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Ecstatic Seizures

Thu, 08/27/2009 - 07:32

 Hi

Has anyone experienced "ecstatic" seizures?  I've had a series of them recently, and they are amazing: totally outside the range of normal experience and by far the best experiences of my life!  I'm not religious or "spiritual" but recognise that they could be construed by others as deep and meaningful life changing events...evidence of the "divine" as opposed to neurological events. 

I've been told by my neurologist they are very rare and I've not been able to find out much about them/share experiences. 

Victoria

Hello all,  I'm adding this comment just over a month after the original post having realised that the thread is now incredibly confusing and there are some misunderstandings following what seem to be random postings.   You may want to follow the date order of the posts before making comments or coming to conclusions.   

Regards,

Victoria

Comments

Re: Ecstatic Seizures

Submitted by johnny on Tue, 2009-09-29 - 13:35

   Zealot , Victoria and others

  Like a dummy, I was talked into trying the Abilify by my mother. I took a 10mg pill as the script advised at bedtime Sunday night (11:00pm). I know that I should have waited to talk to my Neurologist thats out of town, but to avoid an arguement with my folks ...which usually brings out the bad side-effects of my Keppra and Trileptal from extremely high doses ! To remind everyone 4000 mgs Keppra ,1500 mgs Trileptal , 20mgs Lexapro and .5mgs Klonopin daily between morning and night. I took the abilify and 4-5 hours later ,I wake up sick to my stomach ...stumbling down the hallway dizzier than ever , just get to the bathroom and threw-up twice. I wake my mother up and showed in the toilet the results of our " little agreement to avoid an arguement" and she felt horrible for me, that was obvious ! She got me to lay down, after I sat on the patio sweating  took a few puffs of my "medical grade marijuana (no joke it's medical) to calm down my stomach and calm me down altogether. She layed there with me until I was relaxed and done throwing up. I woke up and decided to call the Dr. (Neuro psychiatrist) that talked me into trying this Abilify and left him a message to call me. He finally called me back around 7:00pm. apologizing up one side and down the other for what had happened. He told me don't touch the Abilify anymore.

  This is probably leading to another topic of discussion that should be discussed elsewhere in the forum.  The Dr. said now this is out of the way and won't work for you , would you consider trying Marinol ( synthetic THC from marijuana in pill form ) ? He told me that he would like me to give it a try until marijuana is legal in the state we are in legalizes it . I asked him he would go to that extent to prove my point on how it benefits me like I had been telling him and many others in this country already. By jumping through those hoops to try getting the script for me is basically him agreeing with me how it helps me. Now my family is just shrugging there shoulders with his response to all of this. I told them Marinol is an expensive medication and chances are it would be "HIGHLY"  unlikely this could even happen. All that said and done ...would anyone here think that someone (Doctor) is trying to help prove my point by doing this or is he just waisting time? Until all of this is over I'm just going to continue about things the way things are. Does anyone know much about Marinol or even Satevex (Inhalant THC)? I wish I could understand all the info that has been gathered from these books that you all have been talking about , but my brain and its intellectual capabilties just is'nt  there to pick up on all the philosiphy and veiws on everything from these perspectives. Too many meds and operations , but one thing is for sure !!! These ecstatic seizures are no joke that we have , it's definitley an experience that leaves you with a whole different approach to what seizures can mean in a way to some of us. Just 5 minutes ago I called my pharmascist and told him about throwing up the Abilify and the Doctor trying to get me Marijuana synthetic form (marinol) He told me they can't even get that at the drug store but at the hospital or mail order possibly. He also made a suggestion that I agree with ...and that is keep smoking the Medical MJ just be patient ,lay low and your time will come for your perscription soon enough. Just be wise how you use it and don't abuse it. I also told him I would bring back the 29 Abilify I had left here and he said please do so. They have a return meds. you don't use and they give it back into the system to help people who can't afford these drugs. 

