Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

Parents of epileptic adults

I need a forum to speak openly about frustrations concerning my relationship with my son age 23 who has had epilepsy ADHD since he was 14. Does anyone have an idea ?

Comments

RE: Parents of epileptic adults

this forum is pretty small. you should probably also try the forum that john lester runs. http://brain.hastypastry.net/forums/there are specific catergories on that forum and you would want to post in a couple of catergories, epilepsy and ADHD. people double post all the time, so don't think anything of copying and pasting your post. you ought to get repsonses from people because it is such a busy site. there are comorbid neuro problems, so you won't be alone. if you post on the epilepsy board, take a look at the "parents of kids with E" thread. there are several parents with kids in their 20s. this is a link to a much smaller board, but it is a friendly place and there are several parents of adult kids with E on the board. http://www.debraboard.org/cgi-bin/temp.plone of the wisest moms i know on that board kept a good dialogue going with other parents as well as with people with E.

RE: Parents of epileptic adults

Hi.I hope that you do find a place you can feel comfortable talking about your son.Another good site is this one-I believe and hear that members from here post as well on the there,and on the other links mentioned.Braintalk has excellent links regarding ADHD sites,and members that know a lot about the subject.Try all the sites,find one that suits you,use them all if you wish,as well as this one you have posted your message on. http://www.epilepsyfoundation.org/eCommunities/index.cfm

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline
P