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Seizure relapse/ New seizure onset?
Sat, 01/18/2020 - 21:14Hi everyone!
I was diagnosed with epilepsy at 7 and became seizure free at around 13. I had absence seizure only and never really had any other type. Im currently 22 and recently started getting headaches, this weird fuzzy feeling in my brain, tingling/numn\bness in my face and limbs, and these weird muscle twitches in my hands and legs. Im so scared im getting my seizures back, my neurologist cant see me until a month or so from now. I thought I could wait but every day the severity increases and I worry about getting a grandmal. Mostly posting to vent but advice is greatly appreciated in the mean time. Thank you!
Hi, Thank you for posting and
Submitted by Anonymous on Tue, 2020-01-21 - 06:03
Hi, Thank you for posting and we understand your concerns. It’s important that you’re exploring these changes in symptoms you describe experiencing further, with your healthcare team and if you experience any changes in seizure types/frequency, side effects, behaviors, and moods to help determine what individual treatment plan is best for you. If you have not already, you may want to consider seeing an epileptologist (epilepsy specialist). For assistance finding a specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist Using a journal or a diary to document how you’re feeling in detail, (like you've done in your post) and providing a thorough medical and family history (if possible), will be very helpful to review with your healthcare team. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for identifying & tracking seizures and triggers, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, and other personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline