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Dilantin (Phenytoin) Bone Loss and tooth loss...

I am a 32 year old male, I have been on Dilantin (300 mgs daily) for 16 years.  My new neurologist has started decreasing my dosage to get me completely off of it after bone scans showed that I have the hips and bones of a 70 year old woman.  My teeth have also mostly broken away and I'm at the point where I have no back teeth to chew with because of the bone losss Dilantin causes.  Does anyone know of any lawsuits or anything because I am desperately seeking a way to get my teeth replaced.  Dilantin is the cause of this problem and because of my epilepsy I have been disabled and unable to work for quite a while.  I have no way of paying for this myself.  Any help would be appreciated.  If you or anyone you know uses DilantinPhenytoin please consult your physician immediately.  If you've experienced similar results from Dilantin, please let me know and If I find out about any helpful info I'll let you know!  Thanks & Blessings!  

Comments

Re: Dilantin (Phenytoin) Bone Loss and tooth loss...

I'm not 100% sure, but I think the type of lawyer you might need to be looking for are "Personal Injury Lawyers". And here is a link to a website that I came across, which might be helpful for you. http://www.personalinjurylawyer.com/

Dilantin might not be the only antiepileptic medication causing bone loss. Discussed your situation with your neurologist, or physician, to see if they have any recommendations or medications that they might be able to prescribe for you to take, which can strengthen your bones. Maybe you can increase your daily dosage amount of vitamin D and calcium. If your blood count is also low for anything else then maybe you can ask your physician if they have any recommendations for an over-the-counter multivitamin/multi mineral supplement tablet that you might be able to take.

Just out of curiosity, was the amount of Dilantin that you were taking beneficial at decreasing or completely controlling your seizure activity?

Bruce (I'm not a doctor, but instead, an epilepsy support group leader, epilepsy advocate, who has epilepsy.)

Re: Dilantin (Phenytoin) Bone Loss and tooth loss...

Too much protein in your diet can also cause loss of bone density.

Hi, all my name is John and I

Hi, all my name is John and I took Dilantin for a few years when i was an early teen for seizures. I am now 44 and ALL of my teeth have been or are going to be removed. For every inch of tooth that shows above my gum line there is 2 inches below! Which makes my teeth removal extremely painful. I would love to start a class action lawsuit over this. Please hmu about your stories:) John

I may have a lawsuit or class

I may have a lawsuit or class action suit. Give me your email address, by my email which is 7.cehood@gmail.com.

I may have a lawsuit or class

I may have a lawsuit or class action suit. Give me your email address, by my email which is 7.cehood@gmail.com.

I may have a lawsuit or class

I may have a lawsuit or class action suit.  Give me your email address, by my email address which is 7.cehood@gmail.com.

I may have a lawsuit or class

I may have a lawsuit or class action suit.  Give me your email address, by my email address which is 7.cehood@gmail.com.

I may have a lawsuit or class

I may have a lawsuit or class action suit. Give me your email address, by my email which is 7.cehood@gmail.com.

I may have a lawsuit or class

I may have a lawsuit or class action suit.  Give me your email address here is mines 7.cehood@gmail.com

I may have a lawsuit or class

I may have a lawsuit or class action suit. Give me your email address, by my email which is 7.cehood@gmail.com.

I may have a lawsuit or class

I may have a lawsuit or class action suit.  Give me your email address, by my email address which is 7.cehood@gmail.com.

I may have a lawsuit or class

I may have a lawsuit or class action suit.  Give me your email address here is mines 7.cehood@gmail.com

I may have a lawsuit or class

I may have a lawsuit or class action.  Tell you what you need to do email me at my email address 7.cehood@gmail.com.

I may have a lawsuit or class

I may have a lawsuit or class action suit. Give me your email address, by my email which is 7.cehood@gmail.com.

I may have a lawsuit or class

I may have a lawsuit or class action suit.  Give me your email address, by my email address which is 7.cehood@gmail.com.

I may have a class action

I may have a class action suit.  Here is my email address just email me your name and phone number.

I may have a lawsuit or class

I may have a lawsuit or class action suit.  Give me your email address here is mines 7.cehood@gmail.com

I may have a lawsuit or class

I may have a lawsuit or class action.  Tell you what you need to do email me at my email address 7.cehood@gmail.com.

I may have a lawsuit or class

I may have a lawsuit or class action suit.  Give me your email address, by my email address which is 7.cehood@gmail.com.

I may have a class action

I may have a class action suit.  Here is my email address, 7.cehood@gmail.com..Just email me your name and phone number.

I may have a lawsuit or class

I may have a lawsuit or class action suit. Give me your email address, by my email which is 7.cehood@gmail.com.

