New experience, seizure?

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Trying to do some research on what I'm experiencing but not sure if I'm coming up with the right results online. Recently at night I will experience one giant burst in my head. Like a huge bolt of lightning that jolts me out of my sleep and heart racing. Not sure how else to explain it but I can feel it in my brain. Had anyone else experienced this? I know i should contact my neurologist but trying to wrap my head around it first and dont nessarily want to go to a doctor's office in times like these. They schedule them months out anyways. I was diagnosed at 5 years old, petite mal then. Age 50 now and they have changed, more intense but for the most part controlled by carbemezapine. The usual sleep deprivation, stress, missed doses causes break thru here and there. So far I'm lucky I can deal with it.

Comments

Hi, Thank you for posting. We

Submitted by Anonymous on Fri, 2020-03-20 - 09:12

Hi, Thank you for posting. We understand your hesitancy and concerns regarding seeing your neurologist,especially with all that is going on regarding COVID-19. However, it's important that you’re following up with your healthcare team to review these new symptoms you describe experiencing, further. Many clinics and offices are now offering telehealth options for non-emergencies, or routine check-in appointments. Ask your neurologist if you can schedule a time to talk via phone/other telehealth resources you can utilize, or if they can make any additional recommendations for you. It’s also important that you’re able to identify and recognize your triggers. This can help you and your healthcare team detect potential patterns,allowing you to modify your behavior and lifestyle, as appropriate. Stress, sleep & missed doses of medications, are some of the most frequently reported triggers for some people living with epilepsy. You can have electronic reminders, via text or email, sent to you when it's time for a dose of medicine. To learn more about triggers and how to mange them, please visit: https://www.epilepsy.com/learn/triggers-seizures . In addition to identifying your triggers, documenting these new episodes you’ve experienced and how your're feeling in detail, (like you done in your post) will be very helpful to review with your doctors. My Seizure Diary can be used to organize your health issues,manage medications, record side effects, other therapies or personal experiences and more which can be shared with members of your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline , or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates .

Hi, Thank you for posting. We understand your hesitancy and concerns regarding seeing your neurologist,especially with all that is going on regarding COVID-19. However, it's important that you’re following up with your healthcare team to review these new symptoms you describe experiencing, further. Many clinics and offices are now offering telehealth options for non-emergencies, or routine check-in appointments. Ask your neurologist if you can schedule a time to talk via phone/other telehealth resources you can utilize, or if they can make any additional recommendations for you. It’s also important that you’re able to identify and recognize your triggers. This can help you and your healthcare team detect potential patterns,allowing you to modify your behavior and lifestyle, as appropriate. Stress, sleep & missed doses of medications, are some of the most frequently reported triggers for some people living with epilepsy. You can have electronic reminders, via text or email, sent to you when it's time for a dose of medicine. To learn more about triggers and how to mange them, please visit: https://www.epilepsy.com/learn/triggers-seizures . In addition to identifying your triggers, documenting these new episodes you’ve experienced and how your're feeling in detail, (like you done in your post) will be very helpful to review with your doctors. My Seizure Diary can be used to organize your health issues,manage medications, record side effects, other therapies or personal experiences and more which can be shared with members of your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline , or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates .

Hi, Thank you for posting. We understand your hesitancy and concerns regarding seeing your neurologist,especially with all that is going on regarding COVID-19. However, it's important that you’re following up with your healthcare team to review these new symptoms you describe experiencing, further. Many clinics and offices are now offering telehealth options for non-emergencies, or routine check-in appointments. Ask your neurologist if you can schedule a time to talk via phone/other telehealth resources you can utilize, or if they can make any additional recommendations for you. It’s also important that you’re able to identify and recognize your triggers. This can help you and your healthcare team detect potential patterns,allowing you to modify your behavior and lifestyle, as appropriate. Stress, sleep & missed doses of medications, are some of the most frequently reported triggers for some people living with epilepsy. You can have electronic reminders, via text or email, sent to you when it's time for a dose of medicine. To learn more about triggers and how to mange them, please visit: https://www.epilepsy.com/learn/triggers-seizures . In addition to identifying your triggers, documenting these new episodes you’ve experienced and how your're feeling in detail, (like you done in your post) will be very helpful to review with your doctors. My Seizure Diary can be used to organize your health issues,manage medications, record side effects, other therapies or personal experiences and more which can be shared with members of your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline , or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates .

Hey there, it might be

Submitted by Believer_59cd4d81a99cf on Mon, 2020-03-23 - 23:27

Hey there, it might be "exploding head syndrome," which is a scary name for a harmless disorder. Definitely mention to your doctor though just in case.