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Finding Zeiss Z1 blue lenses to treat photosensitive epilepsy

Staff Notice

For about 3 percent of people with epilepsy, exposure to flashing lights at certain intensities or to certain visual patterns can trigger seizures. This condition is known as photosensitive epilepsy.

Read more: http://www.epilepsy.com/learn/triggers-seizures/photosensitivity-and-seizures


I found a study which shows that Carl Zeiss brand z1 blue lenses are highly effective in treating photosensitive epilepsy. The study is at: http://www.blackwell-synergy.com/doi/full/10.1111/j.1528-1167.2006.00463.x?prevSearch=allfield%3A%28z1%29.

These lenses are available in Europe, but I haven't been able to find them in the US or on the internet. I emailed Zeiss customer service about this, but I got no response. Does anyone know where I can find these lenses. I suffer from photosensitivity (as well as temporal lobe epilepsy). I use polarized glasses, and these help some, but I'd really love to try these lenses.

Also, has anyone with photosensitivity tried using any kind of blue tinted glasses, or cross polarized glasses? If you have had good results, would you please tell me which brand you used and where I can find them?

UPDATE: I found out from another website that these lenses are not available in North America. This came from Carl Zeiss customer service.

Comments

Re: Zeiss Z1 blue lenses & options photosensitive epilepsy

Hello,

OK, here is what I have to offer. There is no luck with the two internet postings for getting Z1 lenses. The guy in Cal has on contacts and has been trying forever to get his name off the Net for these. The other is a no answer ever at any time. Now I have found blue lenses A ZenniOpitical.com. The are a blue Tint 80% blue. for me they are about 10-30% effective at reducing the effect of being flashed. they are most effective on indirect light sources and delaying episode on set. the good thing about the Zenni option is that they are cheep. $11 on up. I am looking at Cobalt lenses at Welding supply Shop. these are heat blast furnace glasses and are sold by miller welding at local weld shop or can be ordered but not Rx. hope this helps.

Re: Zeiss Z1 blue lenses & options photosensitive epilepsy

Hi

I am an Italian optician and I can provide the original zeiss lenses even with prescription

 

Antonio Bernabei

www.otticabernabei.it

Re:Finding Zeiss Z1 blue lenses to treat photosensitive epilepsy

The lenses are in fact very helpful! There are 3 sources I know of. You can order them to be made with your vision prescription or you can get plain lenses to be put in a clip-on. There's more information at http://videogameseizures.wordpress.com/2012/03/11/life-with-zeiss-z1-f133-protective-lenses/.

Antonio Bernabei  

Ottica Bernabei
Via Del Corso, 4
Rome
Italy
Phone:  +39 06.3610190
www.otticabernabei.it 

info@otticabernabei.com

I have ordered from Bernabei--his service, price, and English are all excellent

Richard L. Silver, O.D.
Professional VisionCare Associates
14607 Ventura Blvd.
Sherman Oaks, CA, USA 91403
Office: (818) 789-3311
Fax: (818) 789-1047

drsilver@provisioncare.com

Norm Johnson, manager
Optometrists’ Clinic Inc.
12318 Jasper Ave.
Edmonton, Alberta
Canada T5N 3K5
800-661-9976

njohnson@optometristsclinic.com

 

We are an Optometric office

We are an Optometric office located in Sea Girt, NJ. We staff Licensed Optometrists and Licensed Opticians like my myself and have a full complement of therapeutic lenses and photosensitive lenses. Should you have any questions dont hesitate to contact our office for information on the lenses. Or check out our facebook page.  https://www.facebook.com/emeraldeyes.inc and web site. www.emeraldeyes.com.

file:///C:/Users/nschleiffer

file:///C:/Users/nschleiffer/Desktop/BPI%20Applications%20for%20Colored%20Lenses.htm

http://www.colorlenses.com

http://www.colorlenses.com/sorry, I pasted the html file link from my computer, above is a link you can learn more about the lenses

We are an Optometric office

We are an Optometric office located in Sea Girt, NJ. We staff Licensed Optometrists and Licensed Opticians like my myself and have a full complement of therapeutic lenses and photosensitive lenses. Should you have any questions dont hesitate to contact our office for information on the lenses. Or check out our facebook page.  https://www.facebook.com/emeraldeyes.inc and web site. www.emeraldeyes.com.

Blue blockers do not block IR

Blue blockers do not block IR, they block UV. You need lenses that block IR to deal with this problem.

Here is the one of the web

Here is the one of the web site for Zeiss Z1 lenses. http://emeraldeyes.com.You can order them from Italian optician as well/ web adress as posted below.My best advice is to search locally.RE

This lens from NoIR can work

This lens from NoIR can work for me.  You can buy it directly.  It works, that is, until my problem "accumulates" and then I need to go 100% opaque.  It is made for IR-sensitive photophobia.  The big problem however is that it doesn't block out the periphery, which to me are like laser beams!http://noirmedical.com/08.html

This lens from NoIR can work

This lens from NoIR can work for me.  You can buy it directly.  It works, that is, until my problem "accumulates" and then I need to go 100% opaque.  It is made for IR-sensitive photophobia.  The big problem however is that it doesn't block out the periphery, which to me are like laser beams!http://noirmedical.com/08.html

It makes the world look this

It makes the world look this lovely shade of mint green!

