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Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Brec25 | 01/2020 | 1 Comment

Hi everyone for the past few years., I'm 26 I've been having this weird spacy feelings. I get sweaty and feel like nausea. Also I get a tingling sensation in my left side of my body. It...

Created By: gaspatio | 01/2020 | 2 Comments

Hi. My husband was diagnosed with epilepsy a several years ago; general and localized epilepsy. He started having seizures very shortly before we met, so we are basically learning about epilepsy...

Created By: AsgardianNerd | 01/2020 | 2 Comments

I recently had a grand mal that sent me into a spiral. I can't sleep, I don't want to eat, I want to scream all the time, and I both want to be alone and not alone. I'm anxious all...

Created By: Believe | 01/2020 | 1 Comment

I was diagnosed with Grand Mal seizures back in 2007, which are controlled by carbamazepine. Luckily, the only time I've had breakthrough seizures is when I am sick.

However, this...

Created By: Death | 01/2020 | 4 Comments

The least atlked about part of a seizure disoder , anyone experiance mental health problems with misdiagnosis

Created By: PrinceCharming1984 | 01/2020 | 3 Comments

Just curious what everyone else feels. I've had Petit mal since I was 5, I'm 35 now, had surgery 11 years ago but auras returned. For me its a sensation of electricity running from the...

Created By: AlexH1997 | 01/2020 | 1 Comment

Hi everyone!
I was diagnosed with epilepsy at 7 and became seizure free at around 13. I had absence seizure only and never really had any other type. Im currently 22 and recently started...

Created By: Jim Clayton | 01/2020 | 1 Comment

Hey everyone. First post. I’ll spare you the backstory, but to clarify I have juvenile myoclonic epilepsy...my wife does not. She is carrying our unborn child though. I have many concerns, but the...

Created By: Wayneor92 | 01/2020 | 2 Comments

Hi everybody, I have been on here a couple of times and received some great advice so since my last episode kept me in hospital for a week I thought I would ask for some opinions again please....

Created By: CC123 | 01/2020 | 5 Comments

Is it possible to be conscious during a grand mal seizures and what does it feel to be conscious during one? I've been researching into it since this is all new to me and I've come...

Created By: belhaqq79 | 01/2020 | 1 Comment

I don't know what's causing these seizures but they just started happening & I'm scared. I've had test done & nobody can tell me why or how. I loose...

Created By: engelstad | 01/2020 | 3 Comments

About 3 months ago, I turned 49, and in 3 months, I will have had epilepsy for 49 years. Just about 10 days ago, living with epilepsy has turned difficult. Do any of you out there have any ideas...

Created By: riku33090 | 01/2020 | 1 Comment

Hi All,

My story is a bit different and long, so please bear with me.

I am 29 years old and have been seizure free since I was 9. I had a minor head trauma incident when I was 8...

Created By: alisonwht | 01/2020 | 2 Comments

I was 8 years old when I started having seizures. I would have them about every other week up until I turned 20 and then they became more frequent because I was trying new medications. I’m now 23...

Created By: whatif18 | 01/2020 | 3 Comments

Hello all,
First time posting, though I've thought about it many times. I've been living with Tonic-Clonic seizures for many years now, they've (seizures) lead me down a very...

Created By: Wicked2688 | 01/2020 | 4 Comments

When u call 911 for help u need help but when ppl are not trained on epilepsy cause ppl don’t look at this as a big deal this is a big problem

Created By: Anna2205 | 12/2019 | 3 Comments

Hi there I’ve had TLE since I was around 5, started with grand mal, now I always have partial seizures. Not had any for about 10 years but just started having them again. I have also suffered with...

Created By: Vishnu Kayarat | 12/2019 | 0 Comments

Hi everyone, I was diagnosed of Generalised intermittent epileptiform discharges and was on medication, Levera 500. However, I couldn't take the side effects of this medicine and had to stop...

Created By: Curtis_59fa6fc1eabfe | 12/2019 | 2 Comments

A friend came by to call today
To tell me it was near.
That I would soon be in its grasp
And it could be severe

Her presence is a warning sign
A moment she provides...

Created By: Stump2019 | 12/2019 | 1 Comment

A few days before Christmas I had what we think was a first time seizure. Before I get to that, a little personal background.

I'm 42, male (white if it matters), and at 38 was...

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