Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
New to Epilepsy
Fri, 06/18/2004 - 17:02Topic: Family & Friends
Hi. My 6 year old son was recently diagnosed with epilepsy. I feel confused and alone because I don't know anyone else with a child with epilepsy. My son used to take febrile convolutions when he was little and now the doctors are telling me my son has epilepsy. I think I am still feeling a little bit shocked by it all and don't know what to do. Are there any other parents out there that felt this way when their child was first diagnosed???
Comments
RE: New to Epilepsy
Submitted by jods on Fri, 2004-06-04 - 06:06
thanks for the link i am sure i will find it very useful
RE: New to Epilepsy
Submitted by tessasmom on Fri, 2004-06-18 - 17:02
Yes, I felt awful about my daughter's diagnosis (age 4). Somehow the information was delivered in such a matter of fact way, I felt obligated to take it in kind; like being told my car needs new tires. But it IS scary, it IS sad - certainly not what you had planned for your child. Allow yourself time to grieve. One word of advice: for the sake of your child, try not to hover. It's very tempting, but this is his life and he needs to learn to live with it. God's blessings to you.
RE: New to Epilepsy
Submitted by kat_nz on Fri, 2004-06-04 - 04:54
not a parent myself but try the following link. Its for a "parents helping parents" epilepsy forum.http://www.epilepsyfoundation.org/Forums/categories.cfm?catid=2~~~~~~Kat NZ~~~~~~