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50 yrs old, epilepsy all my life, under control for years until ...

I believe my experience with epilepsy began when I was in third grade. I had the many tests and was put on a couple of different drugs, until it was considered treatable. When I turned 18, and hadn't had a seizure for some time, the doctors took me off medication ... thinking I had "outgrown it."When I was about 25 I began having seizures again. I went through the many tests and was put back on Dilantin. I have been taking Dilantin for the last 25 years, with no seizures, just figuring I'll be on Dilantin the rest of my life for treatment.In August of this year, I had three seizures in one day. I was taken to ER in an ambulance and tests were done. I was in the hospital for a week, as they thought they discovered a Glioma (slow-growing brain tumor).After a second MRI done a couple of months later, the brain appeared clear (where the spot they had found had appeared). They said I'm back in the "active" epilepsy world. They added Depakote ER 500 mg to the 400-500 mg of Dilantin each night.Yesterday I had another "episode" (like a state of confusion) which, when described to the neurologist by my husband, was determined to be another seizure. Now I'm on Depakote ER 1000 mg (plus my Dilantin).Funny, I had accepted knowing I had epilepsy for the rest of my life back when I was 25 and it was handled by medication ... now I'm scared that it's back and not under control.Thanks for reading this.


Re:50 yrs old,epilepsy all my life,under control for years until

I know exactly how you feel, I was told I would "out grow" my seizures, which I was having petitie mal seizures from birth to early preteens, didn't experience any convulsions during my high schools years and early adult life. Now I'm 29, within the last year, I've suddenly started having seizures again,  I was diagnose with Complex Partial Seizures. Now I'm unable to work, unable to fully support my son (whose been diagnose with Autism) been denied social security disability benefits. I'm at my wits end, pulling my hairs out of my head. I just don't know what else I can do.

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