Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

A place for parents and caregivers to learn and get support from people taking care of infants, children, and young adults with LGS.

Topic: Lennox Gastaut Syndrome

Created By: devadosshospital | 06/2020 | 0 Comments

DevaDoss Hospital is a prospective, randomized Multispeciality clinic in Madurai. We are helping to prevent the gallstones after gastrectomy for gastric cancer. One hundred patients refused to...

Created By: bkcogley | 03/2019 | 0 Comments

Our son, now almost 17 months old, has been diagnosed with LGS. He is quite young to present as he has from what we understand. But we have known in our hearts from 4 months old, that something...

Created By: Sniper27 | 04/2018 | 1 Comment

Of all of the AED's out there has anyone ever gone toxic on one? I've gone toxic twice on two different medications so I was curious if anyone else had gone toxic?

Created By: NDarlin | 02/2018 | 4 Comments


Here is our backstory.

My son was diagnosed with infantile spasms at 6 months, we went through alot of meds to get it under control. Started with ACTH, Sabril, Pheno, Onfi,...

Created By: triangle_insights | 11/2016 | 0 Comments

If you're in the areas listed below and suffer from Lennox Gastaut Syndrome, Triangle Insights Group invites you to participate in patient and caregiver discussions in December 2016. We are...

Created By: lorikremer | 05/2016 | 0 Comments

Looking for help-my 25 year old daughter is out of control-compulsive drinking, stacking, sorting, unplugging everything, opening doors and windows, arranging and re-arranging-non stop- only...

Created By: | 01/2015 | 4 Comments

My 14 year old disabled son is currently on Phenobarbital Depakote Topamax and the new dr we saw yesterday added Onfi cause he's been having drop attack seizures and they are having us wean him...

Created By: epihelp | 12/2014 | 0 Comments

HI everyone, Check out the Information For Lennox Gastaut Sydrome at 

We'll be doing more Hangouts on LGS - and be posting them...

Created By: tinamadden | 08/2014 | 1 Comment


Created By: ben10 | 05/2014 | 0 Comments

It has been 5 years since we took on a diet similar to that of the Ketogenic .We now have six children living seizure free and on no medication.With a mix of science and nature when you find the...

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