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Seizures only when falling asleep
Thu, 05/23/2019 - 23:51Hi everyone. Thought I would reach out to the online community and share in the hopes that someone may have a cure or better alternative for me and my seizures and perhaps learn from me as well. In short, I have suffered seizures since I was 12 years old with any number of degree and type of seizures. From grand mal to tonic to abscence. Difference though is that I used to not get any unless I was stressed and exhausted with perhaps no seizure for 12 months. Over the years my seizures have changed and as well as their frequency and type. My problem now is that I only get them at night within an hour of falling asleep for no particular reason. Being very healthy and taking good care of myself, I don’t know where they come from. I can be well rested, relaxed, or tired, with of course stress always looming in the background in my life. I have them 1 once a week but only at night. That makes for a lot of seizures but I can normally control them to only at night. I would love to be seizure free for they drain me no matter if they are grand mal or tonic, the next day I am worn out and spent and I cannot live like this anymore. Lately, they seem to be absence or Focal Onset Impaired Awareness types—always with an aura or nausea as an early warning of an onset. Does anyone have a similar story and a remedy for this? Does CBD work as well as I have heard? Thank you very much for any help or advice you can offer me. Of course, this is the shorten version of it all. Thank you.
Comments
Hi Alwaysme, Thanks so much
Submitted by Anonymous on Fri, 2019-05-24 - 10:08
Hi Alwaysme, Thanks so much for sharing your story, it sounds like you've been through a lot. It’s important that you follow up with your healthcare team to discuss any changes in side effects, behaviors, symptoms, or seizure types, https://www.epilepsy.com/learn/types-seizures, and to determine what treatment is best for you. https://www.epilepsy.com/aimforzero/seizure-controlTo learn more about medical marijuana please visit, https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/other-treatment-approaches/medical-marijuana-and-epilepsy. For more information regarding seizure safety at night please visit, https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe/safety-while-sleeping Additionally, you may want to consider with your doctor having a device that can help track seizures, by visiting https://www.dannydid.org/ , and by keeping a seizure diary, https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary ,as another self-management tool. These tools may be helpful in identifying & tracking seizures, other symptoms, managing medication & other therapies, recognizing triggers and health events that may affect seizures and wellness, which you can share with your providers. https://www.epilepsy.com/learn/managing-your-epilepsySometimes it's helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other, by contacting your local Epilepsy Foundation at epilepsy.com/localsupport & www.epilepsy.com/affiliates , to find support groups, events, and programs in your community. Additionally our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org, www.epilepsy.com/helpline , can assist in connecting you to resources, provide referrals and additional support.
Hey I have been having
Submitted by MattMullins88 on Sun, 2019-05-26 - 13:45
Hey I have been having episodes daily as I'm falling asleep or right after I fall asleep as well. (I take my medication as directed and have spoke with my Doctor as well, He wanted to change my medication. But I'm comfortable with my medication I'm on now. (I can still function normally, & Don't have any crazy side effects) But I have found after dinner, If I do 10 drops of 1,000 MG on my tongue of "CBD oil" After dinner it's helping alot. It took about a week of doing it daily for the effects. (It has to get in your system) Hope this helps.
When do you take your
Submitted by birdman on Fri, 2019-05-24 - 09:08
When do you take your medications? Maybe you are more vulnerable at that period just before falling asleep. Maybe you need extra protection at that time period. Try taking your anti- seizure meds at a higher dose at supper time. If the medication does not allow you to split the dosage talk to your doctor who can prescribe the medication in smaller mg's so that you can divide the doses.