Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Suralbayaty | 12/2018 | 0 Comments

Hi all,
I’m struggling with finding a good neurologist in Dallas area, a doctor who is will to see me instead of his nurse practitioner. With all respect to nurses and their knowledge and...

Created By: Suralbayaty | 12/2018 | 0 Comments

Hi all,
I’m struggling with finding a good neurologist in Dallas area, a doctor who is will to see me instead of his nurse practitioner. With all respect to nurses and their knowledge and...

Created By: AbbySmith | 12/2018 | 3 Comments

I had my first brain surgery in September 2016 when I first started having my complex partial seizures, I was 16 years old. They found a brain cyst the size of a large egg sitting in my right...

Created By: JenAnnM | 12/2018 | 0 Comments

I am looking for a mentor/life coach for a female friend (32 years old) who has epilepsy in Los Angeles. She can’t be alone (not grand mall…she has "drop seizures"). Her parents hired me...

Created By: Mummy82 | 12/2018 | 0 Comments

Hi all,

I’m seriously considering moving to Lamotrigine from the tegretol xr I’ve been on for over 10 years.
I’ve never been completely seizure free on tegretol and my dose keeps...

Created By: tsw5 | 12/2018 | 15 Comments

I'm 25 and have recently been diagnosed with focal aware seizures and secondary generalized seizures. I had my first grandmal seizure back in June, a week after telling my dad that I was...

Created By: joyboy9077 | 12/2018 | 3 Comments

Hi guys..hope everyone is doin well...I had my first and only seizure 3 weeks ago.im 39yrs old..it was really bad and my face went blue..lasted 15 minutes in all 5 mins then a couple of minutes...

Created By: Thebrunette | 12/2018 | 1 Comment

Hi everyone, I was diagnosed with epilepsy for 17 years. My seizures were controlled for the longest time then I just recently starting having them in August and last week. Medication wise I take...

Created By: Tourettes for Adults | 12/2018 | 1 Comment

I had a really bad morning Friday that caused me to tumble down 11 steps to our cement floor. In addition to head pain I also help pain if I tried to move my neck and upper back pain. I also...

Created By: marry22 | 11/2018 | 0 Comments

Need Legal Advice Against Abu Dhabi (UAE) Based Company for several default and fraud in the financial transactions

We want legal advice to take the legal action against Abu Dhabi based...

Created By: froumo | 11/2018 | 2 Comments

I am 28 years old, male and I have epilepsy. I am new with this situation, and I only have one seizure which happened seven months ago.
I am taking two pills every day to control and prevent...

Created By: DakotaL | 11/2018 | 2 Comments

Does anybody have any suggestions on ways for a guy with epilepsy to earn a living? Im trained in construction, concrete finishing, quart work.. stuff like this. I just don't see myself being...

Created By: Acarnes | 11/2018 | 2 Comments

How do I tell people they are potentially about to trigger a seizure without coming off...I don’t know, self centered or being dramatic? When other people are talking too loud or too fast, I...

Created By: Ryan.2288 | 11/2018 | 0 Comments

I am attempting to find out if taking bacopa monnieri is safe for those with epilepsy. I am not trying to prevent seizures with it, rather, I'm simply interested in the suggested cognitive...

Created By: adamlevine | 11/2018 | 0 Comments

Hi,

I have been dating her for 9 years now . A little back ground story. Two years a ago she has a psychotic break and she broke up with me during that time. I tried a lot to convince her...

Created By: claireqd | 11/2018 | 6 Comments

Hi all,

I have generalized seizure disorder and have dealt with absence, nocturnal, tonic, and tonic-clonic seizures since childhood.

I've always struggled to reconcile my...

Created By: oli5 | 11/2018 | 4 Comments

I just wanted to share this with people that might be interested. Check out this study. I can't believe doctors don't try this as first line treatment. I don't take anything else...

Created By: should_i_disclose | 11/2018 | 1 Comment

Hello all,

I was born in India and moved to US 5 years ago. I got my first seizure when I was around 8 years old and I had a total of about 10 seizures in my lifetime. I am currently 28...

Created By: mmsanc | 11/2018 | 3 Comments

Hello everyone, thank you all for this website because there's no website in my country like this one. I want to ask you a question but it's very long and because I'm not native...

Created By: AnnF_5bf2f62826be5 | 11/2018 | 2 Comments

Hello everyone, My name is Ann and I am new to this forum. I am writing this today because I am looking to get a second opinion regarding my epilepsy. It is not that I don't think I have...

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