Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: mdenbigh | 05/2020 | 1 Comment

I was a third generation employee at ExxonMobil Corporation with a combined service of 70+ years at the Baytown, Texas refinery. I personally worked for ExxonMobil Corporation for just short of 5...

Created By: seamuspg | 05/2020 | 4 Comments

One year ago, I was diagnosed with Temporal Lobe Epilepsy. Prior to starting Lamictal (200mg) I experienced deja-vu / sense of familiarity / dual consciousness episodes which lasted between 3-6...

Created By: Mswanson502 | 05/2020 | 1 Comment

Do any of you ever have seizures where you feel like you're being zapped, tazed, shocked, etc? It's like a sharp pins and needles sensation.

Created By: ktee | 05/2020 | 2 Comments

Hello to everyone

As I said in my introduction; I'm French so I may make some mistake in my writing. Please be kind to me :-)

Well; I have to say I started experienced this...

Created By: Windart | 05/2020 | 1 Comment

Hi everyone!
I'm a 21yo old guy from Romania (well, sorry for my english)
At the age of 7 I suffered 3 grand mal seizure at few months distance (all in sleep). I received...

Created By: Dnedzel | 05/2020 | 5 Comments

I had my first seizure at age 60, this past April 16th, 8 months after meningioma surgery which the surgeon says went very well. He was surprised that I had a seizure, but said that the scare...

Created By: Brenden | 05/2020 | 2 Comments

I live in easternWashington state and it can fluctuate very rapidly between cold and hot weather. One day the house will be kept warm on a cold day and cool on a hot day. Going in and out of the...

Created By: raven9019 | 05/2020 | 1 Comment

Can anyone point me in the direction of a detailed article on how seizures work.. I find so many saying g what the are but none on how the actually work.

Created By: Mrs. Dyer | 05/2020 | 5 Comments

Hello,
I'm wondering if there's anyone else with epilipesy who has experienced the same thing as me. I was diagnosed with idiopathic epilipesy 6 months ago. I take keppra and...

Created By: Shalei | 05/2020 | 3 Comments

I've had epilepsy for 23 years and I STILL struggle with guilt. My family and friends are beyond amazing with working around my limitations even something as simple as me being the one to...

Created By: jeromerider | 05/2020 | 1 Comment

Hi all,

I was diagnosed with JME when I had violent twitches every morning from 18yo (2008) but wasn't under meds until I have a tonic-clonic seizure at 20 because of a messy young...

Created By: sophms | 05/2020 | 0 Comments

Hi! So I just watched a documentary about ALS (Lou Gehrig’s) and have a question. Do epileptics have a higher risk of getting this disease than the average person?

Thanks!

Created By: Drinkie | 04/2020 | 3 Comments

I'm only having nocturnal seizures. About two a month. Sometimes I'm extra tired the next day or two. Other times I wouldn't know if my wife didn't witness it.
Currently...

Created By: Stephkiki | 04/2020 | 2 Comments

Hello Everyone,
I recently joined this foundation, am from Nigeria. I had my first seizure in May 2018 (29yr) ever since then it’s been on and off depression for me. Am presently on 600mg...

Created By: USAFAlcon | 04/2020 | 1 Comment

Have any vets had epilepsy surgery and seen an increase in VA compensation as a result?

Last year I saw a significant change in my epilepsy, which led to two surgeries. The first was for...

Created By: RichieB | 04/2020 | 2 Comments

When i was 10 years old in 1990 i started getting a feeling like twitchy tingly electricity was shooting through my mouth. It was a seizure aura. The third time it happened i had a tonic clonic...

Created By: Lizm2020 | 04/2020 | 5 Comments

Im 44 now and for the last few years when i stretch -usually after waking so thankfully still laying down, often during or after yawning i drop into a fully conscious seizure-like thing where i...

Created By: hihellothere | 04/2020 | 3 Comments

hi i have been an epileptic since i was 9 and I am now 25. I have switched and altered my medicine many times growing up. Currently I am on Onfi 10mg twice a day and Keppra XR 500mg x4. I have...

Created By: Jessherter21 | 04/2020 | 5 Comments

Hi everyone! My name's Jess and I'm new here. I was diagnosed with epilepsy this past month after my second grand mal seizure while at work. They started me on 500 mg keppra twice a day...

Created By: IronStrong | 04/2020 | 1 Comment

So yesterday I went on a difficult hike and reality overdid it. When I got back home I spent time next to my bed on my knees doing my best to ward off seizure activity and trying not to fall...

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