kids go to school but I have 4 yr old. The seizure that I had made me feel really tingly and so fearful. Any suggestions would be helpful.

Comments

This might sound like an odd

Submitted by Jazz101 on Thu, 2019-04-11 - 20:21
This might sound like an odd question to ask but do you older kids know about your seizures and what they are like? By knowing I don't mean they just know you have seizures, but do they know much about Epilepsy? Sometimes what makes things difficult is when others are left to guess, meaning they can see something is off but they don't know much about what creates that scenario. I'm asking more about your older kids because you said your youngest is 4. Kids are unique. Sometimes, in designated areas, they listen more to their siblings than they do to parents. We were all once kids and we can recall how at times our interest in paying attention was more with our siblings and/or friends versus our parents. Anything in particular your older kids were taught about your diagnosis that made it easier for them to put things in perspective, meaning not being too overwhelmed about the fact that mom has Epilepsy and at times seizures may show up? My advice to you is to think about something your 4-year-old finds interesting and draw a parallel to it. We live in a technology age where kids are using devices that you might be to draw a parallel, showing how at times the device might not work as it should for a few minutes. You can then tell him/her about how the interference is temporary because as he/she can see, it works the way it's expected to work again. The fact is seizures is the result of neurological interference. It starts at the focal area and then the brain responds to that activity. And given the brain controls so many of our regular functions, well, those areas can also short out temporarily just as his/her phone or maybe video game can freeze at times. But, as he or she can see, that doesn't mean the game is over. No. It just sees a temporary freeze. Or you could also draw a parallel to how water flows. You can show him or her how other things can affect the direction in which it normally flows. Or you could also tell him about memory. That might come in handy, after all everybody knows what it's like to forget. But forgetting doesn't mean eventually you don't remember. Sometimes it's just temporary. I say this because seizures are temporary. They just raise real concerns with individuals who aren't familiar with what's happening. Have a conversation with your husband also. Maybe he can also draw a parallel to how his car works; how sometimes it doesn't start the first time because the engine often needs some tuning up. Once that happens, the car starts again. Then let your son/daughter know it will happen from time-to-time but eventually it works again. Let him/her know in your case it may take a few minutes but you are good to go again so no need to worry too much. Think about something your kid can relate to and draw a parallel. Also, speak with your neurologist about how to frame the parallel. After all, they know what your seizures are like. As a result they might also be able to help you construct the phrasing of your conversation with your 4-year-old.  Best Regards

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