I may have a lawsuit or class

I may have a lawsuit or class action.  Tell you what you need to do email me at my email address 7.cehood@gmail.com.

I may have a class action

I may have a class action suit.  Here is my email address just email me your name and phone number.

I may have a lawsuit or class

I may have a lawsuit or class action suit.  Give me your email address here is mines 7.cehood@gmail.com

I may have a lawsuit or class

I may have a lawsuit or class action suit. Give me your email address, by my email which is 7.cehood@gmail.com.

I may have a lawsuit or class

I may have a lawsuit or class action suit.  Give me your email address here is mines 7.cehood@gmail.com

I may have a lawsuit or class

I may have a lawsuit or class action suit.  Give me your email address, by my email address which is 7.cehood@gmail.com.

I may have a class action

I may have a class action suit.  Here is my email address just email me your name and phone number.

I may have a lawsuit or class

I may have a lawsuit or class action.  Tell you what you need to do email me at my email address 7.cehood@gmail.com.

I may have a class action

I may have a class action suit.  Here is my email address, 7.cehood@gmail.com..Just email me your name and phone number.

I may have a lawsuit.  Give

I may have a lawsuit.  Give me your email address, with your name and phone number.Mines is 7.cehood@gmail.com.

I have no back teeth and they

I have no back teeth and they just crumble I’d love to take legal action 

They had put me on Dilantin

They had put me on Dilantin and it was supposed to be a good medicine. Never had a cavity,am now on Trileptal. My teeth have been going bad since they put me on Dilantin no matter how much I brush or floss it’s a losing battle. My teeth are slowly crumbling one by one. I won’t even smile with my teeth anymore.

I’ll support you. The stuff

I’ll support you. The stuff is wretched. Efforts after a week!

Why isn't there a class

Why isn't there a class action against the company that makes dylantin?

I am just learning about this

I am just learning about this!  I am now a 59 year old female.  I did the math and it seems that i was on dilantin from 1974 through 2010!  My teeth started to rot out of my mouth before the turn of the century.  I did not know of the connection.  I just figured it was because i didn't have the money to go to a dentist.I also had to have my right temporal lobe removed in 1998.  I thought that and being epileptic caused the memory loss that i have now!  The inability to sometimes find the word one is looking for!  and many others.I was diagnosed with crohn's disease about 2007.  Having crohn's the new gastro doc did a bone scan and it came out that i have old bones! lol i can't figure out how to spell osteo..... lolHere I not only got a hit from the crohn's in this regard but the Dilantin also had an effect on my body! I believe that there should be a class action suit!  i will be there!  thank you!

I do pray that you love

I do pray that you love yourself as you are...parent yourself first..

I am a 57 year old woman

I am a 57 year old woman suffering from an autoimmune disorder and have been on a similar medication, Topiramate (Topamax) for about 6 years. Topiramate is supposedly one of the "new" AED's, providing safer alternatives to Dilantin and some of the others. I would have to argue with that. Topiramate was prescribed to address a severe nerve pain issue. It had an immediate impact on my cognitive abilities as well as my hair and nails. It's effect on my bones was gradual. In the past 4 years, I've broken a foot, two toes, and a finger. Prior to that, I had never broken a bone in my body. But the last straw was yesterday's dentist appointment. I learned that I broke a tooth that had received both a root canal and a crown. This tooth was broken below the gum line. This is now the third tooth this has happened to. The bone holding the tooth and the teeth around it appear to be holding as my dentist checked an implant he did in 2018, but the tooth in question is fractured and will need to be extracted. Based on all of your feedback from Dilantin, and my personal experiences with Topiramate, the new generation of AED is no safer than the first!  

I cant get help my pain or

I cant get help my pain or get the help find why i hurt 24/7/365 last 27years

I cant get help my pain or

I cant get help my pain or get the help find why i hurt 24/7/365 last 27years

pain not stop

pain not stop

i want to know why i

i want to know why i hurtspine hips legs arms  other what ever bones 

I cant get help my pain or

I cant get help my pain or get the help find why i hurt 24/7/365 last 27years

pain not stop

pain not stop

I cant get help my pain or

I cant get help my pain or get the help find why i hurt 24/7/365 last 27years

pain not stop

pain not stop

i want to know why i

i want to know why i hurtspine hips legs arms  other what ever bones 

i fells like my bones

i fells like my bones grindinged

This is an Epilepsy

This is an Epilepsy Foundation website.  Could they help to get funding from the Makers of Dilantin for people to have their teeth fixed (or implants, etc)?  There are probably many other people out there.  My Signifcant Other has lost all but 3 teeth being on Dilantin.

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