Epilepsy f*cks my...

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Epilepsy f*cks my life, I have had it since I was a little kid ~4 years (I'm 28 today). My life have sucked whole life, my epilepsy have always been a problem with everything, but I was young so didn't think of it so much. When I got 19 i moved to Stockholm and study on University, how did it go? Terrible, I couldn't make it, first year OK, next year was harder for my brain and epilepsy (had attacks more often) then third year, damn had attack after attacks the whole time. But made it, then I went to work, and it was hard to find, but got jobs but got kicked out as soon they got to know I had epilepsy/or saw my attacks. I know I can handle jobs because at one I started as a trafic operator, after a week they took me as a administrator, then a month later they sended me up as a supervisors. They never saw any problems with my epilepsy. Next work, I got the work, everything was excellent but later I had a small attack and suddenly I got fired because of that (but I had worked there few months and never a problem?). Hmm... Looked for a job then suddenly I got one, same there I told them directly that I have epilepsy, they got scared but they liked me so I got the job. I worked as hell, and very good, I was on top as worker, then after few months I got fired because of my epilepsy... Now I have been looking for a job for few month an nothing. I can't work where you need truck/driving license, can't wotk at construction. I was at an interview, they liked me, told me that they accept me and want me to 2nd interview *yeah!* what happen few hours later? I got an email that I don't get the job after they talked with one of my reference (where they just said that I have epilepsy). So damn, my life is terrible, I have no friends, alla are scared of the word "epilepsy", no girlfriend, and why? "epilepsy", i'm looking for all kind of jobs, but anything? Nothing, nada. The prime minister here in Sweden says that he help people like me, but bullshit, he doesn't (people in Sweden starts to hate him more and more because he lies so much and destroys this country). Short about me, and must say that the word "epilepsy" drags you down terribly (at least here in Sweden). My life sucks, every single penny is important to me, I live so cheap, just want to cry.

Comments

You're right; having

Submitted by birdman on Tue, 2019-09-17 - 21:32

You're right; having uncontrolled seizures changes everything about one's life leaving a major disability. Epilepsy and its treatment often can leave one depressed not just because of the circumstances but because of changed brain chemistry. Have you every received treatment for depression? It helps a lot.Michael

Hi adotb, Thanks so much for

Submitted by Anonymous on Wed, 2019-09-18 - 10:20

Hi adotb, Thanks so much for sharing your story, it sounds like you've been through a lot. We are so sorry to hear that you’ve dealt with such negative experiences making friends and maintaining employment. It’s important to remember that you are not alone. However,we know that being diagnosed with epilepsy can be upsetting and make you feel isolated. If you ever need to speak with someone immediately,please contact our Epilepsy and Seizures 24/7 Helpline: contactus@efa.org, 1-800-332-1000, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline Additionally, you can find help in your country by visiting: http://epilepsi.se/ & calling: +46 86694106https://www.ibe-epilepsy.org/about/ibe-chapters/europe/ If you feel you've been discriminated against because of your Epilepsy and would like to connect to the Epilepsy Foundation Legal team please complete the form found here: https://www.epilepsy.com/node/2013161 And review the legal help section of our website: https://www.epilepsy.com/living-epilepsy/legal-helpAdditionally, you may contact our Epilepsy and Seizures 24/7 Helpline: contactus@efa.org, 1-800-332-1000 and ask to speak to or legal team.You can learn more about our disability resources here: https://www.epilepsy.com/living-epilepsy/legal-help/disability-resources Explore the employment section of our website, to help manage the impact of epilepsy on your work: https://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-know It is common for those living with epilepsy to experience feelings of depression: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health/overview-depressionAs Michael mentioned, it’s important that you continue follow-up with your healthcare team to express your concerns and discuss your feelings of depression, as well as, side effects, seizure types, changes in behaviors and symptoms. It is also important to recognize that epilepsy is more than just seizures, overall well-being and emotional health is-just as important: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health The Wellness Institute: epilepsy.com/wellness ,has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family. For practical & effective strategies to enhance your well-being, learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools One of the most important things to help you live with epilepsy is to find a support networkIt can be helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Learn more about your community support, here:support, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns

