Chat and Community Forums Closed

Due to the popularity of social media, we have seen decreasing engagement on our forums and chat. Please know we want to keep talking to you about epilepsy, seizures, and what you need. We want to stay connected with you.

Community Forum

Topic: Diagnostic Dilemmas and Testing

Created By: malottemama | 01/2020 | 3 Comments

Last couple of seizures my son had had. He has told us he was hungry before the seizure. Any one experience this?

Created By: emandmaiya | 01/2020 | 0 Comments

second ever seizure caught on camera

Created By: physio325 | 01/2020 | 3 Comments

Hey guys! I am new to the site and am hoping that someone might be able to give me some insight. I had meningitis in 2014 (viral) that went undiagnosed for almost 2 weeks while it progressed and...

Created By: CLA | 12/2019 | 1 Comment

My 12-year-old daughter has a rare genetic disorder resulting from a mutation on her KPTN gene that appears to be the cause of her epilepsy. Are there any others out there who have received this...

Created By: EmilyB_5df11112e72ac | 12/2019 | 4 Comments

Hi,

I am currently waiting for my neurology appointment after what is now 16 episodes in just over a month. Symptoms are extreme dejavu (feeling like I’m watching a dream in my head I’ve...

Created By: Turls13 | 12/2019 | 2 Comments

Hi there,
I was wondering if anyone can help me at all. My daughter (7) was diagnosed with Jeavons Syndrome 4 weeks ago however when we recieved the neuro letter it stated that due to low...

Created By: darrynT107 | 12/2019 | 1 Comment

Hi
So I've been diagnosed in 2007 during school with epilepsy.
For more than 2 years I have not had a seizure and for 2 years approx I have not been on my phenytoin and I never...

Created By: Becks_5dcbecc94cfef | 12/2019 | 1 Comment

Hi my daughter is about to turn 3 years old. Since she was born we noticed her do shudder movement. At 6 months old she stopped breathing in her sleep twice where rescue breaths were required....

Created By: ahead | 11/2019 | 4 Comments

Hey all, this is my first post here although I have been looking through this forum anonymously for a while now, trying to see if I could find any answers to my questions through other peoples...

Created By: IronStrong | 11/2019 | 9 Comments

Hi everyone,

So I am 30 yrs old and was just diagnosed with partial epilepsy "focal predominantly left anterior temporal but also right anterior temporal and intermittently generalized...

Created By: kyte22e | 11/2019 | 4 Comments

Hi, I'm a 24 year old female and have been getting seizures since I was about 7 years old. I had my first seizure after a teacher told my family I wasn't paying attention in class and...

Created By: Ewind | 11/2019 | 5 Comments

Hello!
I'm 33 years old. Since I was 4-5 years old almost every day I have been experiencing fear attacks. They take for 2-3 minutes. Sometimes they are trigerred by loud sounds,...

Created By: Babyboy_5bae19a734955 | 10/2019 | 1 Comment

My son is 18 months old, diagnosed with mild to moderate HIE at birth, mild myelnation delay( via MRI), gross motor and speech delays, hypotonia and hypertonia, macrocephaly ( 20.9 inches at 17...

Created By: birdman | 10/2019 | 2 Comments

I am just reading the book by Suzanne O'Sullivan, Is it All in Your Head? I just finished chapter 2 about Pauline. Pauline experienced many symptoms that lead her to the hospital where...

Created By: USMousie | 10/2019 | 2 Comments

Hi,

I am 51 and had my first violent seizure four months ago and another one month ago. A year ago I took Wellbutrin for a month and quit due to the loss of equilibrium and double vision....

Created By: tayla_lexia | 10/2019 | 3 Comments

I was wondering if anybody could help me,
4 years ago when I was 12 we went on a camping trip and the morning after we got there we got up extremely early, It was so hot and all I had for...

Created By: ds34450 | 09/2019 | 2 Comments

Hello everyone.

I was diagnosed with epilepsy last December after two grand mals and a few auras. All tests, however, drew a blank, so the cause is still a mystery. Keeping an epilepsy...

Created By: Patriotrehab | 09/2019 | 1 Comment

I’m now on day 7 of 7 for my VEEG, with tomorrow morning scheduled for an MRI and discharge. After 19 years of intractable epilepsy that started under what my epilepsy specialist felt were “...

Created By: dashgreg | 09/2019 | 0 Comments

I am a newbie. After 2 seizures 10 years apart (no meds) and now 1 more which precipitated 3 seizures my MRI showed a slight FLAIR in T1 right temporal lobe. I don't want to think I have...

Created By: Anne with an E | 09/2019 | 2 Comments

Good Afternoon.
I was recently admitted to the hospital (outpatient) via the ER following a tonic clonic seizure in my backyard. The Hospitalist on duty determined that the stay would be...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline
P