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6 year old daughter with Post-Encephalitis Seizures
Thu, 11/04/2004 - 21:32My daughter had encephalitis in February 2003, and has had hard to control seizures since then. She was in the hospital for two weeks, she was home for two weeks and then went back in for an entire month due to Dilantin drug fever and seizures. We were finally able to go home when when she went for 48 hours without a seizure. We have been through all the medications, she has been on combinations, usually on three at once, now she's on Trileptal, Depakote and we just started Lamictal about 2 months ago. She has been hospitalized (ER visits, EEG monitoring) several times because of the seizures (she tends to cluster and has several on the same day - we now always have Diastat with us - I have had to give her Diastat every week for the past 2 -1/2 months. )
We met with our Neurosurgeon on Monday and she is now scheduled for Epilepsy Surgery next month - of course, we are terrified, but are anxious to have her life (and ours) restored to some type of normalcy. She missed about 40 days of school last year and has already missed about 10 days this year...
I guess I'm wondering if anyone is having similar experiences with their young child...it would be nice to chat with someone who understands what it's like to watch your child go through this and the toll it takes on mom too...although my family is wonderful it's hard to listen to "you're not really going to go through with the surgery are you?" or "you shouldn't do it" .
Comments
Re: 6 year old daughter with Post-Encephalitis Seizures
Submitted by ValNewLife on Sat, 2008-10-25 - 10:42
Hi there... Wondering how your daughter is doing, and if she did in fact have the surgery?
~Val~
"For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11
Hi there... Wondering how your daughter is doing, and if she did in fact have the surgery?
~Val~
"For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11
Re: 6 year old daughter with Post-Encephalitis Seizures
Submitted by ValNewLife on Fri, 2008-03-14 - 08:23
My son also has Post-Encephalitis Seizures. The viral encephalitis occuring in 7/06. Please contact me. I would love to talk with you. God Bless, Val Clark