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Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

Adult Epilepsy Support Groups

Do you have any Adult Epilepsy Support Groups near you? I'm trying to compile a master list because there seems to be such a need for them. To see what I've got so far, go to: Adult Epilepsy Support Groups:


Hello friends. My name is

Hello friends. My name is Tyler, and I have had convulsive epilepsy and anxiety since I was twelve. I am 26 now. Just looking for someone to talk to about similar health problems... 

hi my boyfriend suffers from

hi my boyfriend suffers from epilepsy . he is 23 and he also sffers from the side effects of his meds keppra

Hi, my name is Rusti, I have

Hi, my name is Rusti, I have had seizures since the age of 2 years old. it has been 5 decades later there has been very little advances in pharmacy drugs. oh yes there have been great break through results in medications, but either the drug is high priced or is a controlled substance and can't be used by the patient. I have struggled my whole life with no support.

Hello I am Dustin. I have had

Hello I am Dustin. I have had epilepsy since age 7. I am now 40 years old. During high school and part of my college years my epilepsy was very well controlled(1 siezure every 5-6 months) After that it became very refractory. I'm on 4 medications and have about 5-6 auras and 3-5 siezures a week. I currently have my own support group based out of Independence, MO. I have had several local get together but want to try online chats. I want to invite anyone who is interested to  The main idea is to just talk to each other about our concerns, make new friendships, be encouraging, and just have a good time.  Hope to see you online soon, and good luck with the epilepsy fight. 

Hello , I've been in the

Hello , I've been in the group a while now never really write a blog on here, still in denial , I've had epilepsy for 3 years now, probably had it longer , do you ever feel sick when your over heated , or sick when your eyes are sore and over tired, is that normal to feel like this. I've learned to rest when I feel this way , I'm scared to push myself especially feeling like I'm gonna have one.  The first night I had three in my sleep, if my wife wasn't there I'd probably be dead. Or brain dead. 

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