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Does Epilepsy ever totally go away?

I've read that it does. But I have my own theory on it. I believe that Epilepsy is like a Volcano – it can lie dormant for a very long time and then raise its ugly head again. We all know that some Volcanoes have been dormant for thousands of years but that they can erupt again any day. Now because us humans don't live for that long, some epilepsy may remain dormant for our whole life and others are not so lucky. I've read a few stories when the people have gone 20 years with no seizures or medication and then bang they start having seizures again and need to be put back on medication – now I'm sure they thought that they didn't have it any more! I myself have gone 7 years (between 7 and 14) without any seizures or meds and then start having them and needing meds again. I recently had another seizure my first since 1997 although that was triggered by a drug so I'm just waiting to see if that's all it was. I use to wear a Medic Alert Bracelet before and are going to start wearing it again when I get my replacement one as I lost my first one – I think everyone who has a history of seizures should wear one cause you just never know when you may have another one

Comments

RE: Does Epilepsy ever totally go away?

I think comparing a valcano to seizures is inventive and accurate. Both have the capacity to turn your life upside down! It's actually what happened to me. No seizures for 7 years and BAM! Oh well, I think your post was most creative and wish you well.Maureen

RE: Does Epilepsy ever totally go away?

I think that someone that has even one seizure or even febrile seizures as a child needs to know that the risk of having more later in life is greater. Someone that has had their epilepsy go into remission, needs to realize the potential for future problems. The reason being is that the seizure threshold is lower. People need to be educated of this and need to take greater care of themselves with vitamins and supplements; stress management, etc.

RE: Does Epilepsy ever totally go away?

I think you are right...I didnt have a seizure for 30 years now they are back. I started with very bad migraines a few weeks ago and now they are back full force. I wnet to see my doctor and we thoguht it was anxiety well after todays episode I know they are back the tingling in my face the loss of feeling in my left side same thing that happened 30 years ago...I am not a happy camper at all. I am scared to death the last seiszure I had at six left me paralyzed on my left side for a few weeks.will that happen again definitely a volcano waiting to wreak havoc in my life. :(I wish you well

Re: RE: Does Epilepsy ever totally go away?

I think that statement is completely accurate also. My first neurologist couldnt find anything on an eeg so he said he was all a problem in my (head) not related to seizure activity at all. although everyone ive been around has seen them. I wrecked my car and a man I know but not very well, pulled me out of it. he knew me, but i couldnt remember him at the time, he was a medic, knew what was happeneing and my neurologist still says i probably hit my head in the accident. when the seizures started at 2 from spinal meningitis, they found the problem from high fevers. when i had my daughter, my ex hit me in the head, the doctor then said the hormones and the cat scan showed a blood hemorrage that probably started them again. now 18 years later, the nuerologist says he cant find anything. i dont have a seizure disorder, there is no way it couldnt be seen on their eegs. ive tried to tell him i dont have them all the time, stress, being tired, sometimes out of the blue,,, but usually something triggers it. i cant find anyone who will listen. my kids have seen it. my husband now of 10 years has seen it, while im asleep, awake, how do i pretend with that.?? now what.

Re: Does Epilepsy ever totally go away?

I agree that it can lie dormant for years without any activity. I was told that iI grew out of mine and never had any seizures for 5 years and was off my medication for a year and then i had a seizure. Ive read that there is no real cure for epilepsy that all there is is methods of controlling the seizures.

my MedicAlert bracelet is now permanently on my left wrist because like you said you just never know. I'm already on my 3rd bracelet... i move around alot.

Re: Does Epilepsy ever totally go away?

If only! I had febrible convulsions as a child, I then went on to have grandmal seizures from 15-20 and then at 25 I was diagnosed with TLE, partial seizures, although for some time they thought I just had migraine aura. I spoke to my neuro as to possible causes of this happening at this time in my life and she said that your epilepsy can infact lie dormant for many years and then go through and active period. I hope it goes to sleep on us all soon! Bx

Re: Does Epilepsy ever totally go away?

I was diagnosed with epilepsy around age 2 and around age 3 they said it was gone.  Is it really gone?  One of my greatest fears is that it will come back...

Re: Does Epilepsy ever totally go away?

how old are you now ?

Re: Does Epilepsy ever totally go away?

hi my name is kristen i was born with grandma seizures/epilepsy i stoped around age 10/11 im now 17 im afraid that one day it will come back... but i believe we do still have seizures but there mild and you dont shake. i read up on that... but i also dont take medicine anymore is that bad

Re: Does Epilepsy ever totally go away?

I like the comment too about epilepsy being like a volcano. I started to have grand mal seizures in my sleep 2 years ago in 2009 and I still have them. Doctors have only told me I have a seizure disorder and they never told me what is causing my seizures or what kind or type they are. I believe I have Nocturnal Seizure Disorder and I used to take Dilantin 100 mg 2xaday, then it was changed to Phenytoin 100 mg 2xaday. I really hated taking the med. because I would be sick at least 5-10 times a day every month like I had the stomach flu, and finally I decided to get off my meds. So I slowly weaned myself off them and now I am not taking any meds for my seizures. I feel so much better, more clear headed, I feel better mentally and physically. I hardly get stomach flu like symptoms anymore but I still have seizures. My last seizure was last month and to date I have had 16 seizures that I know of. I have about 1 seizure once a month. With my experience with my seiz. meds, and how sick I felt mentally and physically, I would rather have seizures then take the damn meds. All seiz. meds are bad and cause memory loss, mood changes, personality changes, and are just not good all around.

