My Story

December 23rd 2011, I had my first child at 18 years old. A few months later I had my very first seizure. It was a Clonic-tonic (grand mal) Seizure and it occurred only a couple hours from waking up. I was sleep deprived being a new mom and a full time student athlete. However, my EEG scan came back normal. I went almost a whole year without another episode and then another one occurred. I wet myself, bit my tongue and lost all consciousness. Another Grand Mal seizure. This time my EEG scan came back abnormal. I was put on Keppra and another I can’t recall until I was put on Lamictal and it seemed to be working. I went a few more months without and then had another one. They upped my doses and it seemed to work. Then, 2016 I got pregnant. I was considered high risk due to my epilepsy. My medication dose had to go up because my lamictal levels were low when I had blood work done. Then, I had a car accident and totaled my car due to having a seizure while driving. So, they upped my dosage again because it was as if my body was depleting the lamictal levels in my body like I wasn’t taking my meds but I was because I was scared to have a seizure while pregnant. Then, I had another a month before my due date in April 2017. After the failure of medication and all the side effects I was tired of it all and done my own research about CBD or the use of cannabis. I started using it instead of medication. It worked a little over 6 months I went seizure free by using cannabis oils and flower. Then, I had one January 2019 and had another one not even a whole month later which is RARE. I have never had them that close together before except when I was pregnant and my medication levels were all messed up. Each seizure I have I do not have an aura, I fall if I’m standing, I lose all consciousness, I bite my tongue and if I haven’t used the restroom I usually lose my bladder control. I have had abnormal EEGs and so far been told my CAT scans and MRI’s are normal. When I was 14 I was diagnosed with Tularemia a case of lime disease from a tick bite. Also, when I was 14 I had a mild head concussion due to a horse accident and was knocked out with a fractured hip. Those are the only traumatic instances that I could recall that occurred to my head growing up. Being that I am a mother of 2 beautiful children and want to give them the life they deserve. It’s hard to live with unknown answers and the occurrence still happening when you’re not disabled but have to live like you’re disabled due to freak occurrences that no one can give you answers to. I know I may never get the answers I’m wanting but I’d love to know I’ve tried every outlet I possibly could have to get the answers I’m hoping to find.