   To all ,take care , Johnny  

   Zealot , Victoria and others

  Like a dummy, I was talked into trying the Abilify by my mother. I took a 10mg pill as the script advised at bedtime Sunday night (11:00pm). I know that I should have waited to talk to my Neurologist thats out of town, but to avoid an arguement with my folks ...which usually brings out the bad side-effects of my Keppra and Trileptal from extremely high doses ! To remind everyone 4000 mgs Keppra ,1500 mgs Trileptal , 20mgs Lexapro and .5mgs Klonopin daily between morning and night. I took the abilify and 4-5 hours later ,I wake up sick to my stomach ...stumbling down the hallway dizzier than ever , just get to the bathroom and threw-up twice. I wake my mother up and showed in the toilet the results of our " little agreement to avoid an arguement" and she felt horrible for me, that was obvious ! She got me to lay down, after I sat on the patio sweating  took a few puffs of my "medical grade marijuana (no joke it's medical) to calm down my stomach and calm me down altogether. She layed there with me until I was relaxed and done throwing up. I woke up and decided to call the Dr. (Neuro psychiatrist) that talked me into trying this Abilify and left him a message to call me. He finally called me back around 7:00pm. apologizing up one side and down the other for what had happened. He told me don't touch the Abilify anymore.

  This is probably leading to another topic of discussion that should be discussed elsewhere in the forum.  The Dr. said now this is out of the way and won't work for you , would you consider trying Marinol ( synthetic THC from marijuana in pill form ) ? He told me that he would like me to give it a try until marijuana is legal in the state we are in legalizes it . I asked him he would go to that extent to prove my point on how it benefits me like I had been telling him and many others in this country already. By jumping through those hoops to try getting the script for me is basically him agreeing with me how it helps me. Now my family is just shrugging there shoulders with his response to all of this. I told them Marinol is an expensive medication and chances are it would be "HIGHLY"  unlikely this could even happen. All that said and done ...would anyone here think that someone (Doctor) is trying to help prove my point by doing this or is he just waisting time? Until all of this is over I'm just going to continue about things the way things are. Does anyone know much about Marinol or even Satevex (Inhalant THC)? I wish I could understand all the info that has been gathered from these books that you all have been talking about , but my brain and its intellectual capabilties just is'nt  there to pick up on all the philosiphy and veiws on everything from these perspectives. Too many meds and operations , but one thing is for sure !!! These ecstatic seizures are no joke that we have , it's definitley an experience that leaves you with a whole different approach to what seizures can mean in a way to some of us. Just 5 minutes ago I called my pharmascist and told him about throwing up the Abilify and the Doctor trying to get me Marijuana synthetic form (marinol) He told me they can't even get that at the drug store but at the hospital or mail order possibly. He also made a suggestion that I agree with ...and that is keep smoking the Medical MJ just be patient ,lay low and your time will come for your perscription soon enough. Just be wise how you use it and don't abuse it. I also told him I would bring back the 29 Abilify I had left here and he said please do so. They have a return meds. you don't use and they give it back into the system to help people who can't afford these drugs. 

   To all ,take care , Johnny  

Re: Ecstatic Seizures

Submitted by victoria.w on Tue, 2009-09-29 - 15:15

Hello all,

Just a very quick post until I have a bit more time.  Seriously, I am going to contact whoever runs this site and ask them to sort out the narrowing posts - we'll be disappearing soon into a line of single characters!  Victoria

Hello all,

Just a very quick post until I have a bit more time.  Seriously, I am going to contact whoever runs this site and ask them to sort out the narrowing posts - we'll be disappearing soon into a line of single characters!  Victoria

Re: Ecstatic Seizures

Submitted by zealot on Wed, 2009-09-30 - 21:19
Victoria, I know some of these posts veer off topic, but it's hard not to talk about the price we pay for these seizures. Tadzio, I don' know why your posts are all up at the top. I have a web feed set up for this forum and the comments are correctly sorted in reverse chronological order. I will try to contact our lovely Web Master and ask her to help us. By the way, Victoria, my dyslexia got way out of control after the last spate of really bad seizures. I have VzNavigator installed on my Crackberry and it talks to me and shows me the map from a human's eye view and I still go the wrong way. It reminds me by politely telling me and asks if I want it to calculate a new route. I'd be lost without it. [Ha ha :)] Johnny, I know that meds are really beyond the scope of this forum, but here goes: The brain has built-in cannibinoid receptors. I won't get all medical/neuro physiological geek on you but I think there is one you should ask your new! MD about. It is used to treat Parkinson s as well as the depressed phase of bipolar disorder. It blocks excitatory neural transmission and increases dopamine output. The first will help the seizures and the second will make you less depressed. It's been around for awhile so it should not be too expensive. Good luck. Was that No No Not for me? I'm not talking about the paranormal. I'm talking about spiritual beliefs. I choose to worship at the Throne of G-d, not some philosopher or behaviorist. We don't just have medical condition. Our brains and therefore our minds are changed. I have my beliefs and you have yours. Live and let live. Zealot

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