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living with it

Tue, 12/07/2004 - 14:43

At first i thought that i was crazy, but i came to this site and i almost cried because everything is true.  But is it possible to have both absence and complex partial epilepsy?  Is it possible to have several types at once?

I just stare, and sometimes i almost drool.  but with me, i am sort of aware of everything that goes on.  i hear things, but i can't respond, like my whole being does'nt have the energy to respond, so i sort of can't move.  but on  a few occassions, i started to rock back and forth.  I thought that i was crazy because my doctors gave me an EEG, but nothing was abnormal.  But they said that it may have been that i just wasn't having a seizure at that time.  My head tips most times rolls to my left and my eyes roll up and to the left also.  If i'm standing, i do feel weak, but i haven't fell yet.  I mostly just stand there until it passes.  But the bad ones, fortunatley, have only happened while sitting.  But mostly i feel that i will have one soon, usually in the morning,  I feel wierd.  I can;t concentrate.  my thoughts are sometimes confused.  I rememeber one time all of a sudden my brain felt like every neruon was turned on and on fire.  It was like i was thinking of everything and nothing at the same time.  my thoughts were at hyper-drive, and then i had this irresistable urge to take off running as fast as i could.  i don't know what that was, but it was before my diagnosis.  i am so glad that i found this site, because i have longed to just talk to people who understand what i go through, and it is also very reassuring that i am not crazy. 

Comments

RE: living with it

Submitted by beautimouslove on Sat, 2004-11-13 - 20:18

the neurons all running on with fire! yes i understand. i can say that i do not know much about seizures although i have them... i have not been to a dr yet, fear and lack of ins.  i call the neurons on and with fire a brain tingle... i really thought that i was going crazy but i have talked with a lot of people that have explained that i am not crazy and know that U R NOT CRAZY.  a person said that i was having complex and a tonic (once yesterday).  my mouth is sore but i cannot let this get me down. i'll go to the dr when my ins kicks in on jan 1st.  i do not want to go right now b/c i am a student rn. what u learn in books give hardly no insight to what is really going on with people.... good luck.

the neurons all running on with fire! yes i understand. i can say that i do not know much about seizures although i have them... i have not been to a dr yet, fear and lack of ins.  i call the neurons on and with fire a brain tingle... i really thought that i was going crazy but i have talked with a lot of people that have explained that i am not crazy and know that U R NOT CRAZY.  a person said that i was having complex and a tonic (once yesterday).  my mouth is sore but i cannot let this get me down. i'll go to the dr when my ins kicks in on jan 1st.  i do not want to go right now b/c i am a student rn. what u learn in books give hardly no insight to what is really going on with people.... good luck.

RE: RE: living with it

Submitted by mickie on Mon, 2004-11-29 - 16:38
Hi, It is good to know you rn(student). I am a student rn too. I had to withdraw from school a couple of times, but I am trying to finish up. It's been really hard. At first, I didn't tell anyone at school I had seizures, but after I started missing a lot of classes due to them, I told my teachers, friends, other nursing students, etc. It really turned out better for me because instead of worrying about missing classes Iwas able to do my classswork at home. I have kept an average of 3.8, and I don't have to attend all my classes. My professsors and everyone has been really supportive. How about you? Do you have any trouble with your teachers or classes that you miss? I understand how you feel with your "crazy feelings" that come on suddenly. I get that too. I will just be sitting there reading or studying, and my eyes feel like they are trying to roll back in my head, and sometimes my ears start to ring or I just go into a spin. How long have you had seizures? Hang in there, you're not alone!~MG

RE: living with it

Submitted by Epilepsymd on Sun, 2004-11-14 - 07:23
It is possible to have absence and complex partial seizures, but 99% probability you have only one type -- either absence with some more prolonged seizures that are associated with automatisms, or complex partial with some shorter ones that mimic absence.A Video-EEG study will answer the question definitively!

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