Community Forum

A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: Biancavd | 07/2019 | 2 Comments

My husband had his 2nd seizure last monday. His first was 3 years earlier and I had fully accepted it to be a 1 time thing. Because of this second seizure, my world litterally came crashing down...

Created By: SchoolPsychCorbitt | 04/2019 | 2 Comments

I'm a school psychologist in Huntington Beach, CA looking for ideas to support one of my high school students who has anxiety regarding her helmet. She has not had to wear it yet because it...

Created By: Mswilly | 04/2019 | 3 Comments

My boyfriend and I are both 20yrs old and have been dating for roughly 2 years . He has had epilepsy since he was 17yrs old . He’s currently in school for automotive and isn’t working . We both...

Created By: breeperx | 03/2019 | 2 Comments

Hi! I'm kind of new to the whole epilepsy world. My fiancee has had seizures for the last 5 almost 6 years. He went for nearly 2 years without them, but then had a couple in the last year. I...

Created By: Chey.musick | 03/2019 | 0 Comments

I’m a senior in high school, I’ve always had great friends. I went through my share of people before I found the right group for me and found MY best friend. Everything was super great I’ve been...

Created By: Derty | 01/2019 | 1 Comment

My husband has got TMJ. A disc in his jaw is all folded up which causes him significant pain. He has got jaw pain for about 3 years now. It has been triggered by grinding his teeth the night of a...

Created By: Ahamrick | 01/2019 | 3 Comments

About a year ago I started seeing a man I've known for about 14 years. I knew he had developed some health issues due to an accident, but didn't know the full extent of the after effects...

Created By: Sam Rydstrom | 01/2019 | 2 Comments

Hello. I have an older brother (he’s 19), and sometimes he’s haveing what we call tremors, he gets REALLY angry. He will yell at everyone and keep on trying to go to work and I don’t want to yell...

Created By: FSausser | 12/2018 | 2 Comments

My boyfriend of almost t years is 36. Up till this past summer as far as we know he has never had seizures before. Was diagnosed with epilepsy but don't recall a specific one. He doesn't...

Created By: Buttercup13 | 11/2018 | 1 Comment

So, I'm not sure what to do and need advice. A bit about the circumstances:

My boyfriend has brain damage, and has had it since he was young. We've been dating for about two and...

Created By: anminer | 11/2018 | 0 Comments

Hello,

I'm new to this forum and am hoping to get some answers or find someone who has had a similar experience as my family and I are grasping at straws to find out what is wrong with...

Created By: Cpryor | 11/2018 | 3 Comments

So my BF start taking the Generic Keppra in May 2018 after his 2nd episode of seizures. Before then, he's always kind of had anger issues...but nothing just THAT bad. Recently, lets say since...

Created By: Javic | 11/2018 | 2 Comments

My mother had epilepsy my whole life she recently died from a seizure last Friday went spend 23 years together dominated by this decease called epilepsy that up u til just this second I knew zero...

Created By: nyghtbrynger | 10/2018 | 3 Comments

My boyfriend is being referred to a doctor for a specific kind of EEG where he will be hooked up for 3 days, not allowed to eat or drink anything, nor allowed to sleep in the hopes of triggering a...

Created By: Rowsdower | 09/2018 | 1 Comment

Im sick of the anxiety of going to bed every night hoping I dont wake up with EMTs over me.

Im sick of being so fucking tired from the medication

Im sick of losing the ability to use...

Created By: ktetreault1 | 09/2018 | 0 Comments

If anyone has any questions about the amount of strobe lights in a movie, video game, or concert, go to this website to find complete reviews on the amount of strobe lights and stressful...

Created By: jeneviechan | 08/2018 | 3 Comments

Hello, my name is Jenevie and I am a 19 y/o in college. My sister Lily who is 17 has had absent seizures up until 8/16/18 since she was 11. She started public school for the first time in 3 years...

Created By: sarahbethsummers | 08/2018 | 0 Comments

Seminar in Nashville on Sept. 15 for students on doing college with epilepsy!
Details/Register online: studentswithepilepsy.com
*For high school and higher education students with...

Created By: Alixxchan | 06/2018 | 0 Comments

I am 22 years old, a month ago I was a perfectly healthy individual. But now I’m having symptoms such as seizures, passing out and a high resting heart rate of 100-110, I went through a sleep...

Created By: AshleyMensah | 06/2018 | 1 Comment

Hi, my name is Ashley and I have been married almost 11 months to my wonderful husband, and we've been together for over 6 years. Up until this past April he had a seizure every year to 2...

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