The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Second Opinion

Sun, 02/23/2020 - 17:54
Can anyone recommend a Dr. for a 2nd opinion? I am a 75 yr old male; episodes for 12 yrs but more intense the past 4 years. I am happy with my Dr. (been with him 4 yrs) but think it prudent to get a 2nd opinion. I live in AL but will go anywhere for the right DR. Thanks

Comments

Someone from the epilepsy

Submitted by Patriotrehab on Sun, 2020-02-23 - 18:30
Someone from the epilepsy foundation will probably be responding to you during the week with some information on how to locate an epilepsy specialist in your area. I’ve recently been going to Barrow Neurological Institute in Phoenix, Arizona and while it does take awhile to get an appointment and they did put me through an extended video EEG monitoring, along with a high resolution MRI, which requires hospitalization for a week, I think we are moving in the right direction with my care. The trouble is that they assign you to the doctor and you don’t get to pick one. I think Barrow, which is part of St. Joseph’s Hospital in Phoenix even has a way of submitting medical records for a second opinion without an appointment. You may want to check that out by searching Barrow’s and St. Joseph’s website for more information. I also really liked Dr. John Croom at St. Luke’s when I lived in the Kansas City area, but I only got to see him a few times. He seemed to know about all kinds of epilepsy that other neurologists didn’t. Whatever you do, be sure that you have copies of all of your medical records and if possible, also have digital copies of your EEGs and MRIs for the neurologist because they like to look at them rather than just the reports. Hope that helps. 

Hi,Thank you for posting.

Submitted by Anonymous on Mon, 2020-02-24 - 09:40
Hi,Thank you for posting. Gianna has offered some wonderful advice and suggestions to consider when seeking out a second opinion.Prior to seeing your new healthcare team, it is helpful to make sure that they have received all of your records in advance for review. If you all have not already, you may want to consider seeking more specialize care for your epilepsy at an epilepsy center. A comprehensive epilepsy center is a group of health care professionals who specialize in the diagnosis, care, and treatment of people with seizures and epilepsy. Usually led by an epileptologist, (epilepsy specialist), who can help explore all treatment options and determine what individual treatment plan maybe best for you. Epilepsy centers can also help connect you with additional support groups, educational sessions and connecting you with other families.To find an epileptologist or epilepsy center near you, please contact the Epilepsy Foundation or Alabama: https://epilepsyalabama.org/ ,or visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist/find-epilepsy-centerAdditionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline

Thanks. Someone just

Submitted by ozier on Mon, 2020-02-24 - 18:13
Thanks. Someone just introduced me to Dr's at Emory Medical Center (Atlanta) who all specialize in epilepsy. I will explore them.Thanks again.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.