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My moms fight

Wed, 11/07/2018 - 09:09
My mother had epilepsy my whole life she recently died from a seizure last Friday went spend 23 years together dominated by this decease called epilepsy that up u til just this second I knew zero factual information like actual medical research and all this it would have helped so much but at a super early age I learn how to battle this disorder with my mother because it was only us. My mother never had control of her seizures not even for a week I never remember her following what the doctors said mainly because she was scared of hospitals and doctors and just everything to do with hospitals see she had seizures so often all of the paramedics and doctors got to know her and started treating her very badly to the point she would refuse to go with them when they were called just incoherent and violent it was crazy but one of my stories I will tell is my newest story about my mother I wasn’t there this time but this is how my moms story finally ended my mother was with my grandmother and her sister my aunt my mother was there at my grandmas house to be there to keep her sister my aunt company while she took care of my grandmother my mom was a bigger woman around 320 pounds she really wasn’t in the best shape to help out a lot but she would keep her sister company this gave my mom her little bit of time out of her home so they were there and my mom had a seizure she has very very violent grand-ma seizures I guess my aunt got her down off the chair on to her side and waited for the seizure to finish it’s course during this time my mother would be violently convulsing and puke on the floor for around 3-5 minutes during those minutes you feel like your whole world is falling apart it feels like hours of your heart being stepped on a thousand time over by a giant so after this seizure took its course my mom laid there on the floor in coma like sleep making what sounded like animal noise howls and growls and gags and gruns that shoot straight threw your ears and add to the heartbreak and torment that just took place and after that she was just tired pretty incoherent but she could half way walk so they decided to take her home and let her sleep it off like normal this was a normal Kim moment she would have a seizure it would be like this every time and she would sleep it off and we would talk to her In The morning and listen to the speech of a fighter with a swollen tounge so that was the plan to call her in the morning well nobody ever got that chance sometime during the night or early morning my mom probably got up to use the restroom and while In The bathroom she had a seizure went head first into the tub she was In The tub face from around 630am until 430 pm when I got the call that my mother had died. While she was o. Her head In the tub all her blood went into her head and arms turning most of her upper body black fluid started building up everywhere in her upper body her arms at so swollen the coroners tide them down this was my worst fear staring me in the face I know that was a rough story but it was 100% true and I’m living that ritenow I need u to know that for 23 years I have been telling my mom to take her meds to watch wat she ate to get sleep and I have had to learn this all of this everything first hand just watching my mother so first of all I’m so touched that there is an epilepsy foundation and that there is support out there so even if the situation can’t get better the care can and secondly I just want to remind anybody that is fighting please try your best to get it under control with a doctor don’t let pride embarrassment or anything get in the way my mother was so broken she was so ashamed that she never cared she let her self become completely broken and gave up I’m telling u don’t give up do all u can do to improve quality of life we can change it but we have to fight it we have to live life rite with or without this disorder If anyone has any questions wants to hear any stories or just wants to talk Just say hey

Comments

My spelling isn’t the best

Submitted by Javic on Wed, 2018-11-07 - 09:10
My spelling isn’t the best and there’s like no periods my bad I’m on my phone 

Empatica makes a watch that

Submitted by deb.weezie@icloud.com on Wed, 2019-05-01 - 01:28
Empatica makes a watch that alerts caregivers when someone who suffers from gran mahl/tonic-clonic seizures occur. It works in conjunction with your cell phone and the app. It immediately alerts all caregivers you enter on the app and has navigation that tells them the location where it’s taking place. I have those big convulsing seizures, so I know personally how awesome this watch is!!! 

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