Hi adotb, Thanks so much for sharing your story, it sounds like you've been through a lot. We are so sorry to hear that you’ve dealt with such negative experiences making friends and maintaining employment. It’s important to remember that you are not alone. However,we know that being diagnosed with epilepsy can be upsetting and make you feel isolated. If you ever need to speak with someone immediately,please contact our Epilepsy and Seizures 24/7 Helpline: contactus@efa.org, 1-800-332-1000, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline  Additionally, you can find help in your country by visiting: http://epilepsi.se/ & calling: +46 86694106https://www.ibe-epilepsy.org/about/ibe-chapters/europe/    If you feel you've been discriminated against because of your Epilepsy and would like to connect to the Epilepsy Foundation Legal team please complete the form found here: https://www.epilepsy.com/node/2013161                                                                                                And review the legal help section of our website: https://www.epilepsy.com/living-epilepsy/legal-helpAdditionally, you may contact our Epilepsy and Seizures 24/7 Helpline: contactus@efa.org,              1-800-332-1000 and ask to speak to or legal team.You can learn more about our disability resources here: https://www.epilepsy.com/living-epilepsy/legal-help/disability-resources Explore the employment section of our website, to help manage the impact of epilepsy on your work: https://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-know      It is common for those living with epilepsy to experience feelings of depression: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health/overview-depressionAs Michael mentioned, it’s important that you continue follow-up with your healthcare team to express your concerns and discuss your feelings of depression, as well as, side effects, seizure types, changes in behaviors and symptoms. It is also important to recognize that epilepsy is more than just seizures, overall well-being and emotional health is-just as important:  https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health  The Wellness Institute:  epilepsy.com/wellness   ,has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family.  For practical & effective strategies to enhance your well-being, learn more here:  https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools  One of the most important things to help you live with epilepsy is to find a support networkIt can be helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Learn more about your community support, here:support, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns

Hi adotb, Thanks so much for sharing your story, it sounds like you've been through a lot. We are so sorry to hear that you’ve dealt with such negative experiences making friends and maintaining employment. It’s important to remember that you are not alone. However,we know that being diagnosed with epilepsy can be upsetting and make you feel isolated. If you ever need to speak with someone immediately,please contact our Epilepsy and Seizures 24/7 Helpline: contactus@efa.org, 1-800-332-1000, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline Additionally, you can find help in your country by visiting: http://epilepsi.se/ & calling: +46 86694106https://www.ibe-epilepsy.org/about/ibe-chapters/europe/ If you feel you've been discriminated against because of your Epilepsy and would like to connect to the Epilepsy Foundation Legal team please complete the form found here: https://www.epilepsy.com/node/2013161 And review the legal help section of our website: https://www.epilepsy.com/living-epilepsy/legal-helpAdditionally, you may contact our Epilepsy and Seizures 24/7 Helpline: contactus@efa.org, 1-800-332-1000 and ask to speak to or legal team.You can learn more about our disability resources here: https://www.epilepsy.com/living-epilepsy/legal-help/disability-resources Explore the employment section of our website, to help manage the impact of epilepsy on your work: https://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-know It is common for those living with epilepsy to experience feelings of depression: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health/overview-depressionAs Michael mentioned, it’s important that you continue follow-up with your healthcare team to express your concerns and discuss your feelings of depression, as well as, side effects, seizure types, changes in behaviors and symptoms. It is also important to recognize that epilepsy is more than just seizures, overall well-being and emotional health is-just as important: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health The Wellness Institute: epilepsy.com/wellness ,has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family. For practical & effective strategies to enhance your well-being, learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools One of the most important things to help you live with epilepsy is to find a support networkIt can be helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Learn more about your community support, here:support, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns

I do sympathize, but I can't

Submitted by KevinT on Thu, 2019-10-24 - 02:59

I do sympathize, but I can't imagine what your life must be like.I can say though, that for me, the more stress, the more seizures. Exams at University brought them on for me for a while, they went away after exams. I wonder if the stress during your 3rd year studying had something to do with the frequency of your seizures. Your current stressful situation can't help at all, sometimes I think doctors should treat the stress directly rather than the seizures. Sometimes there seems to be some sort of moralistic nonsense about giving people drugs that just make them feel better (and do nothing else).For the last ~6 months I have had minor seizures every ~2 hours or so, 21 hours a day with a few hours break in the mornings after getting up. Needless to say I am tired when writing this. I'm still trying various medications, maybe one will work eventually, I can't imagine 24 years of it, 6 months has been bad enough - and I still have the hope of finding a medication that works. My seizures are episodes where I just have to find a seat somewhere out of the way- if I am lucky at the time to find a spot in private- and they last ~30 seconds or so. Luckily I had work before my current lot of seizures started and the employer has sympathetic so far.I hope that eventually you find a new medication or the like that helps you.