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My daughter needs help
Fri, 12/22/2017 - 21:58Topic: Epilepsy.com Help
My daughter wad diagnosed at the age of 10, she is now 26, she has been on keppra, vempat and lamotrigine for quite a few years now, she is now having episodes where she can't walk And has a hard time with her vision, she's been in the hospital for a week now and the dr's are unsure of what it could be. Anyone else have knowledge of anything like this???
Comments
our experience agrees with
Submitted by Amy Jo on Sat, 2017-12-23 - 13:40
our experience agrees with Joe, check out the meds and interactions. our child has problems (dizziness/vertigo and nausea) if her lamotrigine dose is too high for her. her doc didn’t believe that her mild/moderate dose could be the problem but when we switched from splitting her daily dose from two to three it fixed the problem. extended release would have had a similar effect but she can’t take pills whole. for lamotrigine the worst effects hit within 60-90 min after a dose the was too much. of course we had to treat a sinus infection with two courses of antibiotics and see an ENT doc about possible labyrinthitis before I asked how we could test if it was the medication. and we didn’t stop lamotrigine, just adjusted the administration.meds are individual. our child can take a dose of another epilepsy med that many adults can’t handle.
Has your daughter been seen
Submitted by epihelp on Mon, 2017-12-25 - 16:24
Has your daughter been seen at a comprehensive epilepsy center? If you need information about these, here is a link - https://www.epilepsy.com/learn/refractory-epilepsy-difficult-treat-seizures/comprehensive-epilepsy-center
Are the head neurologists
Submitted by just_joe on Sat, 2017-12-23 - 12:00
Are the head neurologists working on her case? Medications can get toxic in the body. I got toxic on a medication and they had to take me off it rapidly because of that. The therapeutic medication takes some time to leave the body which can be a week or two which they change the medications. But then I am not a doctor. I do know she needs to be having a neurologist that specializes in epilepsy working on her.