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seizure alarms

Hello, I'm new to this site. My daughter is 19 months old and started having temporal lobe seizures a couple of weeks ago. Her seizures have lasted 45 min to an hour before we've been able to get them under control with medication. She is taking Trileptol and we are still playing with the dosage trying to find the right balance. I am very concerned that she could have a seizure at night and we wouldn't know about it. Does anyone know of a monitoring device that actually works?

Comments

RE: seizure alarms

Well, there are some out there, but I haven't heard of anyone really using them. Some people buy pulse oximeters. Those are the machines they hook the children up to on their toes to keep track of their oxygen. If the oxygen level drops the alarm sounds. Some parents tie bells on the bed. I hope the doc gave you a script for Diastat to have home and told you if the seizure lasts for more than 5 minutes to administer it. If not, I would insist on it. Some docs will give you a script for the pulse ox so the ins will cover. Good luck with the trileptal.

Re: RE: seizure alarms

I personally use one, however it is a bed alarm.  My son has nocturnal seizures and it has detected each one he has had.  I have never heard of one that is 'mobile' and goes with the person.

Good luck!

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