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Can my grandmal seizures be caused by vasovagal syncope?

Since the age of 23, I have had what appear to, and diagnosed,  as having grandmal seizures. I have reached a point in my life where the fear of having a seizure is causing me so much fear that I won't even go to the doctor for routine treatment and blood work. Although I am medicated, I stop driving frequently anytime I feel the slightest anxiety. I can't even discuss my seizures out of fear it will cause one. It has gotten worse over time since I have had 2 seizures while medicated. I am now determined to find a way to deal with this but I am not getting much help from my neurologists.

Please help. I would greatly appreciate if any of you could provide some insight.  Does my vasovagal syncope cause a grandmal seizure or is it not really a seizure in the first place? I have seen two neurologists and they gave me two different answers.

Because I tend to ramble on I am going to list some facts about my seizures.

MODE

1) I become dizzy and pass out.  Continue to be unconscious throughout seizure. On two occassions I woke up at end of seizure and experienced a hellish state of confusion, random thoughts and fear that cannot be matched by any other experience. I scream for about 10 seconds until it fades away.

2) Convulsing.

3)  Loss of bladder control.

4)  Body temperature rises and I sweat so much that my shirt becomes soaked in a couple of minutes.

4)  After seizure I am completely incapacitated. I have shallow breathing and it takes all my energy just to talk. Even when I try it is very difficult to help EMT's move me onto stretcher. As soon as they sit me up, I begin violently vomiting for about 10 minutes straight. Extremely dizzy. It takes about 3-5 hours for me to stand and leave hospital. I then sleep all day.

 

HISTORY 

My first major "seizure" occurred in my primary care physician's waiting room. He observed the seizure and reported that it lasted about 5 minutes with     convulsing and loss of bladder control. 

 Seven  out of the eight seizures were all brought about by anxiety directly related to some kind of medical situation;

  -   Once in Dr.'s office when I brought my wife in with severe kidney  pain. I started sympathy pain and then fainted.

  -   Two in same Dr.s' office having blood taken. Once from the nurse trying 8 times unsuccessfully trying to find a vein and another time while having blood taken and mentioning to the nurse that I had a seizure in the same exact room.

   -  One at my desk, at work, while reading about the side affects for the Prednisone I was taking.

   -  One at the Dentists office watching my wife being put under anesthesia.

   -  One in bed after I woke up with chest pain and was afraid I was having a heart attack ( I wasn't)

   -  Once I was sick and went out drinking with friends and then went to sleep at like 2 A.M. I started fearing a seizure and then fainted.

 I have passed out twice under similar stress without having and post-ictal affects.

 

It seems like my events start out as vasovagal syncope but my question is whether or not it's a real seizure. I am hesitant to undergo testing since having the seizure really sucks! I probably will have one before they attach the electrodes. 

 

Thanks,
Rob

Comments

I started having seizures

I started having seizures years ago which were misdiagnosed as epilepsy.Epilepsy medications didn't work, so the doctors (Neurologists) started calling them "pseudoseizures."  (Insulting!)With further research into seizures, they changed my diagnosis to "psychogenic seizures."  This fits because I have PTSD.When I was prescribed Clonazepam for anxiety, my seizures stopped.  I still have break-through seizures about 1-2 times a year.Now I have to update my neurologist with a new possible diagnosis.

Did your doctors ever say

Did your doctors ever say that this was dangerous for your baby? How is everyone now ? I also have this issue and am in the middle of diagnosis right now. I just had my first baby in January. 

So do you think you have

So do you think you have vasovagal syncope or PNES (pseudoseizures)?  I have been given a PNES diagnosis in 2006 and now my new doctors are investigating my heart to see if I have syncope that leads to seizures. Very annoying and confusing. I don't care what they are called I want them to stop.  I take xanax and whenever I am on anti anxiety meds it helps. 

So do you think you have

So do you think you have vasovagal syncope or PNES (pseudoseizures)?  I have been given a PNES diagnosis in 2006 and now my new doctors are investigating my heart to see if I have syncope that leads to seizures. Very annoying and confusing. I don't care what they are called I want them to stop.  I take xanax and whenever I am on anti anxiety meds it helps. 

I had just read this before

I had just read this before coming here. Thank you for this information! I am also coming to terms with this being my possible diagnosis after being diagnosed with pseudoseizures. How is he doing now?

I had just read this before

I had just read this before coming here. Thank you for this information! I am also coming to terms with this being my possible diagnosis after being diagnosed with pseudoseizures. How is he doing now?

So do you think you have

So do you think you have vasovagal syncope or PNES (pseudoseizures)?  I have been given a PNES diagnosis in 2006 and now my new doctors are investigating my heart to see if I have syncope that leads to seizures. Very annoying and confusing. I don't care what they are called I want them to stop.  I take xanax and whenever I am on anti anxiety meds it helps. 

I had my first episode at age

I had my first episode at age 2. 

My 22 year old daughter just

My 22 year old daughter just saw a cardiologist today. She has had vasovagal syncope since 6th grade. Usually fainting with fairly quick recovery. Her last 2 episodes,  both within the last 12 months, were different. She appeared to just be having a seizure so we didn't get her to the floor to restore blood flow.  Because we kept her upright the lack of blood flow was causing the seizure. Her plan in to avoid triggers. Avoid dehydration (3 liters of fluid a day with electrolytes). Avoid alcohol (it dehydrates). Strengthen lower legs to help keep blood flowing back up.  Very good appointment with answers and a plan. 

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