Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Bardock44 | 06/2018 | 1 Comment

Hey guys, I been looking at forums and there are forums of reviews thanking these Doctors for finding a cure to epilepsy. I'm reading hundreds of stories all thanking doctors by the name of...

Created By: Nightmoves | 06/2018 | 0 Comments

Hi- I'm an old guy (65) and for a couple of months now, I have multiple incidents of seizure-like activity every night. My personal physician thought it might have come from taking the...

Created By: locustosylph | 06/2018 | 3 Comments

Hey,

I'm 18, relatively new. I've been diagnosed with Absence Seizures around May 18th, they're pretty late but I started getting small ones around 16, and now I'm...

Created By: Jamesarthur26 | 06/2018 | 0 Comments

I am a 48 year old male. My epilepsy has been under control now for a while,however I have just been recently diagnosed with anorexia nervosa. I have been looking for information on any...

Created By: PettaCottontaiLs | 06/2018 | 0 Comments

Ecstatic seizures has anyone had them ? what have your experiences been when have them? i have had a few now when the first one happened i had it in my sleep these days i have nocturnal TLE i had...

Created By: Bardock44 | 06/2018 | 1 Comment

Hey fam, look I know this is of heavy concern to you but I just earned my CDL and ready to get on with my life. I’m tired of going job to job and always getting fired and being trash at everything...

Created By: Rwvalle97 | 06/2018 | 2 Comments

So I have had epilepsy for 5 years and was prescribed lamictal. For the past year I have been taking lamictal AND topimax. Like many others I have been experience memory and speech issues from...

Created By: rollinintheseat | 06/2018 | 1 Comment

Hi,

I've heard about a new medication coming out called Epidiolex. Does anyone know if this will treat partial seizures?

Created By: Stay_Strong21 | 06/2018 | 4 Comments

Hey I'm Kat I've had epilepsy since I was 20, I am now 26. I went 4 years with no episodes and was able to work full time. Last Nov 2017 I started having seizures again more then before...

Created By: Wpooh2001 | 06/2018 | 5 Comments

Does anyone else get frustrated not being able to drive because of seizures. I’m 35 and have been told I’ll never be able to. Granted I try to look on the bright side. I can text, no tickets and...

Created By: Airborne | 06/2018 | 2 Comments

This morning, (June 3rd, 2018 at approximately 7:30) I got up after staying up very late the previous night. Tired, I slowly attempted to start making my Breakfast. However, when I put my had on a...

Created By: Leech_5b117d0ded0e8 | 06/2018 | 0 Comments

Blue lights can trigger a seizure for me. Ex police lights and much more importantly for me are lights during a dance show. My daughter dances and the blue colored laser lights are really bad on...

Created By: PB96 | 06/2018 | 5 Comments

I'm new to all about epilepsy. I had an EEG today to rule it out, and I'll have the answer within 2 weeks.
I'm turning 22 in october, female. No family history of epilepsy....

Created By: kan2011 | 05/2018 | 2 Comments

hello,
My daughter (5 months old) has a mutation on the SCN3A gene. this mutation cause her to suffer from epilepsy and we haven't found yet the best treatment plan for her. to the...

Created By: ivansgirl5fdp | 05/2018 | 1 Comment

Okay so it started in February. I started blacking out when I would go to lie down. Before I would even put my sleep apnea mask on I just blacked out. This happened multiple times, I'd say...

Created By: Jake schaar | 05/2018 | 2 Comments

Epilepsy for
“Normal” People

By
Jacob Schaar

What is a “normal” person? Who decides who or what a “normal” person is? I ask this because when people find out I have...

Created By: Shan71 | 05/2018 | 3 Comments

Hi, i've had a video EEG for a week and no seizures.. does anyone have any tips for bringing them on in hospital? going back soon. my normal patter is when i'm relaxed after stress,...

Created By: PT123XL | 05/2018 | 1 Comment

Doctors have been treating me since I was a toddler.
My seizures have got more freqent and more severe over the last 5 years. I've been keeping a log of them, the build up to them and...

Created By: CodyJames | 05/2018 | 4 Comments

Apologies if I am not posting this in the right place(?) I only found this website a moment ago.

I believe I may have epilepsy, but figured I’d ask others opinions that are likely far more...

Created By: kda | 05/2018 | 3 Comments

I've had epilepsy for more than half of my 50 years, and at this point, my doctor and I are doing pretty much all we can to control them, but I still have them once in a while. I had another...

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