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Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Ricky37 | 11/2019 | 2 Comments

Hello
I am 37 old now and 6 years ago I had my first deja vu 2 years ago I had my first seizure in while asleep. My wide and son was scared and called 911. It was scary for them and few days...

Created By: kelsouth@gmail.com | 11/2019 | 4 Comments

Hello,
I am reading though these posts and I am curious if any/many of you were prescribed Magnesium when you started taking Keppra? My doctor warned me about the Keppra rage and suggested...

Created By: drs21457700 | 11/2019 | 1 Comment

Waiting on appeal for disability for my son. Healthcare.gov says his insurance would run 400 a month. Because he's not working, he doesn't get a tax break. Does anyone know how to get...

Created By: Hereforq | 11/2019 | 2 Comments

I guess this is my rant or ill say just a release my life has been hard since all of this a little of my history, I had 1 episode in my living room in 2016 where I collapsed bit the tip of my...

Created By: Marina11 | 11/2019 | 2 Comments

Homeocure Worldwide is our own life saver! My son, Evan, now 5, was autistic, and he suffered from a series of life-threatening seizures – and was eventually diagnosed with autism. Even with...

Created By: Darren1980 | 11/2019 | 3 Comments

Having a bad few days and just wanted a place to vent out :/
I’ve not been completely diagnosed yet, but specialist seems to thing I have temporal lobe epilepsy. I’ve only had about 4-5...

Created By: Gifted-1 | 11/2019 | 2 Comments

Sharing this:
https://www.sciencedirect.com/science/article/abs/pii/S0920121114000217

And, here’s my recipe for homemade ginger ale (because ginger ale doesn’t really have ginger and...

Created By: qquuqquuqu | 11/2019 | 2 Comments

I was discussing a recent seizure with a friend when she had the bright idea "Oh I know, the seizures are the reason you're a homosexual." I know it's unrelated and a seizure...

Created By: TeeshMoney | 11/2019 | 1 Comment

So I met my husband while attending college in the year 2008, he was 19 and I was 18. We moved in together the year 2012 into a house his mom had passed down to him, and December 2013 my husband...

Created By: ryd89 | 11/2019 | 1 Comment

Starting to forget simple basic words in everyday conversations and I think its because of the grand mals and tremors I have. Ive been diagnosed with epilepsy for a little over 15 years now. Im...

Created By: Agustinho | 11/2019 | 2 Comments

Hi, I've taking lamotrigine for about 10 years now and it has always worked perfectly. Since the past year or so I've seen that my eosinophil count has been riding exponentially and my...

Created By: Drinkie | 11/2019 | 1 Comment

I stole this from a old post I found.

I feel like I'm totally present and marvelling at this
rapturous enthralling music which is more real than anything in my
...

Dr
Created By: Billc | 11/2019 | 2 Comments

Well I am having a Doc appt before the 6 months is up. I woke up and had wet myself and got to the bathroom and couldn't hold it anymore. My dr increased the vimpat 100mg twice a day to...

Created By: Link74 | 11/2019 | 2 Comments

Hi! I'm fairly new here. I joined a while ago, but never really got involved. It seems like a very useful forum though! I'm a 25yo female with complex partial seizure epilepsy. My...

Created By: ToBeFree | 11/2019 | 1 Comment

I have break through seizures and I've gone 9 months without a seizure. However, within the past few days I've been feeling like I'm falling real fast (scary sensation). The only...

Created By: Gurr | 10/2019 | 4 Comments

Hello there!
Last summer, almost 1.5 year ago I had a Tonic Clonic in my sleep at the age of 28. It is the only one I have had. My gf contacted an ambulance and I had to run CT scans and...

Created By: katec1 | 10/2019 | 4 Comments

I only have focal seizures. I am looking for anyone who inderstand these feelings. When my seizure strikes this feeling of an intense emotional pain races up on me and in my head im thinking “i...

Created By: Notcrazy | 10/2019 | 5 Comments

I should start by saying I do not have epilepsy but I have an extreme extreme extreme fear that controls my life of passing out and seizures. I'm here to try to gain control back and talk to...

Created By: SeanDH | 10/2019 | 3 Comments

So I have full grand mal seizures say once a month but these I can be somewhat prepared for as I get enough warning of the upcoming seizure as I generally have multiple Minor Seizures/Convulsions...

Created By: RandomBloke90 | 10/2019 | 2 Comments

I just posted a rather long-winded story of my history of epilepsy but it didn't want to accept it over and over again for some reason. Very frustrating! So I'll be super blunt.

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