Epilepsy as a child. Scared it may be back?

I had Pettmail Seizures when I was a chimd all the way up to the age of 13 got took off my medicine witch was tegratol and havent really had any since then I had a handful of granmal seisures along with the petimal ones. But one day it was over and I was glad they went away. But now I'm having some symptoms that seem awfully close to what i use to have during my seizures as a kid. My heart rate goes up and my breathing is harder and my hand and legs and teeth start to shake and I tense up on the strong ones. Ive had about 4 so far in a 5 day period. And afterwards I have a server migraine and I'm completely tired and I breath heavy. The little ones inknkw what hspping the couple big ones I only remember a few things from it. So any thoights on westher or bit this may be my epilepsy coming back full force?

Epilepsy as a child. Scared it may be back?

I had Pettmail Seizures when I was a chimd all the way up to the age of 13 got took off my medicine witch was tegratol and havent really had any since then I had a handful of granmal seisures along with the petimal ones. But one day it was over and I was glad they went away. But now I'm having some symptoms that seem awfully close to what i use to have during my seizures as a kid. My heart rate goes up and my breathing is harder and my hand and legs and teeth start to shake and I tense up on the strong ones. Ive had about 4 so far in a 5 day period. And afterwards I have a server migraine and I'm completely tired and I breath heavy. The little ones inknkw what hspping the couple big ones I only remember a few things from it. So any thoights on westher or bit this may be my epilepsy coming back full force?

hi rebmil i would guess if u

hi rebmil i would guess if u have seizures once a month then you are doing something different once a month.lots of people have triggers that give them seizures.in my opinion seizures dont just happen something triggers them .sleep keeps my seizures away 9pm-8am .if i keep having late nights i will have seizures again 

I had febrile and grand Mal

I had febrile and grand Mal seizures since birth till age 5 (was put on phenobarbital till 5) seizures were gone far as I knew. Then couple years ago I start having black out shaking spells and loss of time. Counselor tells Dr to refer me to neurologist. He does. Neurologist says (without a scan or any test run) that it is an anxiety attack and sends me home. I still have them. What should I do? (Mama of soon to be 6, my 3yro also has seizures febrile so far diagnosed)

I had childhood absence

I had childhood absence seizures when I was 6 until I was 12, I am about to turn 18 and I have had this fear for nearly 6 years. Can they come back, can they manifest in a similar way as before and can they manifest in a more severe way?!

My last seizure was 1993 when

My last seizure was 1993 when I was 19. I stopped taking medicine in 1996. It's now 21 years and nothing

I had two seizures a young

I had two seizures a young child. One at 6 and the other at 7 years of age. After years of no further seizures, I was taken off meds at 15. Then, right at the age of 39, the seizures started up again like crazy. They weren't diagnosed until after I passed out behind the wheel multiple times. I actually had three seizures while driving during an 11 month time period. I am lucky I didn't kill or harm anyone, including myself. I'll never allow myself to drive again. Two years later I am still in shock. I can't believe that after over 30 years of zero seizure activity, my seizures have come back unprovoked with a vengeance . By this point in time I seem to be having a seizure every other week. I feel like my entire adult life has been a deception considering that there was a long waiting time bomb in my head. What I thought was a thing in my past never really left me. A dormant volcano is a good analogy for epilepsy. I thought I was alone in this experience, so I started doing research. I am so glad I found this forum. So, if this happening to you too, then know that you are not alone.

They had me on kepra at one

They had me on kepra at one point. I stopped taking it bc it altered my personality. Also last seizure I had was when I was pregnant with my son in 2013. So I've been seizure free for 5 years in September. They said it was because I was dehydrated but before that one they could never find anything in my brain that was causing the seizures. Hoping I never have one ever again. I hope you don't either...

I have been seizure free for

I have been seizure free for almost 7 months now. Being active and eating healthy can really help with epilepsy. I've had epilepsy for 3 years now and taking my medicine helped but I was still having bad seizures but ever since I started eating less takeout and started eating more healthy foods and started working out, it has decreased my stress and headaches and it took a bit to get used to but from what I know its seriously been helping a lot with my epilepsy. Changing my diet and being more active has changed my life and now I'm not scared of having a seizure because I changed my life style :) so hopefully sharing that will help others get active and live a better life style to help with epilepsy. 

Do you maintain a particular

Do you maintain a particular kind of lifestyle for the same?

That is interesting i had my

That is interesting i had my last fit when i was 12 and im nearly 30 and they told me that mine was linkd 2 my cp bt they couldnt guarntee it wouldnt return but they want to put me on amatryptln for nerve pain and one of the serious side effects is seizures so i dnt knw what to do 

I had epilepsy as child. From

I had epilepsy as child. From age two to about twelve. I was on misoline I don’t remember much about it or how to spell it. I am 57 now and my health isn’t  that great. I have food intolerance, hypo thyroid, hypertension, and weight issues. My concern is that my mother has Alzheimer’s disease and I read that people with epilepsy or that have had in childhood may have the related aphasia/Alzheimer’s/dementia later in life. It really scares me because I struggle to find my words at times. The article said seizures could reoccur with these other complications and that if speech impairment was s problem along with language skills it’s a good chance that a person will have Alzheimer’s later in life. I am pretty freaked out and terrified. I watched my mom for to long struggle. Now possibly me too! Scared an don’t know where to turn for help. 

I had nocturnal seizures when

I had nocturnal seizures when i was younger and out grew them at the age 13 as well as you. I am 27 and yesterday i had 8 seizures. I am worried and scared for what the future holds.

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