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Epilepsy/Meds are Ruining my LIFE!!!!
Mon, 03/16/2009 - 21:21Comments
Re: Epilepsy/Meds are Ruining my LIFE!!!!
Submitted by dainty on Tue, 2009-03-17 - 10:04
Hugs and hang in there*** Both my kids genetic epileptics and its not easy but it is doable. The hardest part is getting the meds right. The keppra kicking your butt right now. My daughter as well. I'm told it will pass once you are used to it in a few months. If not, maybe its not the right med for you. I also know good sleep habits a MUST... no and, ifs, or buts about it. You must sleep well to preform well. Your diet must be healthy. No diet soda, junk foods, and missing meals. All that adds to more issues you don't need. You must exercise or get out every day. Yoga, mediation, something to relieve stress. None of these will cure it but they should help you alittle bit.
I wish you well and we are all here for you. Also look into a 504 Plan for College. My son has very high intelligence and yet he has one t help him.
Be well and good luck
joan*
http://health.groups.yahoo.com/group/JuvenileMyoclonicEpilepsy/
Son lamictal 175 2x 19 Grand Mals - Stable Daughter keppra 750 16 Juvenile myclonic - Not stable yet Both had first issues at 15 - Both JME - gotta love puberty : ) * Both dealing with
Hugs and hang in there*** Both my kids genetic epileptics and its not easy but it is doable. The hardest part is getting the meds right. The keppra kicking your butt right now. My daughter as well. I'm told it will pass once you are used to it in a few months. If not, maybe its not the right med for you. I also know good sleep habits a MUST... no and, ifs, or buts about it. You must sleep well to preform well. Your diet must be healthy. No diet soda, junk foods, and missing meals. All that adds to more issues you don't need. You must exercise or get out every day. Yoga, mediation, something to relieve stress. None of these will cure it but they should help you alittle bit.
I wish you well and we are all here for you. Also look into a 504 Plan for College. My son has very high intelligence and yet he has one t help him.
Be well and good luck
joan*
http://health.groups.yahoo.com/group/JuvenileMyoclonicEpilepsy/
Son lamictal 175 2x 19 Grand Mals - Stable Daughter keppra 750 16 Juvenile myclonic - Not stable yet Both had first issues at 15 - Both JME - gotta love puberty : ) * Both dealing with
Re: Epilepsy/Meds are Ruining my LIFE!!!!
Submitted by rikk on Tue, 2009-03-17 - 04:02
yes i know where you are at. that is from my view. there is no way to find the right drug, other than trial and error. the different types of seizures and different types of body responses letting the meds take some time to see if they are going to work. some of the side effects go away. your brain can adapt. it may take several tries. i know that i am a little dew drop from heaven. what you are experiencing is just what the doc is telling you. there is really no such thing as a mini seizure. the activity is seen, and, abnormal, and has changes in the way pattern. the outside signs may not be there , but the inside is. You have had more than 4 seizures.
as far as parents are concerned, if they wish they may contact me direct, useing my e-mail address. ish4031eagle@aol.com. i can give them information and answer questions, that they may not know the answers to. some times when it comes to something like this. the words from someone else drip from the lips of God. That is what my wife tells me, when we don't see eye to eye. You may have to with draw from your class. What i found helpful was several methods of information exposeure and several times. the more links in the brain to the information the more likely you are to remember.
thought and speech issues. slow down and let the thought form. you may have to start out repeating the thought in you head a couple of times before you speak.
i have had seizures for 48 years. every type in the books and a few other. I went to college and have a degree in science. i found a drug that allowed me some success. i still have 20 seizures a month. I also have a vns implant. that's my thoughs. I hopeit helps. rikk
yes i know where you are at. that is from my view. there is no way to find the right drug, other than trial and error. the different types of seizures and different types of body responses letting the meds take some time to see if they are going to work. some of the side effects go away. your brain can adapt. it may take several tries. i know that i am a little dew drop from heaven. what you are experiencing is just what the doc is telling you. there is really no such thing as a mini seizure. the activity is seen, and, abnormal, and has changes in the way pattern. the outside signs may not be there , but the inside is. You have had more than 4 seizures.
as far as parents are concerned, if they wish they may contact me direct, useing my e-mail address. ish4031eagle@aol.com. i can give them information and answer questions, that they may not know the answers to. some times when it comes to something like this. the words from someone else drip from the lips of God. That is what my wife tells me, when we don't see eye to eye. You may have to with draw from your class. What i found helpful was several methods of information exposeure and several times. the more links in the brain to the information the more likely you are to remember.
thought and speech issues. slow down and let the thought form. you may have to start out repeating the thought in you head a couple of times before you speak.
i have had seizures for 48 years. every type in the books and a few other. I went to college and have a degree in science. i found a drug that allowed me some success. i still have 20 seizures a month. I also have a vns implant. that's my thoughs. I hopeit helps. rikk