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Seizures caused by Tornwaldt's cyst??

Sun, 06/13/2010 - 18:48

My daughter began having Petit mal seizures when she was 12. After being placed on medication the seizures stopped and she went off her medicine at age 14. In August of 2009 on her first day of college she had a grand mal seizure in the shower before we left to move her into her dorm. She did not have another one and convinced me to cancel her appt with the neurologist. In March during finals week she had another one and then another on June 1. We had been waiting on her appt with the neurologist which isnt until June 23 but on June 1 I took her to the ER and they admitted her overnight. The neurologist on call told me her MRI was clear but there was a slight abnormality on her EEG. I called to copies of her records and when I received the MRI report it states that she has a 1.2 cm Tornwaldt's Cyst. I have tried to research this type of cyst but have found very little information about it because it is a very rare type of cyst. I am wondering if this could be the cause of her seizures. Has anyone else heard of this cyst? I am wondering why it was not mentioned to us at the hospital. We have definately determined that stress plays a big role in her seizures but the cyst has me concerned too.

Comments

Re: Seizures caused by Tornwaldt's cyst??

Submitted by phylisfjohnson on Mon, 2010-06-14 - 13:37

 

According to the American Rhinologic Organization: "Tornwaldt's cyst is a rare entity which may cause clinically significant symptoms.  The most common symptoms are headache, seizures, and dizziness. Although Tornwaldt's cyst is usually an incidental finding, this clinical diagnosis must be kept in mind, as endoscopic management can result in dramatic symptomatic relief in selected patients."   

 

According to the American Rhinologic Organization: "Tornwaldt's cyst is a rare entity which may cause clinically significant symptoms.  The most common symptoms are headache, seizures, and dizziness. Although Tornwaldt's cyst is usually an incidental finding, this clinical diagnosis must be kept in mind, as endoscopic management can result in dramatic symptomatic relief in selected patients."   

Re: Seizures caused by Tornwaldt's cyst??

Submitted by tamimorgan on Tue, 2010-06-15 - 18:24
Thank you so much for your post. I have been having trouble finding much information on Tornwaldt's cyst because it is so rare. I am hoping that this is what is causing my daughter's seizures since it can be removed and hopefully her life can return to normal.

Re: Seizures caused by Tornwaldt's cyst??

Submitted by phylisfjohnson on Tue, 2010-06-15 - 19:04

 

According to all the research I did (and I did an hour of sleuthing around), that seems to be the case.  I would list the links here, but then the post will be flagged as "spam" and it will never get to you.  :-(

Good luck and let me know the outcome.  On the face of it (no pun intended), it seems like a fairly simple procedure.    Phylis Feiner Johnson   www.epilepsytalk.com

 

 

According to all the research I did (and I did an hour of sleuthing around), that seems to be the case.  I would list the links here, but then the post will be flagged as "spam" and it will never get to you.  :-(

Good luck and let me know the outcome.  On the face of it (no pun intended), it seems like a fairly simple procedure.    Phylis Feiner Johnson   www.epilepsytalk.com

 

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