We are trying these for my

We are trying these for my daughter and Going to a eye doctor today to see more about this. If it all works out I'll get back to you this afternoon. Please feel free to contact me about this. 484 685 8606

I see that my office was

I see that my office was mentioned in one of the poster's responses.  We have been providing these lenses for a several years now to needing patients all over the US and Canada thus far. We stock the Plano (Non Rx) lenses in stock and turn them around the same day for patients. Prescription versions available in single vision and flat top 28 bifocals take about 3 weeks to make.  The poster below is correct, we are emeraldeyes.com or https://www.facebook.com/emeraldeyes.inc/. If you have any questions or need any advice regarding these lenses please don't hesitate to contact our office 732-974-3937.  We are in New Jersey and we are here to help.

I see that my office was

I see that my office was mentioned in one of the poster's responses.  We have been providing these lenses for a several years now to needing patients all over the US and Canada thus far. We stock the Plano (Non Rx) lenses in stock and turn them around the same day for patients. Prescription versions available in single vision and flat top 28 bifocals take about 3 weeks to make.  The poster below is correct, we are emeraldeyes.com or https://www.facebook.com/emeraldeyes.inc/. If you have any questions or need any advice regarding these lenses please don't hesitate to contact our office 732-974-3937.  We are in New Jersey and we are here to help.

Regarding above, using any

Regarding above, using any blue tinted lenses is not the same as the Zeiss or BPI Deep Blue Zee lenses. Doing so could pose a potentially dangerous situation. If you think about sun screen it can be clear, tinted, white and lined up next to each other they all may "look" similar or the same, but certainly they do not all perform the same. The studies have shown certain wave lengths of light have a particular effect on the patient and these lenses are more to do about wave length filtration than the specific color, although some of these characteristics overlap. Do not be misled or fooled when you google photosensitive epilepsy lenses. Most sites lead you to something that has nothing to do with the condition. In my experience, the Zeiss lenses have performed the best although the Deep Blue Zee lenses have positive results too.

Copy the url through "html"

Copy the url through "html" and leave off "I have" at the end. She made a mistake in typing and didn't realize she had put these words in the wrong place.

Copy the url through "html"

Copy the url through "html" and leave off "I have" at the end. She made a mistake in typing and didn't realize she had put these words in the wrong place.

Sorry. That doesn't work,

Sorry. That doesn't work, either.

We can ship these lenses

We can ship these lenses worldwide Send an email to info@otticabernabei.com

I know this is a bit late,

I know this is a bit late, but we have always carried these lenses right here in the USA, New Jersey. https://www.facebook.com/emeraldeyes.inc/. We stock the non Rx in house and Rx takes about 3 weeks. These are the genuine zeiss Z1 F133 lenses. 732-974-3937

I know this is a bit late,

I know this is a bit late, but we have always carried these lenses right here in the USA, New Jersey. https://www.facebook.com/emeraldeyes.inc/. We stock the non Rx in house and Rx takes about 3 weeks. These are the genuine zeiss Z1 F133 lenses. 732-974-3937

Do not confuse color of

Do not confuse color of lenses with light filtering. Big difference and mistakes will cost you. The Zeiss F133 filter RED wavelengths of light that trigger photo epileptic seizures. Very different than lenses that filer out HEV, high energy visible blue light. Also be careful listening to folks that dont quite get the info correct. UV light is wavelengths of  light that is less than 400nm and infrared is wavelengths greater than 700. Visible light is that which the eye responds to for approx 400-700nm. Below and above that range the eye generally does not respond to as it doesnt see it. Zeiss F133 block between 550-650nm.

I haven't had a seizure since

I haven't had a seizure since 2013 until last weekend.. I had one they couldn't get me out of and was placed on life support.. Went back to work on Tuesday and the same thing happened on Friday and was again placed on life support.. I just got home yesterday. The only difference from then and now is my new job.. I work at a call center and am an insurance agent.. The florescent lights in there bother me some and I find myself having to step outside and breathe and also I have to use two different computer screens.. Is there any way I can be guided in finding glasses that can help me? Thanks for your time! 

How do I get one of those

How do I get one of those sunglasses

Is it for photosympathy

Is it for photosympathy epilepsy that's what I have..

I am interested in your

I am interested in your Oakley frames. You can text me in California at 818.489.1396

Remember it's not the poop

Remember it's not the poop that comes out of a butthole's mouth that makes him effective, it is the fact that he's trying to sell his poop to a bunch of people suffering from a debilitating condition. 

Could you give me contact

Could you give me contact details regarding this please. I'd be very interested. neilshan217@gmail.com

Hallo heeft u deze bril

Hallo heeft u deze bril toevallig nog? Mijn dochter heeft deze hard nodig. Met verzekering heel gedoe. 

Hallo heeft u deze bril

Hallo heeft u deze bril toevallig nog? Mijn dochter heeft deze hard nodig. Met verzekering heel gedoe. 

Ik ga u een mail sturen 

Ik ga u een mail sturen 

Sorry I did not got any

Sorry I did not got any advice. Please send email to abernabeiroma@gmail.com

Although you can not get

Although you can not get these in the United States at the present time. I am still able to provide non prescription Zeiss Z1 F133 lenses (plano).  I have a significant supply and have been helping patients' with these lenses for years. You are always welcome to contact our office at Emerald Eyes in Sea Girt, New Jersey. 732-974-3937. Of course right now we are closed due to Covid-19, but there is someone in the office 11:30 to 1:00 m-f to answer calls or leave a message. also you can email me @ emeraldeyes1@att.net

I live in New York and have

I live in New York and have been diagnosed with photosensitive epilepsy. Does anyone know how or through who I can get these lenses shipped to New York? (nonprescription)

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