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I'm so lost
Fri, 09/07/2018 - 18:44Hey everyone, I haven't been on this website in a long time so just last week I had a grand mal seizure right out of the blue at home. I don't really want to go into all the details but basically what I can remember was dropping things, shaking and that is how I know what my triggers are after that I take Ativan lay down and am fine but this time I fell and thank god someone was there to catch me. I didn't hit my hit or anything then my friend called the ER and wanted them to check my vitals but it wasn't bad enough where I needed to go to the hospital. I'm confused as to why it happened because my last seizure was over 1-2 years ago. For medication I take zonegran at night time. That's it and have been taking that forever this seems to be the best that works well for me. There's been sometimes where I've missed a few days of meds but that's it. I started seeing a new neurologist last Thursday. Actually she is a Nurse ARNP, FNP-BC but Specialties & Services: family medicine, neurology. Since I just moved back home a year ago I haven't really found a new neuro yet but I have only been with this new one for a week or so who's a nurse? Anyways I may eventually transfer to University of WA because I know they neuro dept there has a lot of good drs there it's just there's so many people that go there it takes forever to get an appointment. When I saw my nurse practitioner she prescribed me Nortriptyline and Maxalt for my headaches/migraines. Could that have caused my seizure? I'm thinking anything could have from stress, not eating etc. I sleep regularly, don't drink or smoke, don't eat as often as I should but I'm working on that.
You do need to discuss this
Submitted by just_joe on Sun, 2018-09-09 - 14:14
You do need to discuss this with neurologist. Understand that many people can go months without any seizures and be fine. I went almost 3 years without one but had one. Medications need to be taken regularly without missing. Therapeutic levels built up in your body are there to stop a breakthrough seizure if a dose is taken late and at times missed. But you also need to know that after taking the same medication for some years your body changes and it gets used to the medication. Therefore doses may needed to e raised. My neurologists always questioned me about the time I had ben on medications and whether I had had seizures and how many. Any University hospital is a good place to go But regular hospitals also have good and great neurologists associated with them. When I came to Dallas I had to get a new neurologist and the hospital I went to was Presbyterian. The Doctors building there was where I found my neurologist. I have been with the same group of neurologists since 1970. I left Dallas and went to a small town in NM and my neurologists was still with the same group here in Dallas.9 years later I was back in Dallas and Doc introduced me to a different one in the group since they has started specializing. So I have had neurologists that specialize in epilepsy since 1994/ They have worked on controlling my seizures. They looked at all the different procedures and surgery that might help. We worked on different meds and couplings of meds. They have all said my seizures are controlled even though I still have one every 5-8 days. The reason they do that is the seizures I have today most people would not know if and when I had one even if they were standing right next to me and we were talkingSo find a epileptologist and work with them to get more control of your seizures