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Myoclonic seizures and exercise--

Tue, 08/13/2019 - 21:18
Hello! I am curious about whether or not anyone has experienced anything similar to this (and am very welcome to tips and tricks to quell it): I've got juvenile myoclonic epilepsy. I was diagnosed about ten years ago (around age 18, started presenting at age 15ish). I'm used to weird things making my hands or arms go nuts with the twitches. I'm also pretty active and have recently taken up boxing classes, but I'll be da(rned) if it doesn't throw my hands into a fit by the time I'm done with a class. This is not altogether alarming. It's nothing I'm not used to. I went off of my medication a few years ago, and my hands and arms usually give me a rough time most mornings and evenings, anyway. But I am curious as to whether or not any specific exercise seems to induce seizures for any of you and what you may do to calm the storm, as it were. I gotta say, I have a chiropractor who I swear performs black magic where my myoclonic seizures are concerned, but that gets really pricey. So. On the look out for those good good home remedies. Hit me with whatever ya' got. Thanks a ton! Brooke

Comments

Hi Brooke.AM,  Thanks so much

Submitted by Anonymous on Wed, 2019-08-14 - 20:30
Hi Brooke.AM,  Thanks so much for posting. Please continue to follow-up with your healthcare team to discuss any changes in seizure types, frequency, sides effects, changes in behaviors and symptoms..https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf For more information about complementary health approaches to epilepsy, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/complementary-health-approaches https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/other-treatment-approaches/herbal-therapy  Seizures can take on many different forms and affect different people in different ways. Learn more about seizuresand triggers here:https://www.epilepsy.com/learn/types-seizures https://www.epilepsy.com/learn/types-epilepsy-syndromes/juvenile-myoclonic-epilepsyhttps://www.epilepsy.com/learn/triggers-seizures Safety is always the most important thing when it comes to an exercise program for anyone of any ability level. It’s important to make sure that you’re discussing your exercise routine with your health care team. Review steps to take to ensure that you're putting yourself in the safest position possible by visiting: https://www.epilepsy.com/living-epilepsy/healthy-living/fitness-and-exercise/safety-first-how-do-i-start-exercising https://www.epilepsy.com/living-epilepsy/healthy-living/fitness-and-exercise/exercise-faqs You may want to consider tracking your seizures, using a diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary , or a seizure alert device:  https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfThese tools may be helpful in identifying & tracking seizures, other symptoms, managing medication & other therapies, recognizing triggers and health events that may affect seizures and wellness, which you can share with your healthcare team.Additionally, our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org can assist in connecting you to resources, provide referrals and additional support.epilepsy.com/helpline  Or by contacting your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community.  

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